Celebrate Hope Foundation

Celebrate Hope Foundation Celebrate Hope Foundation is a nonprofit charitable organization dedicated to improving the quality of life of those affected by Sturge-Weber Syndrome.

Celebrate Hope Foundation, Inc. is an IRS registered 501(c)(3) nonprofit charitable organization dedicated to improving the quality of life of those affected by Sturge-Weber Syndrome and port-wine birthmarks. Its mission is to create awareness and raise funds for Sturge-Weber research and further the efforts to find a cure. Over the years, Celebrate Hope Foundation, Inc. has hosted a number of cha

ritable events and athletic endeavors including Bands on the Bay, Crossing America For A Cure, and Running The Coast For A Cure and has raised over 1.3 million dollars for Sturge-Weber research. Its Board of Directors is comprised of Ida Heck, David Brulinski, Rose Mary DeCesaris, Bob Stanger and Julia Heck.

Please consider donating to help us reach $50,000!!!!
07/31/2026

Please consider donating to help us reach $50,000!!!!

Thank you to everyone who has donated to Celebrate Hope Foundation's yearly fundraising drive. We are so close to our $5...
07/25/2026

Thank you to everyone who has donated to Celebrate Hope Foundation's yearly fundraising drive. We are so close to our $50,000 goal. DONATE TODAY!!!
www.celebratehopefoundation.org/donate

07/21/2026
Today is the day - the start of our fundraising drive! Want to be a part of making a difference for those living with St...
07/20/2026

Today is the day - the start of our fundraising drive! Want to be a part of making a difference for those living with Sturge-Weber Syndrome? DONATE TODAY! And while you are there, checkout our new webiste!

There are many ways to support the Celebrate Hope Foundation — we accept monetary donations, which fund medical research projects and educational programs; we also accept donated items for our Bands on the Bay auction. In addition, you can volunteer your time and talents to help our organization a...

2026 Sturge-Weber Syndrome Virtual Family ConferenceCome learn from expertsfrom Kennedy Krieger InstituteSaturday, May 1...
05/08/2026

2026 Sturge-Weber Syndrome Virtual Family Conference

Come learn from experts
from Kennedy Krieger Institute
Saturday, May 16, 2026 | 10 a.m. to 2 p.m.

This year's conference will focus on infancy and early treatment and diagnosis. It will bring together individuals from around the U.S. to learn from one another and hear from some of the world’s top doctors and scientists specializing in this syndrome.

No cost to attend, but please register ahead of date to receive virtual link.

This year's conference will focus on infancy and early treatment and diagnosis. It will bring together individuals from around the U.S. to learn from one another and hear from some of the world’s top doctors and scientists specializing in this syndrome. Tentative Symposium Agenda and Topics Additi...

Address

3541 Russell Thomas Lane
Davidsonville, MD
21035

Telephone

(240) 375-6106

Website

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