Katie Nues Foundation

10/15/2026

RSVP with this code! Spots are filling up fast!

10/13/2026

Get yourself registered for the Strollathon/5k!

Join me at the XXth annual [LOCATION] Strollathon, in support of the International Rett Syndrome Foundation! Register, join a team, or create your own...

10/08/2026

Save the date!

09/15/2026

Thank you to all our sponsors, golfers, donors and volunteers! A great day was had by all! See you next year!

09/11/2026

Definitely gonna want to win this one!

09/09/2026

Shop til you drop!

09/08/2026

Such a fun prize! 🍾🍷

09/07/2026

Cannot wait!

09/02/2026

📣 Calling all Rett families in CA...the NorCal Strollathon & 5K is coming up on Saturday, Nov 14 in Campbell, CA (near San Jose)!

It's time to create your team and invite your people 💜

Rally a team for your child and invite your family, friends, neighbors, therapists, coworkers...anyone in your world that wants to show their support!

You can run, walk, stroll, bike, scoot, cheer or just come spend the day with our amazing Rett community - we just want to see you there!

Let's fill the park with and make this an incredible day full of fun, connection and hope 🎉

👉Sign up, create a team and share: https://tinyurl.com/norcal5kstroll

More details on the day to come...DM Nina Padula Gialle if you'd like to help!

Join me at the XXth annual [LOCATION] Strollathon, in support of the International Rett Syndrome Foundation! Register, join a team, or create your own...

04/21/2026

Registration is open for the first session of Rett in Focus, a new IRSF webinar series designed to give the Rett syndrome community a closer look at specific treatments, clinical trials, and therapeutic developments.

Join us on Tuesday, April 28, at 6 p.m. ET for an overview of DAYBUE® STIX (trofinetide), moderated by Dr. Dominique Pichard, Chief Scientific & Medical Officer at IRSF.

This session will explore how DAYBUE was studied, what clinical trial results showed, possible side effects, and how DAYBUE STIX may offer added flexibility within the treatment experience. DAYBUE or DAYBUE STIX are prescription medicines used to treat Rett syndrome in adults and children 2 years of age and older.To learn more and register:

https://us02web.zoom.us/webinar/register/WN_fVvRD4ojTUmF5--BbJyVMA?fbclid=IwY2xjawRU525leHRuA2FlbQIxMABicmlkETFTOWpRRkdEajJoM09WZEdXc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHq0WU440RY38e0Jax2VCBeCzwsLmXOz1-Vn7XsjfK2PyA3HBnpIQvKXlmq-z_aem_cMyajscMQO92NSDBWz5o-A #/registration

Please read the full Prescribing Information:https://daybue.com/daybue-pi.pdf, including Patient Information:https://daybue.com/daybue-patient-info.pdf