National Scleroderma Foundation Heartland Chapter

09/05/2026

09/04/2026

The HOPE Line is the best way to connect with our team for any questions you might have! 💬

This free service offers information, resources, and support for people living with scleroderma, caregivers, families, and the public.

📞 Call (800) 722-4673 (Mon–Fri, 8:30 am–5 pm ET) or email [email protected].

Our trained team will ensure you get the answers and help you need!

09/03/2026

National Scleroderma Foundation leadership is aware of the pause in two CAR-T clinical development programs and is closely following developments. We are still learning about the circumstances surrounding these pauses, and it would be premature to speculate about what they may mean. We will continue to follow the information as it becomes available, advocate for clear and timely communication with the patient community, and support the rigorous research needed to advance new treatment options for people living with scleroderma. Read more about what we know and our continued commitment to scleroderma research: https://scleroderma.org/two-car-t-clinical-trials-paused-an-update/

09/02/2026

🔗: https://ow.ly/E2Pb50ZFFCy

Living with scleroderma can mean navigating pain and fatigue that impact everyday life.

In this recorded session, Zsuzsanna McMahan, MD, MHS, shares practical strategies for managing these symptoms and offers helpful guidance for those living with scleroderma.

09/01/2026

🔗: https://ow.ly/WNtX50ZyBYn

📬 We want to hear from you!

Please take a moment to complete our brief newsletter survey.

Your feedback will help us improve our content and better serve the needs and interests of the scleroderma community.

Thank you for your time and support. 💙

08/30/2026

🔗: https://scleroderma.org/global-webinar/

Calling all scleroderma researchers! 🔬

Don’t miss our upcoming Global Webinar on Friday, September 11!

Join us to explore the latest advancements in scleroderma research and connect with fellow experts in the field.

All researchers and trainees are welcome.

08/30/2026

🦋🩵🦋Sign up now to guarantee a walk T-shirt!! The last day to guarantee a walk T-shirt for the Kansas Walk is August 22nd!! 🦋🩵🦋

🦋🩵🦋Registration link below!!🦋🩵🦋

https://events.scleroderma.org/event/sokansas2026

08/29/2026

Dr. Ankoor Shah with Nikhil Bhat, Erion Moore II, & Joseph Washington

08/28/2026

🔗: https://ow.ly/5vhp50ZBvQb

How prepared do you feel walking into a doctor’s appointment? 🩺

In this breakout session, Karen Gottesman shares practical strategies for making the most of your appointments.

From tracking updates to communicating with your care team and seeking a second opinion, this session offers tips to help you feel more prepared.

08/27/2026

It’s National Dog Day, and we think that deserves a round of a-paws! 🐾

Today we’re celebrating the four-legged friends who bring so much joy, comfort, and love into our lives.

Drop a photo of your pup in the comments, we’d love to see them! 💙