National Scleroderma Foundation Heartland Chapter

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National Scleroderma Foundation Heartland Chapter Promoting & supporting the mission of the National Scleroderma Foundation in Iowa, Kansas, Missouri, Nebraska, North Dakota, South Dakota!

Please contact us for more info about support groups! www.scleroderma.org/heartland
[email protected] Our goal is to provide educational and emotional support to scleroderma patients in Nebraska, Iowa, and South Dakota. Through our educational events, we hope to raise the public's awareness of scleroderma, and with the help of our fundraising events, continue valuable research that will further our knowledge of this disease and our pursuit of a cure. Please check our page for updates about upcoming educational events, fundraisers, and any other important information!

10/13/2026

🦋🩵🦋Tomorrow!! Don’t forget to register!! 🦋🩵🦋

10/11/2026

Camille (Cami) Novachek delivers an encore presentation of her 2026...

Additional photos from our Stepping out to Cure Scleroderma! 🦋🩵🦋
10/09/2026

Additional photos from our Stepping out to Cure Scleroderma! 🦋🩵🦋

Additional photos from Stepping out to Cure Scleroderma walk!!🩵🦋🩵
10/09/2026

Additional photos from Stepping out to Cure Scleroderma walk!!🩵🦋🩵

Here are some more photos from our Stepping  Out to Cure Scleroderma walk!🩵🦋🩵
10/09/2026

Here are some more photos from our Stepping Out to Cure Scleroderma walk!🩵🦋🩵

10/09/2026

We all know that Raynaud’s is one of the most common early symptoms for people living with systemic scleroderma. Learn more about Raynaud’s and scleroderma in a webinar from earlier this year led by Dr. Benjamin Korman.
Copy and paste the link to watch now: scleroderma.org/raynauds-webinar.

🦋🩵🦋Sign up for this free Webinar tomorrow!! 🦋🩵🦋
10/07/2026

🦋🩵🦋Sign up for this free Webinar tomorrow!! 🦋🩵🦋



Healthcare Self-Advocacy - Owning Your Health Journey from Patient to Partner

ZOOM: October 7, 2026, 2:00 pm ET

Camille (Cami) Novachek will deliver an encore presentation of her 2026 National Scleroderma Conference presentation discussing ways people living with scleroderma can take ownership of their own healthcare journey. This webinar is free to attend, but we ask that you register in advance by clicking the link below.

REGISTER IN ADVANCE

https://host.nxt.blackbaud.com/registration-form/?formId=3f112c63-cc51-49e5-a61d-2bc829a0dbc7&envId=p-JWRarjDScUO0zGLKk5a83g&zone=usa&bbeml=tp-JWRarjDScUO0zGLKk5a83g.jFbRegxPFMEWRqcPLsSiFlQ.rCJITVfD8I0iD1ASVJT8iew.lhE8DZzNfMkmeyCgfBC0jiw

🦋🩵Stepping out for a Cure- STL🩵🦋What a beautiful Saturday with Friends, Family and fellow Scleroderma Warriors!! We will...
10/05/2026

🦋🩵Stepping out for a Cure- STL🩵🦋

What a beautiful Saturday with Friends, Family and fellow Scleroderma Warriors!! We will find a Cure!!!

🦋🩵🦋Thank you to all who came out and supported our St. Louis “Stepping Out For A Cure” today!!🦋🩵🦋
10/04/2026

🦋🩵🦋Thank you to all who came out and supported our St. Louis “Stepping Out For A Cure” today!!🦋🩵🦋

Address

55 Ferncroft Road
Danvers, MA
01923

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