National Scleroderma Foundation Heartland Chapter

National Scleroderma Foundation Heartland Chapter Promoting and supporting the mission of the Scleroderma Foundation in Nebraska, Iowa and South Dakota! Please contact us for more info about support groups!

Our goal is to provide educational and emotional support to scleroderma patients in Nebraska, Iowa, and South Dakota. Through our educational events, we hope to raise the public's awareness of scleroderma, and with the help of our fundraising events, continue valuable research that will further our knowledge of this disease and our pursuit of a cure. Please check our page for updates about upcoming educational events, fundraisers, and any other important information!

June is Scleroderma Awareness Month, and we are excited to get together to celebrate it! We are looking forward to bein...
06/01/2026

June is Scleroderma Awareness Month, and we are excited to get together to celebrate it! We are looking forward to being able to say hello and visit with all of you without having to run a walk. We hope that you can stop by and say hi. There is no cost to attend, just bring your own picnic lunch, blanket or chairs and join the fun.

We will be at Stagecoach Park. Ideally at the shelter, however the shelter is 1st come 1st served, so if we aren't 1st, we will be by the shelter in the grass. Just look for our teal Scleroderma flags. We hope to see you there!

Event Details

When: Saturday, June 13, 2026

Where: Stagecoach Park - 1205 E. Kansas City Rd Olathe, KS 66061

Time: 12:00 p.m. - 2:00 p.m.

*In the event of rain, the event will be canceled.


Questions: [email protected] or [email protected]

05/31/2026

🔗: https://ow.ly/la0g50Z4J2t

Researchers join us Friday, June 12, for our Global Webinar on Advances in Scleroderma Research!

We're bringing together experts from around the world to share the latest breakthroughs in understanding and treating scleroderma.

Presenters include Kazuki M. Matsuda, MD, PhD, Harry Karmouty-Quintana, PhD, and Shervin Assassi, MD.

Register today and be part of a global community striving for progress!

05/30/2026

🔗: https://ow.ly/4BUj50Z4xBe

Have you secured a light up or proclamation for Scleroderma Awareness Month? ✨

Log your outreach, events, and advocacy activities in our Advocacy Tracker.

Your participation helps us measure our collective impact and celebrate progress together!

05/28/2026

🔗: https://ow.ly/X5JS50Z4xxm

Young voices matter, especially in rare disease advocacy. 💬

Join the next generation of advocates at Virtual Youth Hill Day on June 18 and help shape policies that impact the rare disease community.

Participants (ages 10–18) will meet with Members of Congress and share their stories to drive real change!

05/26/2026

🔗: https://ow.ly/aVcb50Z4eKJ

We’re so excited to introduce our new children’s book designed to help kids and families better understand scleroderma! 💙

As part of our mission to advance education and awareness, we invite you to access this free book for your family or community!

05/24/2026

🔗: https://ow.ly/eBeu50Z2iEF

Hope shines brightest when we share it together.

Is it a support group, a friend, or a special moment that lifts your spirits? 💙

This Scleroderma Awareness Month, your story could inspire someone else.

Let’s be Beacons of Hope for one another!

Came across these when looking for adaptive items!! I have never tried these, just passing along information!
05/23/2026

Came across these when looking for adaptive items!! I have never tried these, just passing along information!

05/21/2026

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