National Scleroderma Foundation Florida-Puerto Rico

05/19/2026

⚾ This Sunday — meet us at the ballpark! 💙

Join the Florida & Puerto Rico Chapter as the Miami Marlins take on the New York Mets at loanDepot Park for an afternoon of baseball, community, and awareness.

Come dressed in teal, connect with our community, and help us bring visibility to scleroderma in a fun and meaningful way.

🎟 Your ticket includes:
✔️ Game admission
✔️ A 2026 Beacons Pin
✔️ Mobile ticket delivery directly from the Marlins/MLB

🧢 Plus — the first five additional donations of $25 or more, will receive an embroidered event hat!

Wear it. Share it. Support it. 💙

GET TICKETS HERE: https://bit.ly/MarlinsVsMets

We can’t wait to see our community come together for another incredible day at the park!

05/10/2026

Happy Mother’s Day to all the incredible mothers, grandmothers, caregivers, and mother figures in our scleroderma community. 💙

Today, we celebrate your strength, compassion, resilience, and the countless ways you show love and support every single day. Whether you are navigating your own journey with scleroderma, caring for a loved one, or lifting others up through your kindness and presence, your impact is deeply felt.

Motherhood takes many forms, and each one carries its own courage and beauty. We honor the women who lead with love, advocate with strength, and continue to inspire hope within our community.

Wishing you a day filled with peace, appreciation, and the reminder that you are seen, valued, and celebrated.

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¡Feliz Día de la Madre a todas las increíbles madres, abuelas, cuidadoras y figuras maternas de nuestra comunidad de esclerodermia! 💙

Hoy celebramos su fortaleza, compasión, resiliencia y las innumerables formas en que demuestran amor y apoyo cada día. Ya sea que estén transitando su propio camino con la esclerodermia, cuidando a un ser querido o brindando ánimo a otros a través de su bondad y presencia, su impacto se siente profundamente.

La maternidad adopta muchas formas, y cada una conlleva su propia valentía y belleza. Honramos a las mujeres que lideran con amor, abogan con fortaleza y continúan inspirando esperanza dentro de nuestra comunidad.

Les deseamos un día lleno de paz, aprecio y el recordatorio de que son vistas, valoradas y celebradas.

The Florida & Puerto Rico Chapter 💙

05/05/2026

Tomorrow!

🔗: https://ow.ly/Wy4950YSsmM

Get ready for Scleroderma Awareness Month! 💙

Attend our next to learn about upcoming initiatives, this year’s theme, and actionable ways you can help raise awareness throughout June.
Every action counts. Let’s raise awareness, inspire hope, and support our community!

🔗: https://ow.ly/Wy4950YSsmM

Get ready for Scleroderma Awareness Month! 💙

Attend our next to learn about upcoming initiatives, this year’s theme, and actionable ways you can help raise awareness throughout June.

Every action counts. Let’s raise awareness, inspire hope, and support our community!

05/05/2026

¡Puerto Rico, te esperamos mañana!

Únete a nuestra próxima reunión del grupo de apoyo Voces Boricuas Unidas, donde abordaremos un tema de gran importancia para nuestra comunidad:

🩵 Señales de Alerta en Esclerodermia

Contaremos con la participación especial de la Dra. Talia Díaz Prieto, quien compartirá información valiosa para identificar síntomas de alerta y saber cuándo comunicarse con tu médico.

✨ La detección temprana puede marcar una gran diferencia en tu salud.

📅 Fecha: 6 de mayo
⏰ Hora: 8:00 p.m. ET / Puerto Rico
💻 Modalidad: Zoom
🔗 Registro: https://smurl.es/Alertas

Será un espacio educativo y de apoyo para nuestra comunidad. Esperamos contar con su participación.🩵

04/30/2026

As we move into May, we invite you to stay connected, find support, and make space for meaningful conversations with our monthly support group gatherings. Let’s continue building community through shared experiences, encouragement, and hope. ✨

✨ Wednesday, May 6 – 7:00 PM | FL & PR (Virtual)
Feel Good Wednesday: Open Discussion – A welcoming space to share, listen, and support one another.
🔗 Join us: https://bit.ly/FeelGoodWednesday

✨ miércoles, 6 de mayo – 8:00 PM (PR) | Voces Boricuas Unidas (Virtual, Español)
Te invitamos a nuestra reunión mensual de mayo.
Tema: “Comprendiendo la Esclerodermia: Perspectiva del Paciente”
🔗 Regístrate: https://smurl.es/Alertas

✨ Saturday, May 9 – 10:00 PM | Teal Hearts of Jacksonville (Virtual)
Contact us for registration details.
📧 Email: [email protected]

✨ Saturday, May 9 – 10:30 AM | Central Florida (Virtual)
Open Discussion – Let’s connect, share experiences, and talk about what matters most to our community this month.
🔗 Sign up: https://bit.ly/CtrlFlorida

✨ Saturday, May 16 – 10:00 AM | FL & PR (Virtual)
Open Discussion – Join us for a supportive conversation centered around connection, reflection, and community.
🔗 Register: https://bit.ly/SupportSat

Let’s keep showing up for one another and creating spaces filled with support, understanding, and strength. 💫

04/27/2026

For a third year, we’re heading to the ballpark!

Join us as the Miami Marlins take on the New York Mets — and we’re going TEAL for a cause! 💙⚾

Come spend the weekend together rooting for your favorite team while supporting the scleroderma community. It’s more than just a game — it’s a chance to connect, raise awareness, and show the strength of our community in a big way.

Whether you're a die-hard fan or just looking for a great day out, this is your moment to be part of something meaningful.

Your ticket includes:
Game admission
A 2026 Beacons Pin to wear proudly and show your support
Mobile ticket delivery directly from the Marlins/MLB — no check-in needed

Sunday, May 24
First Pitch: 1:40 PM
In-person | loanDepot Park

Get tickets here: https://bit.ly/MarlinsVsMets

Grab your crew, rock your teal, and help us fill the stands with purpose.

We can’t wait to see you there!

04/20/2026

Scleroderma Insights is coming to Lakeland!

Join us for Scleroderma Insights: Advancing Knowledge, Improving Care, a free, in-person community event designed to support individuals and families living with scleroderma.

🗓 Tuesday, May 26
🕘 9:00 AM – 2:00 PM
📍 TGH Cancer Institute | LRH Hollis Cancer Center
3525 Lakeland Hills Blvd, Lakeland, FL 33805

This half-day program brings together expert physicians, specialists, and patient voices to share practical guidance, the latest treatment updates, and real stories of resilience and hope.

Topics include:
• Understanding autoimmune diseases and scleroderma
• Managing Raynaud’s and day-to-day challenges
• Skin involvement in scleroderma
• Pulmonary hypertension
• Gastrointestinal involvement
• Interstitial lung disease
• Lung transplantation

Whether you are newly diagnosed, living with scleroderma, or supporting a loved one, this event offers education, connection, and support in a welcoming environment.

🥗 Lunch will be provided

⚠️ Space is limited — registration required
🔗 Register here: https://bit.ly/SclerodermaInsightsLakeland

We look forward to welcoming the Lakeland community for a meaningful day of learning and connection.

04/11/2026

Thank you Mayo Clinic Jacksonville for hosting our 4th Scleroderma Insights and for your commitment to advancing care and research for our community.
Today gave patients the opportunity to learn directly from leading the specialists in our Chapter’s Designated Scleroderma Treatment Center and connect in a meaningful way with others in our community.

Thank you to everyone who joined us—and to our sponsors, Solutions Rx and The Wawa Foundation, for making it possible.

Together, we move closer to a cure. 💙