National Scleroderma Foundation Florida-Puerto Rico

08/29/2026

🍂 September Happenings | Florida & Puerto Rico Chapter

As we welcome September and transition into a new season, it's the perfect time to reconnect, learn, and support one another. Whether you're looking for meaningful conversations, educational opportunities, or a sense of community, we invite you to join us this month as we continue building hope and connection together.

✨ Wednesday, September 2 – 7:00 PM | FL & PR (Virtual)
Feel Good Wednesday: Open Discussion

Come as you are and join us for an open, supportive conversation. Share what's on your mind, celebrate victories, discuss challenges, and connect with others who truly understand the scleroderma journey. 🔗 Join us: Join us: https://bit.ly/FeelGoodWednesday

✨ miércoles, 2 de septiembre – 8:00 PM (PR) | Voces Boricuas Unidas (Virtual, Español)

Acompáñanos en nuestro próximo encuentro virtual del grupo de apoyo. Hablaremos sobre cómo gestionar nuestras relaciones con familiares, amigos y compañeros de trabajo cuando vivimos con esclerodermia, y compartiremos estrategias para fortalecer la comunicación asertiva, expresar nuestras necesidades y establecer límites saludables.
Será también un espacio para compartir experiencias, escucharnos y aprender unos de otros.

💻 Regístrese aquí: https://bit.ly/4chsKPO

Será un gusto reencontrarnos y seguir fortaleciendo nuestra comunidad.
¡Los esperamos! 💙

✨ Saturday, September 5 – 10:00 AM | Tampa West Coast (Virtual)
Open Discussion
We’re keeping things super casual with an open discussion. This is a safe, welcoming space for sharing experiences, asking questions, offering support, and connecting with others who truly understand life with scleroderma. 📧 Email for registration: [email protected]

💙 Whether you're joining us from Florida, Puerto Rico, or beyond, we're grateful to have you as part of our community. Every conversation, shared experience, and act of encouragement reminds us that we are stronger together and never alone on this journey.

08/08/2026

TODAY!
Don't miss our support group meetings today, August 8! Start off your day in a good place and join a community that understands the scleroderma journey. Whether you'd like to share your experiences, ask questions, or simply listen, you'll find a welcoming space filled with support and encouragement.
________

¡HOY!
¡No te pierdas nuestras reuniones de grupos de apoyo hoy, 8 de agosto! Comienza tu día de la mejor manera conectándote con una comunidad que comprende el camino de vivir con esclerodermia. Ya sea que desees compartir tus experiencias, hacer preguntas o simplemente escuchar, encontrarás un espacio acogedor lleno de apoyo, comprensión y ánimo.

🩵10:00 AM | Teal Hearts of Jax (Virtual)
National Conference Recap
Join us as we look back on highlights, key takeaways, and exciting updates from this year's National Scleroderma Conference.
🔗Sign up: https://bit.ly/JaxAugust

🩵10:30 AM | Central Florida (Virtual)
National Conference Recap
Join us as we look back on highlights, key takeaways, and exciting updates from this year's National Scleroderma Conference.
🔗 Sign up: https://bit.ly/CtrlFlorida

🩵11:00 AM | Conexión en Español (Virtual)
Te invitamos a nuestra reunión mensual de agosto.
🔗 Regístrate: https://bit.ly/ConexionAgosto

08/07/2026

¡Te esperamos mañana! Conexión en Español presenta: Nutrición en Esclerodermia: Guía Práctica

¿Te preguntas qué alimentos pueden ayudarte a sentirte mejor viviendo con esclerodermia?

Te invitamos a una charla práctica en la que conoceremos estrategias de alimentación que pueden contribuir al manejo de los síntomas gastrointestinales, al mantenimiento de un estado nutricional adecuado y a la mejora del bienestar general.

📅 Fecha: 8 de agosto de 2026
⏰ Hora: 11:00 a. m. (EST)
💻 Modalidad: Zoom

🔗 Regístrese aquí: https://us02web.zoom.us/meeting/register/Gcn2sRhMRYKigoCKw5ljuw

¡Reserve su lugar hoy y acompáñenos!

¡Te esperamos!

08/05/2026

What's your Rose, Thorn & Bud?

Share in the comments:
🌹 Your Rose: A bright spot.
🌿 Your Thorn: A challenge you're facing.
🌱 Your Bud: Something you're looking forward to.

Then join us tonight for Feel Good Wednesday as we reflect, connect, and support one another. We can't wait to hear your story! 💙

🔗 Join us: https://bit.ly/FeelGoodWednesday

08/05/2026

¡HOY! Voces Boricuas Unidas te invita a nuestro próximo encuentro virtual

En esta ocasión compartiremos lo mejor de la Conferencia Nacional de Pacientes 2026, celebrada recientemente en Baltimore.

Será un espacio para conocer los principales aprendizajes, novedades y experiencias compartidos durante la conferencia, así como para conversar sobre cómo estos conocimientos pueden ayudarnos en nuestro día a día como comunidad de pacientes.

Además, celebraremos con mucho orgullo los reconocimientos recibidos por nuestro capítulo, un reflejo del compromiso y la dedicación de nuestros voluntarios y profesionales de la salud.

📅 Miércoles, 5 de agosto de 2026
🕗 8:00 p.m. (EST)
💻 Vía Zoom

🔗 Regístrese aquí:
https://us02web.zoom.us/meeting/register/lEDk41VnQEGdHDqfJ5oF9Q

Será un gusto reencontrarnos, compartir con quienes no pudieron asistir a la conferencia y continuar fortaleciendo nuestra comunidad.

08/04/2026

Summer is the perfect time to soak up the sunshine, enjoy the outdoors, and make lasting memories with family and friends. As you take time to recharge this season, don't forget to make space for connection, too.
✨ Wednesday, August 5 – 7:00 PM | FL & PR (Virtual)
Feel Good Wednesday: Rose, Thorn & Bud
Share your "Rose" (something positive), your "Thorn" (a challenge), and your "Bud" (something you're looking forward to) as we reflect and support one another.
🔗 Join us: https://bit.ly/FeelGoodWednesday
✨ miércoles, 5 de agosto – 8:00 PM (PR) | Voces Boricuas Unidas (Virtual, Español)
Te invitamos a nuestra reunión mensual de agosto. En esta ocasión compartiremos lo mejor de la Conferencia Nacional de Pacientes 2026, celebrada recientemente en Baltimore.
🔗 Regístrate: https://bit.ly/VocesAgosto
✨ Saturday, August 8 – 10:00 AM | Teal Hearts of Jax (Virtual)
National Conference Recap
Join us as we look back on highlights, key takeaways, and exciting updates from this year's National Scleroderma Conference.
🔗 Email for registration link: [email protected]
✨ Saturday, August 8 – 10:30 AM | Central Florida (Virtual)
National Conference Recap
Join us as we look back on highlights, key takeaways, and exciting updates from this year's National Scleroderma Conference.
🔗 Sign up: https://bit.ly/CtrlFlorida
✨ sábado, 8 de agosto – 11:00 AM | Conexión en Español (Virtual)
Te invitamos a nuestra reunión mensual de agosto.
🔗 Regístrate: https://bit.ly/ConexionAgosto
✨ Saturday, August 8 – 12:00 PM | Teal Hearts of Jacksonville (In-person)
We'll be meeting in person! Contact us for location and registration details.
📧 Email: [email protected]
✨ Saturday, August 15 – 10:00 AM | FL & PR (Virtual)
Open Discussion
Join us for a supportive conversation centered around connection, encouragement, and community.
🔗 Register: https://bit.ly/SupportSat
Whether you're joining us from home or taking a break from your summer adventures, we hope you'll make time to connect. Together, we continue building a community filled with support, understanding, and hope.

07/01/2026

A huge THANK YOU to our chapter members, volunteers, patients, families, supporters, and the many cities, municipalities, and institutions across Florida and Puerto Rico that stood with us this month and helped raise awareness for scleroderma. 🩵

Together, we secured proclamations throughout our region, and on June 29, World Scleroderma Day, we lit the skies teal with Light Up events that brought visibility and attention to our community in a powerful way.

This month was a wonderful reminder of what can happen when people come together around a common cause. Every conversation, every connection, and every act of advocacy helped make a difference.

Thank you for your passion, your commitment, and for continuing to serve as Beacons of Hope for everyone affected by scleroderma.

Look at what we accomplished together! 💙✨

06/29/2026

Today, on World Scleroderma Day, we come together to recognize the strength, resilience, and spirit of everyone whose life has been touched by scleroderma. 💙

To those living with this disease, to the families, caregivers, friends, and advocates walking beside them—this day is for you.

Every story shared, every conversation started, and every act of advocacy brings us one step closer to greater awareness, earlier diagnoses, better treatments, and ultimately, a cure.

Today we raise our voices, shine a light on scleroderma, and celebrate the remarkable community that continues to inspire us with its courage and hope.

06/29/2026

Lo que parecía un síntoma pasajero terminó cambiando la vida de Lourdes Pérez, una profesional de la salud con esclerodermia.

05/05/2026

Tomorrow!

🔗: https://ow.ly/Wy4950YSsmM

Get ready for Scleroderma Awareness Month! 💙

Attend our next to learn about upcoming initiatives, this year’s theme, and actionable ways you can help raise awareness throughout June.
Every action counts. Let’s raise awareness, inspire hope, and support our community!

🔗: https://ow.ly/Wy4950YSsmM

Get ready for Scleroderma Awareness Month! 💙

Attend our next to learn about upcoming initiatives, this year’s theme, and actionable ways you can help raise awareness throughout June.

Every action counts. Let’s raise awareness, inspire hope, and support our community!