22Q Texas, Inc.

08/12/2026

Our 2026 Camp 22q Texas speaker lineup is HERE, and we could not be more excited!

Join us at the Family Retreat (November 6–8, Morgan's Camp, San Antonio) for expert-led sessions with:
🎤 Dr. Robert Shprintzen — The Virtual Center for VCFS
🎤 Elliott Beaton, PhD — UNO SCAN Lab
🎤 Linda Campbell, PhD — 22q Minded (Virtual)
🎤 Sasja N. Duijff, PhD — 22q Minded (Virtual)

This is real, practical, hope-filled knowledge from people who understand our kids and our journey. And while you're soaking it in, your campers will be off having the time of their lives at our accessible camp activities, horses, zip lines, climbing walls, and more. 🐴🧗‍♀️

⏰ Registration closes September 30, 2026, and spots are going fast!

👉 Register today so you don't miss your place at camp: https://lp.constantcontactpages.com/ev/reg/vxxuk7h
And if we do reach capacity, don't worry, you can still join our waitlist! We'd love to see you there.

07/26/2026

Today we honor and celebrate National Disability Independence Day.

National Disability Independence Day is celebrated annually on July 26th to commemorate the passage of the Americans with Disabilities Act (ADA), the U.S. law prohibiting discrimination against those with disabilities.

Guided by our mission to elevate inclusion through innovation and collaboration for the benefit of all, we envision a world where inclusion is the standard.

07/24/2026

03/25/2026

Donna M. McDonald-McGinn, MS, LCGC, Founding Board Member of the International 22q11.2 Foundation (22q.org), Chair of the 22q11.2 Society (22qsociety.org), Director of the 22q and You Center at the Children's Hospital of Philadelphia ([email protected]), and Professor of Clinical Pediatrics at the Perelman School of Medicine of the University of Pennsylvania, has authored an article entitled "22q: The Missing Piece" in Helen: The Journal of Human Exceptionality, raising awareness for 22q in the wake of February’s Congenital Heart Disease Month. It follows the journey of the International 22q11.2 Foundation’s Director, Carol Cavana's son Louis, and discusses symptoms associated with chromosome 22q differences and the importance of early detection and coordinated multidisciplinary care.

Read the full article here: https://helenjournal.org/march-2026/22q-the-missing-piece

02/28/2026

1 in 10 Americans—our friends, neighbors, coworkers, classmates, and loved ones—lives with a rare disease.

Follow us, the National Organization for Rare Disorders, NORD, to support them this . Learn more at rarediseaseday.us.

02/04/2026

A heartfelt thank you to Joeris General Contractors, LLC who made a generous donation to 22q Texas!

Joeris has a wonderful tradition of raising funds and supporting local organizations that their staff are passionate about. We are honored to be chosen as a recipient of their community giving, and this means the world to our families.

As a 100% volunteer-run organization, 22q Texas is dedicated to supporting families living with or loving someone affected by 22q11.2 deletion syndrome. Our mission is to create a community of support for our families and provide resources, raise awareness across medical, educational, and public communities, and ensure that individuals with 22q are seen, supported, and empowered to thrive. Every dollar we receive goes directly toward programs that change lives and create meaningful impact for our families.

Donations like this from Joeris make our work possible. Without the generosity and support of community partners who believe in our mission, we simply couldn't do what we do.

To the team at Joeris and the staff members who championed 22q Texas – thank you from the bottom of our hearts. We are so grateful for your partnership and commitment to making a difference.
Together, we are building a stronger, more inclusive community for individuals with 22q and their families. Thank you, Joeris! 💜

12/18/2025