03/01/2026
Today we honor the 1 in 10 with a Rare Disease Day 💜🩵
At 3 months, Aidon was diagnosed with Lissencephaly, putting him in the rare disease category, as Liss affects on 1 in 100,000 kids worldwide.
In the US, a rare disease affects less than 200,000 people, and while individual diseases are rare, roughly 1 in 10 people live with a rare disease.
With Aidon's diagnosis affecting roughly 1 in 100,000 - that means that out of the 8.2 billion people worldwide, roughly 82,000 have Lissencephaly.
The more you know 🤟