NBIA Disorders Association

NBIA Disorders Association NBIA Disorders Association is a non-profit organization dedicated to NBIA community efforts.

As we continue honoring the loving fathers in the NBIA community, we’re happy to spotlight the dedication and strength t...
06/19/2026

As we continue honoring the loving fathers in the NBIA community, we’re happy to spotlight the dedication and strength they bring to their families every day. 💙

What is the name of the NBIA father you want to honor?
Ryan Turner

What is your name and relationship to the NBIA father you are honoring?
Megan Compiano. Ryan is my fiancé.

What is this NBIA dad’s hobby or something he enjoys doing?
Ryan loves spending time with his son, Caelan. Whether they're at the arcade, swimming, traveling, hunting for sea glass, or just having a movie night at home, they're always making memories together.

What makes this NBIA dad happiest or brings him peace?
At the end of the day, nothing makes Ryan happier than seeing Caelan smile and knowing that he's happy.

If you had to describe this NBIA dad in one word, what would it be? Why?
Incredible

If this NBIA dad had a completely free week with no responsibilities and unlimited resources, how would he choose to spend it?
If he had a week off, he’d spend it with family and friends, playing golf and tinkering around the house and yard.

How has he impacted your life or the life of someone living with NBIA?
The way he shows up for Caelan and me has had a lasting impact on both of our lives, providing love, support, and a sense of calm we can always count on.

Is there anything else you would like the NBIA community to know about this NBIA dad?
Ryan is an incredible father and role model who not only supports Caelan and me, but also gives back to the veteran community and has taught Caelan the importance of helping others.

What is one thing you would like to say to him this Father’s Day?
Caelan and I love you very much! Happy Father’s Day!

Thank you for sharing Ryan’s story with us, Megan. 🥰

Happy Father’s Day, Ryan! This picture speaks for itself, the love radiates through the screen. Today we celebrate you and all that you do ✨

There’s still time to recognize a special dad in your life and help us celebrate the amazing fathers in our NBIA community 👉 https://docs.google.com/forms/d/e/1FAIpQLSf12LvoXAkXKf_65uCJNqEksVyOSHbxlPSPHOaeJzux-DR1zw/viewform

Today we begin celebrating the amazing NBIA dads in our community this year, we’re honored to share 💙What is the name of...
06/19/2026

Today we begin celebrating the amazing NBIA dads in our community this year, we’re honored to share 💙

What is the name of the NBIA father you want to honor?
Ben Retterath

What is your name and relationship to the NBIA father you are honoring?
Jennifer Retterath, spouse

What is this NBIA dad’s hobby or something he enjoys doing?
Fishing, campfires, spending time with his family

What makes this NBIA dad happiest or brings him peace?
Time with family

If you had to describe this NBIA dad in one word, what would it be?
Resilient

If this NBIA dad had a completely free week with no responsibilities and unlimited resources, how would he choose to spend it?
On the beach or in the mountains

How has he impacted your life or the life of someone living with NBIA?
His unconditional love for our 2 daughters and me, working hard to make sure our lives are safe and solid

Is there anything else you would like the NBIA community to know about this NBIA dad?
His smile and strength will warm your heart!

What is one thing you would like to say to him this Father’s Day?
We love you beyond words!

Thank you for sharing this with us, Jennifer.

Happy Father's Day, Ben! We celebrate you today and always ✨

It is not too late to submit an incredible dad that you would like us to feature! 👉 https://docs.google.com/forms/d/e/1FAIpQLSf12LvoXAkXKf_65uCJNqEksVyOSHbxlPSPHOaeJzux-DR1zw/viewform

For the dads who show up every day… this is for you.Different journeys. Same kind of love. 💙 If this feels like your lif...
06/18/2026

For the dads who show up every day… this is for you.

Different journeys. Same kind of love. 💙 If this feels like your life, you're not alone.

Tag a dad who deserves to be seen today!

And if you'd like us to feature him in our Father's Day campaign, whether he is an NBIA dad, a grandfather, a father living with NBIA, or a father figure, we'd be honored to hear his story.

Submit here: https://docs.google.com/forms/d/e/1FAIpQLSf12LvoXAkXKf_65uCJNqEksVyOSHbxlPSPHOaeJzux-DR1zw/viewform?usp=dialog

🚨 Team BPAN Needs Your Support! 🚨Thanks to the incredible generosity of our community, Team BPAN has raised $42,710 thro...
06/16/2026

🚨 Team BPAN Needs Your Support! 🚨

Thanks to the incredible generosity of our community, Team BPAN has raised $42,710 through the Million Dollar Bike Ride. While we have made tremendous progress, we still need your help to reach our matching goal and unlock critical research funding.

Not sure how to help? Fundraising can be easier than you think!

💙 Make a donation
💙 Share your fundraising or donation link on social media
💙 Send the link directly to family and friends
💙 Ask your employer, local business, or community group to support the campaign
💙 Host a simple fundraiser, such as a restaurant give-back night, bake sale, or casual gathering with friends

The first step is often the easiest—simply sharing your link and telling your story. You may be surprised how many people want to support a cause that is meaningful to you.

All donations made through the end of June will count toward our Million Dollar Bike Ride totals and help advance critical BPAN research.

Donate today:
https://charity.pledgeit.org/MillionDollarBikeRide/

Together, we can reach our goal and accelerate hope for the BPAN community.

🎉 Team PKAN Update! 🎉Thanks to the incredible generosity of our community, Team PKAN has raised **$15,550** through the ...
06/15/2026

🎉 Team PKAN Update! 🎉

Thanks to the incredible generosity of our community, Team PKAN has raised **$15,550** through the Million Dollar Bike Ride, far surpassing our original fundraising goal!

While we have met our matching goal, donations made through the end of June will continue to support PKAN research and count toward our Million Dollar Bike Ride totals.

New to fundraising? The first step is simple—share your fundraising or donation link with family and friends. You may be surprised how many people want to support a cause that is meaningful to you.

https://charity.pledgeit.org/MillionDollarBikeRide/

We are deeply grateful to everyone who has donated, fundraised, shared our campaign, and supported PKAN research. Every gift is helping advance critical research and bring hope to individuals and families affected by PKAN.

Together, we are making a difference.

🎉 Team INAD Update! 🎉Thanks to the incredible generosity of our community, Team INAD has raised $26,800 through the Mill...
06/15/2026

🎉 Team INAD Update! 🎉

Thanks to the incredible generosity of our community, Team INAD has raised $26,800 through the Million Dollar Bike Ride, including our successful matching goal!

While we have met our initial goal, donations made through the end of June will continue to support INAD research and count toward our Million Dollar Bike Ride totals.

New to fundraising? The first step is simple—share your fundraising or donation link with family and friends. You may be surprised how many people want to support a cause that is meaningful to you.

https://charity.pledgeit.org/MillionDollarBikeRide/

We are deeply grateful to everyone who has donated, fundraised, shared our campaign, and supported INAD research. Every gift is helping advance critical research and bring hope to individuals and families affected by INAD.

Together, we are making a difference.

🚴‍♀️ Good Luck, Team NBIA! 🚴‍♂️Tomorrow is the 2026 Million Dollar Bike Ride, and we want to wish the very best of luck ...
06/12/2026

🚴‍♀️ Good Luck, Team NBIA! 🚴‍♂️

Tomorrow is the 2026 Million Dollar Bike Ride, and we want to wish the very best of luck to all of our Team NBIA riders, families, supporters, and advocates participating in Philadelphia and in communities across the country.

Thank you for riding, fundraising, and raising awareness for individuals and families affected by NBIA. Every mile ridden helps advance rare disease research and brings hope to our community.

A special thank you to the incredible BPAN families who will be volunteering at the Crefeld School rest stop. Your support and dedication help make this event possible, and we are so grateful for all you do.

We can't wait to cheer you on tomorrow!

📸 If you're participating in the ride, please share your photos in the comments throughout the day. We'd love to celebrate Team NBIA and showcase riders from across the country.

Good luck, riders, and thank you for making a difference!

💙 To support our teams throughout the month of June:
Team PKAN: https://charity.pledgeit.org/MillionDollarBikeRide/
Team INAD: https://charity.pledgeit.org/MillionDollarBikeRide/
Team BPAN: https://charity.pledgeit.org/MillionDollarBikeRide/

🎉 Goal Reached! 🎉Thanks to the incredible generosity of our community, Team INAD has successfully reached our **$7,500 M...
06/12/2026

🎉 Goal Reached! 🎉

Thanks to the incredible generosity of our community, Team INAD has successfully reached our **$7,500 Million Dollar Bike Ride fundraising goal!**

Every donation, share, and act of support helped make this achievement possible. Together, we are advancing critical research and bringing hope to individuals and families affected by INAD.

We are deeply grateful to everyone who contributed, advocated, and stood with our community throughout this campaign.

💙 Thank you, Team INAD!
💙 Thank you, supporters!
💙 Thank you for making a difference!

If you would still like to support Team INAD and help advance critical research, donations are still being accepted:

https://charity.pledgeit.org/MillionDollarBikeRide/

Every additional gift helps move research forward and strengthens our collective impact for the INAD community.

Together, we can continue creating hope and accelerating progress.

🚴‍♀️ Team BPAN Needs Your Support! 🚴‍♀️Team BPAN has set an ambitious goal of raising $100,000 through the Million Dolla...
06/11/2026

🚴‍♀️ Team BPAN Needs Your Support! 🚴‍♀️

Team BPAN has set an ambitious goal of raising $100,000 through the Million Dollar Bike Ride. All donations made through the end of June will be matched, dollar for dollar, up to $100,000—doubling the impact of your gift and helping accelerate critical BPAN research.

Now is the time to rally behind the BPAN community.

There are many ways to help:

💙 Make a donation
💙 Start your own fundraiser
💙 Host a community event
💙 Share our campaign with family and friends
💙 Encourage your employer or business to support Team BPAN
💙 Help spread awareness about BPAN and the Million Dollar Bike Ride

Every dollar brings us closer to meeting our match and advancing research that can improve the lives of individuals and families affected by BPAN.

🎯 Donate today:
https://charity.pledgeit.org/MillionDollarBikeRide/

Together, we can reach this goal and accelerate hope for the BPAN community.

Interested in hosting a fundraiser or looking for ideas on how to get involved? We are here to help! Contact Donald DeAngelis, Director of Development & Community Engagement, at [email protected] to learn more.

***🎉 Exciting update! Team PKAN has officially met our Million Dollar Bike Ride matching goal***🚴‍♀️ Team PKAN is gettin...
06/10/2026

***🎉 Exciting update! Team PKAN has officially met our Million Dollar Bike Ride matching goal***

🚴‍♀️ Team PKAN is getting close! 🚴‍♀️

Thanks to the incredible generosity of our community, Team PKAN is nearing our Million Dollar Bike Ride matching goal!

Every donation brings us one step closer to unlocking critical research funding and advancing hope for individuals and families affected by PKAN.

We're in the final stretch and need your help to cross the finish line.

💙 Make a donation
💙 Share our campaign
💙 Help us reach our matching goal

Together, we can accelerate research and make a lasting impact for the PKAN community.

Donate today: https://charity.pledgeit.org/MillionDollarBikeRide/

Address

15055 Fairfield Meadows Drive STE 130/100
Cypress, TX
77433

Telephone

+18328356242

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