Collinscureorg

12/24/2025

12/17/2025

12/09/2025

Took 6 years but she’s finally a Santa fan.

12/06/2025

First dance performance. She killed it! ❤️❤️❤️

11/28/2025

We are beyond thankful for your love and support! Hope everyone had a wonderful turkey day! ❤️

11/20/2025

Now is one of those rare times when your generosity really does stretch twice as far. 💚
If you donate directly to , your gift is matched dollar for dollar (up to $100k) from now through December 7, which means even more support for families living with cystinosis.

CRF is doing the research that keeps our community hopeful, and this Giving Tuesday is an amazing chance to help push that work forward.
If you’re thinking about giving, this is the perfect moment to do it. 💚

11/17/2025

With Thanksgiving around the corner, we’re reflecting on the people and partners who made this year unforgettable 💚

To our sponsors and donors: thank you for pouring your hearts into our mission.

As you shop for the holidays, please consider supporting the incredible local businesses who help make Collins Cure possible 💚

11/12/2025

Big Sister Appreciation 💚

This girl… she’s thoughtful, funny, and wise beyond her years. It’s not always easy having a sister who gets so much attention, but Rowyn handles it with grace, patience, and a heart full of love.

She’s the first to help, the biggest cheerleader, and one of the kindest souls we know. Collins Cure wouldn’t be what it is without her helping hands, big heart, and quiet strength behind the scenes.

We’re so proud of you, Ro 💚

11/10/2025

Together, we raised $190,000 for cystinosis research 💚

Every dollar brings us closer to new treatments, more awareness, and one day, a cure.
From the bottom of our hearts, thank you to everyone who golfed, sponsored, donated, volunteered, and cheered us on.

You showed up for Collins, for our family, and for every person living with cystinosis - and we’ll never stop being grateful 💚