Lily LaRue Foundation DIPG

Lily LaRue Foundation DIPG In honor of Lily LaRue Anderson💛Use your Yellyvoice™️ DIPG www.yellyvoice.org Lily lost her battle with DIPG on April 6, 2015.

This page chronicled Lily's journey and continues to share the Anderson path. At the age of five Lily LaRue Anderson was diagnosed with Diffuse Intrinsic Pontine Glioma, commonly referred to as DIPG, on May 3, 2014. She battled with her “Boo-Boo” for 11 months, during which time she touched the lives of thousands from all over the world who came together to support Lily and the Anderson family. De

spite enduring a daily pill regimen, weekly blood draws, and everything else that came with it, Lily never stopped enjoying her love of comedy, animals, music, and life itself. Through it all Lily continued to bring smiles to the faces of everyone she met. We continue the fight in her name by supporting the Lily LaRue Foundation. Fundraising information and events hosted by our generous community can be found here, on Hope for Lily LaRue and Love For Lily. The Lily LaRue Foundation, a 501c3 charity, is dedicated to helping other children and families afflicted with this cruel disease. The Foundation's mission is to increase awareness of DIPG, raise funds for research to eradicate DIPG, and to help children and families who are battling DIPG and other pediatric cancers. As Lily would have said we will raise awareness of DIPG using our “Yelly Voices”! The money raised from generous folks like you is crucial because of how underfunded pediatric cancer research really is. There are over 20 different pediatric cancers including DIPG. These 20 plus cancers receive 4% of the total funds dedicated to cancer research each year, while pancreatic cancer alone receives the same 4%. This isn't to stay that any one cancer is more or less important than another, but it does illustrate the need to increase the awareness of and funding for DIPG. Thanks for spreading Lily's story, sharing her light and for your boundless love!

09/09/2026

Please pray for Soph tonight! Tomorrow is her first MRI after starting the new treatment for her brain tumor, Ojemda. I’m so scared. To even be back here after 7 years of stability is depressing on a level I’ve never experienced. We’ve worked so hard to keep her healthy and bring new treatments to patients, but it hasn’t been enough and that’s very defeating.

This treatment IS an incredible breakthrough for these types of tumors, and Sophie‘s mutation is traditionally the most responsive, but it doesn’t change the amount of fear coursing through me. She’s already exhausted 10 other treatments and there’s not much left…AND what’s left is far more toxic. It has to work! Please pray it’s working!

09/08/2026
09/04/2026
“What’s your favorite color?”“Blonde.” -Theo of Golden Allen Levi 💛 Lily LaRue Foundation DIPG YELLYVOICE ™️     in Sept...
09/01/2026

“What’s your favorite color?”
“Blonde.” -Theo of Golden Allen Levi 💛
Lily LaRue Foundation DIPG
YELLYVOICE ™️ in September for and all pediatric & childhood cancer

In September we Go Gold💛 “If you’ll believe in me, I’ll believe in you. Is that a bargain?” – The Unicorn    for childho...
09/01/2026

In September we Go Gold💛 “If you’ll believe in me, I’ll believe in you. Is that a bargain?” – The Unicorn for childhood & all pediatric cancer Use Your YELLYVOICE™️

08/21/2026

Address

121 Burlington Path Rd
Cream Ridge, NJ
08514

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