Lily LaRue Foundation DIPG

Lily LaRue Foundation DIPG In honor of Lily LaRue Anderson💛Use your Yellyvoice™️ DIPG www.yellyvoice.org Lily lost her battle with DIPG on April 6, 2015.

This page chronicled Lily's journey and continues to share the Anderson path. At the age of five Lily LaRue Anderson was diagnosed with Diffuse Intrinsic Pontine Glioma, commonly referred to as DIPG, on May 3, 2014. She battled with her “Boo-Boo” for 11 months, during which time she touched the lives of thousands from all over the world who came together to support Lily and the Anderson family. De

spite enduring a daily pill regimen, weekly blood draws, and everything else that came with it, Lily never stopped enjoying her love of comedy, animals, music, and life itself. Through it all Lily continued to bring smiles to the faces of everyone she met. We continue the fight in her name by supporting the Lily LaRue Foundation. Fundraising information and events hosted by our generous community can be found here, on Hope for Lily LaRue and Love For Lily. The Lily LaRue Foundation, a 501c3 charity, is dedicated to helping other children and families afflicted with this cruel disease. The Foundation's mission is to increase awareness of DIPG, raise funds for research to eradicate DIPG, and to help children and families who are battling DIPG and other pediatric cancers. As Lily would have said we will raise awareness of DIPG using our “Yelly Voices”! The money raised from generous folks like you is crucial because of how underfunded pediatric cancer research really is. There are over 20 different pediatric cancers including DIPG. These 20 plus cancers receive 4% of the total funds dedicated to cancer research each year, while pancreatic cancer alone receives the same 4%. This isn't to stay that any one cancer is more or less important than another, but it does illustrate the need to increase the awareness of and funding for DIPG. Thanks for spreading Lily's story, sharing her light and for your boundless love!

06/14/2026

I was eleven the last time my brother let me sit on the edge of his bed, hold his hands, and talk about nothing. He was eight years older, old enough to feel like the whole sky to me.

He was the one who made the world feel bigger, who let me trail behind him like a shadow and never once told me to go away.

I didn't have the words for what was happening to him then. I just had the watching. The slow disappearing of someone loud and alive into someone quiet, while the adults whispered in rooms I wasn't allowed into.

He died. And I grew up carrying the shape of him. Years later, someone told me I look a little like him now. I didn't know whether to cry or smile, so I did both.

So when I picked up Surviving the Death of a Sibling by T.J. Wray, I wasn't expecting a book to explain something I'd lived with for decades. I was expecting, at best, to feel a little less alone in it. I got more than that.

Wray writes from inside this loss. She lost her brother too suddenly, at forty-three. And what she discovered afterward from her experience and in the conversations with hundreds of other bereaved siblings is that this particular grief is one of the most invisible griefs we carry.

The world rushes toward the "official" mourners and quietly expects the sibling to hold things together. There's no script, no ritual, no socially agreed timeline. Just an assumption that you'll manage.

This book refuses that arrangement.

What she names first, and names well, is what makes sibling loss different from every other loss. A sibling is the longest relationship most of us will ever have. The one person who holds your whole history. Who knew you before you knew yourself. Who shared not just a childhood but a private language: the inside jokes, the family rhythms, the shared memory of a home that exists nowhere else now that they are gone.

When that person dies, you don't just lose them. You lose the only witness to a whole chapter of your life. And that is its own kind of erasure.

The book also gave language to something I'd felt for years without naming: grief doesn't arrive once and leave. It returns sideways; in a song he would have liked, in the half-second before remembering hits, in every milestone he never got to see.

Wray writes about this not as something broken in the grieving process, but simply as what sibling grief is. Spirals, not lines. A permanent part of how you see the world, not a wound waiting to close.

The bravest thing this book does is to assure bereaved siblings that a brother or sister's death is a loss worth the full weight of your grief. That you do not owe anyone a swift recovery. That the years don't diminish the love, which means they don't diminish the loss either.

I knew that already, in my body, from the time I was small.

But there is something about having it said out loud, on a page, by someone who also knows, that makes it possible to finally stop apologising for still feeling it.

Read this book if you have lost a sibling. Read it if you love someone who has. Read it so that the next time someone tells you they lost a brother or a sister, you know how to stay in the room with them.

That staying, unhurried, refusing to look away, is sometimes the only thing love has left to offer.

BOOK: https://amzn.to/4vfwCbE

I’ve always been partial to the train of thought that the movie with the best sunset always wins. After an amazing 12 ho...
06/13/2026

I’ve always been partial to the train of thought that the movie with the best sunset always wins. After an amazing 12 hour Love for Lily Annual Golf Outing 2026 throw-down where 100% of us had hydration success👏🏼👏🏼 ( well DONE people!!) and zero thunderstorms ( thank you Mother Nature), hugs, fabulous conversation & company; food and drink… a moment of absolute gratitude presents itself in physical form via cinematic cotton candy fire sunset after the last Lily prize box 💜 was called out. The kind that can only be felt and is gifted; any picture simply pales in comparison to a moment so blessed. And we remember the love. Always. ™️ Love For Lily - Annual Lily LaRue Foundation Golf Outing

06/13/2026
It’s  ‘s favorite day! Love for Lily Golf Outing 2026 💜💜💛💛 Luci Lu Jr CatAnderson helped load raffles into the van until...
06/12/2026

It’s ‘s favorite day! Love for Lily Golf Outing 2026 💜💜💛💛 Luci Lu Jr CatAnderson helped load raffles into the van until 4 am: we are very proud of her. It takes a village- thank you to all our Sponsors, golfers and volunteers. Thank you for helping us help.

06/03/2026

This is really sad. Coast Guard attempting to locate a missing 14-year-old swimmer at Wildwood. Praying for a safe recovery. Reported from NBC10 Philadelphia, A Wildwood police officer was flagged down by witnesses in regards to swimmers who were in distress in the water off the beach near Schellenger Avenue shortly before 1:30 p.m. No lifeguards were on duty at the time, police said.

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121 Burlington Path Rd
Cream Ridge, NJ
08514

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