Liam Hammonds Memorial Foundation

04/01/2022

https://m.facebook.com/story.php?story_fbid=344106221098225&id=100064965480714

Krabbe Newborn Screening: A Family Guide, is a resource for families who receive a positive newborn screen for Krabbe Disease.

This guide helps inform families about and the next steps needed to ensure each child has the best outcome possible.

You can download the guide here: https://tinyurl.com/u4p5paje

11/18/2021

https://www.gofundme.com/f/nicos-battle-with-krabbe-disease?member=13727711&sharetype=teams&utm_campaign=p_na+share-sheet&utm_medium=copy_link&utm_source=customer

Hello, my name is Jenna and my boyfriend Nick and I gave birth to the most adorable… Jenna Anderson needs your support for Nico’s Battle with Krabbe Disease

05/25/2021

Awesome news!
https://m.facebook.com/story.php?story_fbid=188710449788467&id=104292478230265

Pennsylvania is screening babies for Krabbe Leukodystrophy through Newborn Screening, increasing the number of U.S. states screening to nine.

07/01/2020

https://m.facebook.com/story.php?story_fbid=10157106072117021&id=163001867020

06/19/2020

Folks you don't have to be a resident of Louisiana to sign this petition.
Like Illinois, Louisiana is holding up testing for Krabbe disease, and like in Illinois, we/they need your help. It only takes a second, but could give years to a child diagnosed with Krabbe. Besides, it's Liam's anniversary day, what better present than to help save kids!
Thank you for helping us to help them.

https://actionnetwork.org/petitions/fund-annistons-law-for-krabbe-nbs?source=direct_link&

Beautiful Anniston Bazar was born in Louisiana on April 26, 2014 and went to heaven on April 5, 2020. Although Anniston had a deadly disease called Krabbe Leukodystrophy, her life could have been saved if Louisiana had included Krabbe in the state’s newborn screening (NBS) program at the time of h...

06/17/2020

Another family making a difference!

Anniston Bazar, an advocate for Krabbe, lost her battle with the disease on Palm Sunday of 2020. Her family is continuing to fight for mandatory Krabbe testing on newborns in her honor.

04/20/2020

https://m.facebook.com/story.php?story_fbid=10156895050567021&id=163001867020

GOOD NEWS for Leukodystrophy Families...

You can now connect with Leukodystrophy experts virtually!

Our Leukodystrophy Care Network (LCN) Centers are now using for clinic appointments and most are accepting new patients.

Visit the link below for contact information and to learn more about LCN Centers.

https://www.huntershope.org/family-care/leukodystrophy-care-network/lcn-care-centers/

04/06/2020

We know that with everything going on, people are saying lots of Prayers. We're asking for one more for the family of this little Princess. We know she's now in God's hands and surrounded by our kids in Heaven and she's healthy. But please say one for those of us left behind missing her.
https://m.facebook.com/story.php?story_fbid=1227705394091793&id=377127322482942

On Palm Sunday our sweet Anniston went to heaven.

We could never be more proud or blessed to have been chosen to care for her. Handing her back to the Lord has been the most difficult thing we have ever had to do.

Our little girl who never spoke one word was able to change the lives of thousands.

Thanks you for being there for us and following her journey.

Arrangements to follow soon.

03/03/2020

https://www.news-leader.com/story/news/local/ozarks/2020/03/03/springfield-child-rare-deadly-disease-stem-cell-transplant-save-life/4789733002/

Newborn screening and stem cell transplant saves life of Springfield child with rare, deadly Krabbe disease

12/21/2019

Another sad day for us as another family has to let their child go to Heaven. Fly high little man, the night sky will be a little brighter with your Star in it.

To our friends in Pennsylvania, contact your State Legislators and ask them to support
HB 730 so other families will never know this heartache.

Another precious baby has gone to Heaven this week. William Novak was born in Pennsylvania, which means that he could have had a chance at a healthy life had he been screened at birth.

He isn’t the first child to lose their life to a treatable disease in Pennsylvania since was passed, but let’s try to make him the LAST.

Please don’t delay - contact your state representative and Senator and ask them to support and Senator DiSanto’s upcoming legislation! Let’s not let another child die while we wait on bureaucracy. ❤️

You can read about him here:

Obituary for William Jeffrey Novak | William Jeffrey Novak Fishertown William Jeffrey Novak,...