Pacific Northwest Bleeding Disorders

05/29/2026

Look at that thermometer rising!! 🎉

We are getting closer to our Unite for Bleeding Disorders Walk fundraising goal, and it’s all because of this incredible community! Every donation, every team member, every shared post, and every step forward helps provide education, advocacy, support, and life-changing programs for families affected by bleeding disorders throughout our community.

Any amount helps - Donate today!

We still have a little way to go, but together, we CAN do this! Let’s keep the momentum going and show our families just how strong this community truly is.

Thank you for believing in our mission and walking beside us every step of the way. https://secure.qgiv.com/event/pnwbd-unite/

05/29/2026

Unabel to Clot is Back!! We are so happy to have them join us on Saturday at the PNWBD Unite for Bleeding Disorders Walk.

This amazing team has always brought so much heart, energy, and support to our community, and we are thrilled to have them walking alongside us again. Your continued dedication to raising awareness and supporting families affected by bleeding disorders means more than words can express.

Don't miss out! Join the alk Family on Saturday!

Welcome back, Unabel to Clot — we can’t wait to celebrate with you on Walk Day https://secure.qgiv.com/event/pnwbd-unite/

05/28/2026

Walk Wednesday!! 😔I missed Walk Wednesday. We were so busy packing and sorting, getting ready for the big day. We are now just 2 days away from our 2026 Unite Walk. Can you believe it? We are so excited to have 24 teams and over 100 participants attending. We will be at Lewis and Clark College. It is an absolutely beautiful venue. The walk route will be full of Oregon's natural beauty.
This is such a wonderful celebration for our community.
We don't want anyone to miss out, so click the link below to register and join us on Saturday! https://secure.qgiv.com/event/pnwbd-unite/

05/22/2026

At the beginning of the month, three of our amazing kiddos traveled to Henderson, Nevada, to compete in the Getting in the Game Jr. National Championship (JNC)! This incredible event gives young athletes in the bleeding disorders community the opportunity to experience high-level sports training, competition, and teamwork in a supportive and empowering environment.

Our three athletes chose basketball and golf, stepping outside their comfort zones, building confidence, and creating unforgettable memories along the way. Even more special, they had the chance to connect with other kids from across the country who understand their journey and share similar experiences.

Programs like JNC remind our kids that a bleeding disorder does not define their limits—it simply makes their victories even more inspiring. We are so proud of these young athletes for representing our community with courage, determination, and heart!
Congratulations, Siale, Levon, and Jace.

05/22/2026

Check out this year's Unite for Bleeding Disorders incentives! Learn how you can get one of these exclusive Unite Walk items at www.uniteforbleedingdisorders.org/event/uniteforbleedingdisorders/page/incentives/

05/22/2026

Are you registered for Camp yet?

05/21/2026

💙 May is Women’s Health Awareness Month 💙

Women can and do have bleeding disorders—and they often face unique challenges, especially with menstruation and childbirth.

One of the most common symptoms is menorrhagia, or abnormally heavy and prolonged periods. Many women go undiagnosed, but proper testing, diagnosis, and treatment can greatly improve quality of life.

If you suspect a bleeding disorder, taking that first step toward answers is important—and support is available.

HFA’s Women’s Toolkit includes:
✔️ Recorded webinars and videos
✔️ Tools like mobile apps and provider directories
✔️ Articles, guides, and educational materials

👉 Explore resources:
https://hubs.li/Q04gVWqC0

05/21/2026

💡 Did you know?

Arthritis is one of the most common complications of bleeding disorders and is caused by repeated or untreated bleeding into the joints.

When joint bleeds aren’t treated quickly, they can damage cartilage and lead to chronic pain, stiffness, and reduced mobility over time.

Signs of arthritis may include:
• Pain and aching in the joints
• Morning stiffness
• Decreased flexibility

The good news is that arthritis can often be prevented by treating joint bleeds quickly, staying active, and working closely with your Hemophilia Treatment Center (HTC).

If you’re unsure whether joint pain is from a bleed or arthritis, treat with factor and consult your HTC.

During Arthritis Awareness Month, take steps to protect your joint health 💙

05/21/2026

05/20/2026

WALK WEDNESDAY!!
The countdown is on, and we would love for YOU to join us on Saturday, May 30, for our Unite for Bleeding Disorders Walk!

This event is so much more than just a walk — it’s a day where our community comes together in unity, support, and hope for individuals and families affected by bleeding disorders. Every step we take and every dollar we raise help support the programs and events that make such a difference in the Pacific Northwest Bleeding Disorders community.

Your support helps make possible:
💙 Educational programs
💙 Family events and community connections
💙 Advocacy efforts
💙 Emergency assistance and support resources
💙 Opportunities for families to feel seen, supported, and never alone

Whether you walk, donate, fundraise, or cheer others on, you are helping strengthen our incredible community.

Join us as we walk together, support one another, and celebrate the power of community. We can’t wait to see everyone on May 30! https://secure.qgiv.com/event/pnwbd-unite/