TARS Awareness Texas

06/20/2026

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06/20/2026

Come out and Donate TODAY and support a cause!!!! Special performance by STXM between 12-1230… Fun Family Event

06/19/2026

🚗💙 BIG UPDATE: TARS Awareness Cars for a Cause 💙🚗

We’re in the final stages of locking in the date + location for our 1st Annual TARS Awareness Cars for a Cause car show! 🏁

This one’s close to our hearts — every engine rev, every shine, and every vendor spot will help drive awareness and support for TARS.

What’s coming soon:
📅 Official date & location announcement
📝 Registration for car entries + vendors opens in the next few weeks

Want in early?
Be the first to know when registration drops! Shoot us an email and we’ll add you to the list:
📧 [email protected]

Let’s make this first year unforgettable for TARS Awareness!

06/17/2026

"To infinity and.....our event this weekend!" 🚀🤠

We know it’s Father’s Day weekend, but we hope you'll take a little break from the backyard BBQs to come hang out with us. One of the greatest lessons we can teach our children is the importance of helping others. Donating blood is a simple act of kindness that can make a life-saving difference for someone in need. What better way to show your kids what selflessness, compassion, and community are all about?

To say thank you, we're hooking you up with:
🍦 Ice cream vouchers
👕 T-shirts
🍿 Alamo popcorn vouchers (while they last!)

Speaking of popcorn... the rumors are true! Toy Story 5 officially releases this weekend. 🧸 Score your vouchers from us, beat the heat, and head inside the theater for a perfect family celebration. 🎬

📍 Come see us:
Alamo Drafthouse Cinema
7601 S Staples St
11am - 2pm

06/17/2026

💙 Community Share from a Fellow TAR Warrior 💙

One of our TAR Warriors recently came across this assistive device designed to help people put on socks more independently and asked if we would share it with our community.

As many of us know, daily tasks that others may take for granted can sometimes require a little creativity, adaptation, or the right tool. While every person with TAR Syndrome is different, we thought this might be helpful for some children, teens, or adults in our community.

Have you tried something similar? Does your TAR Warrior use any adaptive tools that make everyday tasks easier?

We love learning from one another because some of the best tips and ideas come directly from families and individuals living with TAR Syndrome every day.

👇 Watch the video and let us know your thoughts in the comments!

https://www.facebook.com/share/r/1Va93Zxzhr/?mibextid=wwXIfr

06/16/2026

💙 TARS Parent Tip Tuesday 💙

🥁 This Week’s Tip: Let Them Make Some Noise! 🥁

When people think about TAR Syndrome, they often focus on what our children may struggle with.

What they don’t always see is everything they can do.

One activity Emma absolutely loves is playing the drums.

At first, some might wonder if drumming would be difficult because of her shorter arms and hands. But Emma never saw a reason not to try. She picked up those drumsticks, found what worked for her, and started making music.

And that’s the lesson.

💙 Sometimes our warriors don’t need a different dream.
💙 They just need the opportunity to find their own way to reach it.

Drumming has helped Emma with:
🥁 Hand-eye coordination
🥁 Rhythm and timing
🥁 Focus and concentration
🥁 Confidence
🥁 Having fun while learning something new

Most importantly, it reminds us that our children are capable of so much more than others may expect.

Parent Tip: Don’t automatically rule out an activity because it seems challenging. Give your child the chance to explore, adapt, and surprise you.

You might be amazed at what they can do.

👇 We’d love to hear from you!

Does your warrior play an instrument or have a favorite hobby that others might not expect?

Share below and let’s celebrate all the amazing talents in our TARS community! 💙



“Our warriors may play a different beat, but they still make beautiful music.” 🥁💙✨

We don’t own the rights to this song 🎶

06/15/2026

Thank you to all our TARS Warriors💙🩵💜

06/14/2026

Good morning everyone!!

Today’s TARS Warrior of the Day is, Magnolia Mae!!

Magnolia Mae born with long arm TARS and hip dysplasia. Born with platelets of 8k. Had bacterial meningitis at 3months and white blood cell clumping caused a stroke that caused right side weakness. Had a central line that got infected at 10m old and had a port put in. Was removed after a year. In 2025 had corrective surgery done in Houston, Texas by Texas Children’s Hospital. Dr. Bell was one of her ortho surgeons. They performed what is called a modified Vicky surgery, where they remove part of the bone from the fibula and inserted in her arm to make a makeshift radius. The surgery had multiple parts, the first of which took place in June of last year by putting on an external fixator on her arm that needed adjustments to better centralize her hand before the bigger surgery of taking part of the bone and a skin tag and inserting it in her right arm. The big surgery came across a complication because with the meds Magnolia was supposed to be on. She was supposed to have rested comfortably the entire time, but her tolerance was not what the team prepared for, and they had to intubate her and put her in a medical coma to keep her from moving and irritating her arm. She was intubated for just over a week when they brought her back out of it and had her stay another two weeks to watch. To give her arm time to heal they left the X fix on and removed it about a month later.

Say hi 👋 to Magnolia Mae!!

06/13/2026

Good morning everyone!!

Today’s TARS Warrior of the Day is, Martina!!

Hi! My name is Martina Siebert, I'm 20 years old, Chilean, and I have TAR syndrome (also hearing loss - I've used hearing aids in both ears since I was 3). I was born at 31 weeks, which meant my first few months of life were very complicated. Since I was very little, I've loved playing sports. I started with tennis at age 5 and tried many others like hockey, volleyball, and handball. My parents always encouraged me to try and dare to do different things. Currently, I play Para-Standing Tennis (standing tennis for people with physical disabilities) professionally. I'm ranked #1 in the world in my category, PST 3 women's, #10 in the international mixed ranking, and #1 in Chile (mixed). I like spending time with my family, going for walks outdoors, drawing, cooking, meeting new people, and enjoying life! Dreams have no limits, and we can achieve anything we want by adapting things to our abilities. ❤️

Hola! Mi nombre es Martina Siebert, tengo 20 años, soy chilena, y tengo síndrome de TAR (también hipoacusia - usó audífonos en ambos oídos desde los 3 años).
Nací de 31 semanas lo que significó que mis primeros meses de vida fueran muy complicados.
Desde muy pequeña me ha gustado hacer deporte, comencé con el tenis a los 5 años y probé muchos otros como el hockey, voleibol y handbol. Mis papás siempre me motivaron a probar y atreverme a hacer distintas cosas.
Actualmente me dedico profesionalmente al Para-Standing Tenis (tenis de pie para personas con discapacidad física). Soy la N1 en el mundo de mi categoría PST 3 damas, N10 en el ranking internacional mixto y N1 en Chile mixto.
Me gusta pasar tiempo con mi familia, pasear al aire libre, dibujar, cocinar, conocer personas nuevas y disfrutar de la vida!
Los sueños no tienen límites y podemos lograr todo lo que queramos adaptando las cosas a nuestras capacidades. ❤️

Say hi 👋 to Martina!!

06/12/2026

Good morning everyone!!

Today’s TARS Warrior of the Day is, Jorja!!

Jorja (pronounced Georgia) has never met a stranger in her life. She's been dancing (ballet, tap and jazz) since she was 3 and also singing in various choirs. She has a part-time job she loves! She is preparing for her senior year and looking at colleges.

She's had two surgeries. A tendon release in both arms and more recently two plates were placed in her right leg in her tibia and femur to stabilize her knee. After she hurt her knee and we found out she was born without an ACL. She will undergo a leg lengthening in the same leg after her senior year.

The great thing is she doesn't let anything stop her and is always pushing herself!

Say hi 👋 to Jorja!!