06/05/2026
We Write It Together 💙
When a family receives a TAR Syndrome diagnosis, one of the first things they often discover is how little information may be available.
Because TAR Syndrome is so rare, experiences can vary. Questions don’t always have easy answers. Even healthcare providers may encounter situations they have never seen before.
That’s why community matters.
At TARS Awareness Texas, we don’t claim to have all the answers.
What we do have is a community of families, caregivers, adult TARS warriors, advocates, and supporters who are willing to learn together, share experiences, and support one another through every stage of the journey.
We learn from each other.
We celebrate victories together.
We share lessons learned.
We help families find resources.
We advocate for awareness and understanding.
And when someone is facing uncertainty, we remind them that they are not facing it alone.
That’s why we say:
We Learn.
We Support.
We Advocate.
We Write It Together.
Every family contributes knowledge.
Every experience adds another page.
Every voice matters.
Because while TAR Syndrome doesn’t come with a manual, together we are building the understanding, support, and community we wish every family had from the very beginning.
And no matter where you are on your journey, we’re here for you.
💙 TARS Awareness Texas
Rare but Strong
