Georges Pompe Pals

06/19/2026

🎣 WE NEED YOUR HELP! 🎣
The countdown is on for Jiggin’ with George, and we still have open spots that need to be filled!
This tournament isn't just about fishing—it’s about making a difference for children living with rare diseases through the work of George’s Pompe Pals. Every team that joins helps us continue our mission of keeping children with rare diseases active, included, and creating memories that go far beyond doctor appointments and hospital visits.
💙 We need anglers.
💚 We need supporters.
🎣 We need YOU.
For $600, your registration includes:
✔️ Cabin accommodations at Life of Riley Resort
✔️ Three meals daily
✔️ A chance to fish beautiful Lake Vermilion
✔️ Opportunities to win prizes
✔️ The chance to make a real impact in a child's life
Whether you're a seasoned angler or just looking for a fun weekend with family and friends, we'd love to have you join us.
📅 August 13–17, 2026
📍 Life of Riley Resort – Lake Vermilion
Please help us spread the word by sharing this post. We have worked incredibly hard to make this event a success, but we need more participants to make the biggest impact possible for the families we serve.
📧 [email protected]
📞 218-780-2695
Come fish. Have fun. Change lives. 💙💚

05/29/2026

05/23/2026

We are still needing to fill spots for our August fundraiser. This is the largest event of the year for us! Click to reserve your spot! https://docs.google.com/forms/d/e/1FAIpQLSdTXiSP-tfPruoOlkPvAAtBOzhs2gq1TZiPnY2LTzC1l_-1eg/viewform?usp=publish-editor

05/20/2026

RIP to this beautiful soul!
Over more than three decades, Tiffany House helped bring Pompe disease from obscurity to global recognition. She was among the first patients in the world to receive enzyme replacement therapy. She helped pass newborn screening legislation in Texas. She co-authored peer-reviewed research. She founded the IPA’s Community Advisory Board. She raised over $7 million for Pompe research. She shaped treatment policy at the FDA. She built a worldwide community of patients, families, researchers, and advocates united by a single mission: a better future for everyone living with Pompe disease.

05/07/2026

We got a sweet letter from our sponsor child Mottu from Sri Lanka today! He is a little boy that GPP sponsors who has a rare genetic disorder. We sponsor him through an amazing program called Compassion International. This program is truly life changing and soooo many children are in need of sponsorship. Mottu just has his 3rd birthday and also is the same size as our George.

04/22/2026

https://www.facebook.com/share/p/1CiLWN7VDA/?mibextid=wwXIfr

💭 What is Pompe disease? Find out here: https://bit.ly/44wkkiC

From its cause to how it impacts muscles, breathing, and daily life, this article breaks it all down in a way that’s clear, supportive, and easy to understand.

✨ Whether you’re newly diagnosed, a caregiver, or just want to learn more—this is the place to start.

04/21/2026

I wanted to share with everyone this amazing company. They provide 3D printed assistance chairs for kids with mobility issues. It’s truly remarkable what we can do with a single printer! They are free of charge and you can apply on their website.

Connecting makers to requests for assistive devices.

04/15/2026

Today is National Pompe Disease day and also our last in center infusion. We can now move to home infusions. Today was a turning point all around after the horrific experience the last time. George actually got his height done without a fight. He was able to voice to us that it was scary when he saw the port supplies. We still had to hold him but if went a lot faster! He also was not afraid of the tube today and got his blood drawn from his port without any issues. He was soooo proud of himself today which is very rare at 2.5 years old. Happy National Pompe Day!