GBS-CIDP Foundation International

09/05/2026

On August 19, our dedicated volunteer in Australia represented GBS/CIDP Support (Australia) and the GBS|CIDP Foundation International at Parliament House in Canberra for the launch of Patients Australia’s report, The Value of Innovative Medicines in Rare Autoimmune Conditions.

The event brought together policymakers, health leaders, and patient advocates to discuss improving access to innovative treatments for people living with rare autoimmune conditions.

We’re proud of our volunteers for ensuring the voices of people living with GBS, CIDP, and MMN are represented in important health policy conversations.

09/04/2026

¡Por primera vez, la Conferencia Regional de América Latina de la GBS|CIDP Foundation International llega a Ciudad de México!

El 14 de noviembre de 2026, pacientes, familias y cuidadores podrán participar de manera presencial o virtual en un día de educación, conexión y comunidad.

Sesión destacada: Descripción general, investigación y tratamientos del SGB, la PDIC y la NMM

Acompáñanos para escuchar a Dr. Ricardo Reisin, Dra. Diana Castro y Dr. Javier Galnares, quienes hablarán sobre el SGB, la PDIC y la NMM, incluyendo las últimas investigaciones, tratamientos y avances en la atención.

Una oportunidad para aprender de expertos y conectar con otras personas que entienden este camino.

Ciudad de México + 💻 Virtual
14 de noviembre de 2026

¡Únete a nosotros y sé parte de este encuentro especial en Ciudad de México! https://www.gbs-cidp.org/event/2026-conferencia-regional-de-america-latina-2/

09/04/2026

Did you know?
Mister Rogers’ Neighborhood was produced right here in Pittsburgh at WQED! Fred Rogers spent years reminding us about the importance of kindness, connection, and being a good neighbor.
Now, we’re bringing that same spirit to the Pittsburgh Walk & Roll! 🏃‍♀️🚶‍♂️♿
Join your GBS|CIDP community as we come together to walk, roll, connect, and support one another—because in this neighborhood, everyone belongs.

September 19th at 9AM�🔗 Register today and join us! https://www.gbs-cidp.org/event/pittsburgh-pa-walk-roll/

09/03/2026

The Foundation was honored to welcome Chetan Poudyal and Avanish Poudyal of GBS/CIDP and NeuroAI Research Foundation Nepal, one of our valued Allied Partners, to the GBS|CIDP Foundation International.

This visit reflects the power of global collaboration and our shared commitment to advancing support, education, research, and advocacy for the GBS, CIDP, and MMN community.

We’re grateful for their partnership and excited for what we can accomplish together!

08/27/2026

Thanks to our own, Richard Sperry, Chief Strategy Officer for GBS-CIDP Foundation International for sharing his personal journey with MMN (multifocal motor neuropathy) and road to recovery. In this in-depth article, published in , the importance of plasma donation is discussed as it has become more in-demand than ever before. Read the entire article here:

Within days of getting plasma-derived infusions, Richard Sperry could move his right hand for the first time in more than a year. A single treatment requires hundreds of donors to sell their plasma.

08/24/2026

We Need Your Help: Take Part in an Anonymous CIDP Patient and Caregiver Experience Survey Today!

Designed by CME Outfitters, completing the below survey will help inform how doctors, nurses, and other health care professionals who diagnose people with CIDP (chronic inflammatory demyelinating polyneuropathy) care for patients in the future. What you tell us in this quick, anonymous survey will shape what and how CIDP clinicians learn.

Find the survey here:

Take this survey powered by surveymonkey.com. Create your own surveys for free.

08/24/2026

Congratulations, Miles for GBS, for this outstanding accomplishment and for your help in bringing much needed awareness to research into Guillain-Barre syndrome. We look forward to learning what your next goal is and how we may support it in the future! Congratulations once again!

The Mont Ventoux challenge completed ! What an adventure and it was very challenging. I was faced with a head wind the last 7 miles or so. Apperantly the wind shifted and Coach Bill and Teammate Tom had a nice tailwind. (insert jealous face here). More pictures to come over the next couple of days, I need to recover a bit and collect the various pictures.

To my fellow recovering GBS patients... This mountain is only a symbol of our recovery journey. Do NOT let GBS control you. You may have GBS but it does not have you. Walk to the end of the driveway, to the mailbox or whatever challenges you. Rest. Go at YOUR pace. Stay positive. If I can climb the mountain of recovery, so can you. I am always in your corner.

08/18/2026

There’s no place like the Kansas City Walk & Roll!

Join the GBS, CIDP, and MMN community on August 22 for a day of connection, community, and fun!

We know the Wizard of Oz story takes place in Kansas—not Kansas City —but we couldn’t resist bringing a little magic to our Walk & Roll!

✨ There’s still time to register! We’ll see you in Kansas City! https://www.gbs-cidp.org/event/kansas-city-mo-walk-roll/

08/15/2026

10 days to go!

On August 24, Miles for GBS , his wife, and close friends will take on Mount Ventoux in France in honor of Miles’ Guillain-Barré syndrome (GBS) journey.

Every mile they ride helps raise awareness and critical funds to support GBS patients and families during recovery. And 100% of donations will go directly toward providing financial assistance to patients in recovery.

Support Miles: https://go.gbs-cidp.org/gbs26