10/27/2026
‘She no longer recognizes anyone in our home apart from me, and even that is not consistent.’
Enomwoyi’s mom, Pearl, was diagnosed with dementia in 2015.
'It is now over 10 years since my Mom was first diagnosed with Alzheimer’s, though there were symptoms several years before the diagnosis.
'For many years after the diagnosis, Mom retained her sense of humour and her love of music, dancing, food, and anything to do with her beloved country of birth, Trinidad.
'However, as time passed her memory deteriorated, and she needed help with all aspects of her personal care.
'No longer could we take weekly walks to the local coffee shop to enjoy afternoon tea, or to the salon for her monthly pedicure and manicure.
'No longer was she the last one standing on the dance floor, as she became frailer.
'Standing in the kitchen making Trinidadian delights such as fry bakes, or coconut drops, is no more for dear Mom.
'When it comes to dementia, Black people, like my Mom, have a different and additional experience.
'When Mom lived in a care home for respite purposes, there was nothing representative of her culture. She has always been so proud of her Trinidadian roots, but there was nothing in the home to capture that – no songs, no pictures, no food.
'Even the skin products used were not created specifically for Black people and had to be provided.
'Mom is now bed bound and spends her days humming to herself, watching TV, listening to music, pleating the covers on her bed, and touching her sensory toys.
'She is a gentle soul who can still express strong opinions if she does not like something. For example, she’ll tell me, “What are you doing?”, or, “No, don’t do that” when I cut her nails.
'My family and our privately funded carers are essential to my capacity to care for Mom at home. I now have four carers, working double hand shifts, three times a day, and the support of my husband, my sons who live at home, and my daughters who visit to offer support.
'This support means that I can continue to work in my role as deputy manager of an Educational Psychologist team with confident knowledge that Mom is very well cared for, loved and respected.'