2014 BDSRA National Conference

11/06/2015

The 2016 BDSRA family conference page is here! Be sure to "like" the page so that you get all the updates and registration information. We look forward to seeing everyone next summer.
Click here: http://tinyurl.com/p2cy5pj

01/12/2015

The 2015 BDSRA Annual Family Conference page is here. Visit http://on.fb.me/17AcoyX and be sure to "like" the page to get all the updates.

08/01/2014

Thank you to our sponsors for making the BDSRA conference a success and supporting our families. We are looking forward to wonderful partnerships in Chicago next year.

07/17/2014

Today will never come again...

06/24/2014

Only 7 more days to register for the annual conference, and we want to see you in Columbus next month! Click on the links below to complete your registrations.

Conference online registration is open until July 1st, 2014. Click here to register: http://www.etouches.com/bdsra2014.

To see meals click here: http://bit.ly/1dOdpzS.

Hotel registration for conference at the Columbus Airport Marriott is open until July 7th, 2014. Register here: http://bit.ly/1mL5zAk.

Reminder: The Friday SIBS outing includes dinner at Magic Mountain.

Welcome to BDSRA’s online registration for the 2014 Family Conference. We’re excited you are joining us in Columbus! There is no registration fee to attend the conference; however, you must be registered no later than July 1, 2014 for BDSRA to provide accurate attendee counts to the hotel to ensur…

06/17/2014

BDSRA’s annual conference in Columbus is just around the corner!
We can’t wait to see you for “Camp Columbus.”

Here are some ideas for your visit to Columbus: http://www.columbusunderground.com/the-top-10-things-to-do-in-columbus-ohio

For the updated conference program go to: http://bit.ly/1sm51nj.

Conference online registration is open until July 1st, 2014. Click here to register: http://www.etouches.com/bdsra2014.

Visit the conference website here: https://www.etouches.com/ehome/77545.

To see meals click here: http://bit.ly/1dOdpzS.

Hotel registration for conference at the Columbus Airport Marriott is open until July 7th, 2014. Register here: http://bit.ly/1mL5zAk.

Reminder: The Friday SIBS outing includes dinner at Magic Mountain.

Please contact Tracy Kirby at [email protected] or 614.973.6013 with any questions.

Whether you're new to town, a long-time resident, or just looking for a new way to entertain visitors, this list was designed to help you find something fun to do! During our 2013 Readers Survey, w...

05/21/2014

Conference Planning Gears Up

Jean Killen and Lance Johnston of the Ohio Chapter
gathered at the BDSRA national office today to
help organize a salute to 25 years of family conferences for
Batten disease. This July will mark the 25th anniversary of
the annual family conference first held in Louisiana.
We look forward to thanking all the volunteers who made
this important event so successful for so many years.

05/15/2014

Sponsors Help Make Family Memories

Thanks to our early BDSRA Annual Conference Sponsors for 2014,
many families will build lasting memories this year in Columbus.
The generosity of BioMarin, Sanford Health, Orsini Healthcare,
Mary Payton’s Miracle Foundation, Ethan’s Reason,
Mackenzie’s Hope, the SE Chapter of BDSRA, Gardner Denver Corporation, and Beyond Batten Disease Foundation will make it possible to deliver quality programs and sessions.
There is still time to join these partners and become a conference
sponsor. Visit http://bit.ly/1n1Qu9x to learn more about
opportunities to join the BDSRA Family Conference.

03/26/2014

Conference updates are here!

To see preliminary agenda click here: http://bit.ly/1gYs0c3

To see meals click here: http://bit.ly/1dOdpzS

Hotel registration for conference at the Columbus Airport Marriott is open until July 7th, 2014. Register here: http://bit.ly/1mL5zAk

Conference online registration is open until July 1st, 2014. Click here to register: http://www.etouches.com/bdsra2014

We are looking forward to seeing every in Columbus, Ohio this July. Conference is Thursday, July 24th to Sunday, July 27th, 2014.

For questions, contact Tracy Kirby at 800-448-4570 ext. 13 or [email protected]

02/28/2014

Conference online registration is now open.

We are looking forward to seeing every in Columbus, Ohio this July. Conference is Thursday, July 24th to Sunday, July 27th, 2014.

Hotel registration for conference at the Columbus Airport Marriott is open until July 7th, 2014. Register here: http://bit.ly/1mL5zAk

Conference online registration is open until July 1st, 2014. Click here to register: http://www.etouches.com/bdsra2014

For questions, contact Tracy Kirby at 800-448-4570 ext. 13 or [email protected]

12/12/2013

Online conference registration will be available late January or early February - stay tuned for more updates