The Myositis Association

10/15/2026

10/14/2026

Calling our TMA community in the Oak Brook and greater Chicago area 💙

Join us for an unforgettable evening of fun, healing, community, and friendly competition at our 3rd Annual Meredith C. Thomas Trivia Night Fundraiser! In honor of Meredith's passion for learning and community spirit, we are raising funds for a Myositis-focused research fellowship in her memory - The Meredith C. Thomas Memorial Fellowship.

📅 Friday, October 16, 2026
⏰ 5:30–10:00 p.m.
📍 Butterfield Country Club, Oak Brook, Illinois

The evening will include dinner, drinks, trivia, and plenty of friendly competition.

We hope some of our local TMA community can join us in celebrating Meredith and supporting her family and legacy. 💙

RSVP today! https://donorbox.org/events/947178/steps/choose_tickets

The Meredith C. Thomas Memorial Fellowship was created to fund research grants for early-career clinicians focused on antisynthetase syndrome and Interstitial Lung Disease (ILD).

Our first Fellow, Dr. Angeles Galindo-Feria, is already utilizing the awarded funds in her lab at the Karolinska Institutet in Sweden. Our second Fellow has been selected and will be announced very soon!

10/13/2026

The myositis community has an important advocacy opportunity.

TMA is asking Congress to support efforts urging the VA to make inclusion body myositis (IBM) a presumptive diagnosis, similar to the rule already used for ALS. So far, 29 Representatives from both parties have signed on, and there is still time to ask more lawmakers to join before the October 23 deadline.

Complete the action alert today and help keep this issue in front of Congress:
https://rareadvocates.quorum.us/campaign/167541/

Your voice matters for veterans living with IBM and for the entire myositis community.

10/08/2026

You do not have to navigate myositis alone. 💙

TMA’s support and affinity groups create spaces where patients and care partners can connect with people who understand some of the challenges that come with living with a rare disease.

Whether you are looking for a regional support group, a diagnosis-specific conversation, a space for care partners, or an affinity group built around shared identities and experiences, there are opportunities to find connection and community.

Groups are open to members regardless of location, including internationally, and TMA membership is free.

Find a group that feels right for you:
https://www.myositis.org/patient-support/

10/07/2026

The Fall 2026 issue of The Outlook is here, bringing together the latest myositis research, inspiring member stories, and a special focus on finding joy while navigating life with myositis. Explore new research on IBM and dermatomyositis, hear from members who have adapted to new challenges, and discover the people and connections that continue to bring hope and meaning to the myositis community.https://www.myositis.org/wp-content/uploads/2026/10/TMA_FALL_2026_Magazine_Final.pdf