The Myositis Association

06/02/2026

You may be eligible to receive up to $7,038 in compensation for your participation in a clinical trial exploring an investigational cell therapy’s impact on a key driver of myositis. Nkarta also covers transportation, lodging, meals and childcare for patients and care partners traveling to study sites.

Learn about a clinical research study exploring an investigational approach to target the malfunctioning B cells in your immune system.

https://www.ntrust2.com/?utm_source=TMA&utm_medium=QR&utm_content=Outreach&utm_campaign=Outreach_Nkarta

06/01/2026

🌈 Happy Pride Month from The Myositis Association!

This June, we proudly celebrate the LGBTQIA+ community and reaffirm our commitment to creating safe, inclusive, and supportive spaces for everyone living with myositis.

Join us for our next TMA Rainbow Affinity Group Meeting.

Sunday, June 28, 2026
5:00 PM – 6:30 PM ET
Virtual Event

This group offers a welcoming space for LGBTQIA+ individuals living with myositis to connect, share experiences, find resources, and build community with others who understand.

RSVP through TMA’s event calendar. https://300.myositis.org/event/tma-rainbow-affinity-group-meeting/2026-06-28/

05/31/2026

Last chance to give during Myositis Awareness Month.

As this important month comes to a close, we are grateful for every person who helped raise awareness, share resources, tell their story, and support the myositis community.

Your donation tonight helps TMA continue improving the lives of those living with myositis long after May ends.

Please make your gift before Myositis Awareness Month is over.

https://myositis.org/mam

05/31/2026

Today is the final day of Myositis Awareness Month, and there is still time to make an impact.

The Myositis Association depends on the generosity of this community to continue improving the lives of those living with myositis through support, education, advocacy, and research.

Please make a gift before Myositis Awareness Month ends. Every donation helps strengthen this community and carry awareness forward all year long.

https://myositis.org/mam

05/31/2026

Sharing myositis facts helps more people recognize the signs, understand the impact, and support those living with IBM. Awareness can lead to earlier conversations, better support, and a stronger community for patients and care partners.

05/31/2026

Terry Anderson is from South Dakota and loves travel. When he retired, his dream was to tour the world with his wife, Bitsy, and they did. They loved seeing Russia, China, and the Middle East. They had so many other destinations they wanted to visit. But in 2007, Bitsy began losing muscle strength in ways that interfered with travel. She was diagnosed with inclusion body myositis (IBM) in 2008. “There were a lot of dreams we had to change,” Terry said. Read the full story today! https://www.myositis.org/blog/tma-allows-me-to-vent-with-people-who-really-understand/

05/30/2026

House Resolution (H.Res.) 1195 was formally introduced in the U.S. House of Representatives by Rep. Rich McCormick (Georgia). This ceremonial, nonpartisan resolution officially designates May as Myositis Awareness Month, significantly increasing the visibility of myositis diseases within the highest levels of American government.

TMA’s continued efforts to educate the public about myositis will be heightened by this legislation. And you can help! Please contact your Representative to request co-sponsorship of H.Res. 1195. https://everylifefoundation.quorum.us/campaign/161436/

05/29/2026

Join TMA for Natural Killer (NK) Cells in Myositis: Emerging Science and Therapeutic Potential on June 2 @ 6:00 pm - 7:00 pm EDT on Zoom. RSVP today! https://www.myositis.org/event/natural-killer-nk-cells-in-myositis-emerging-science-and-therapeutic-potential/

What if a powerful part of your immune system could hold new clues to understanding — and potentially treating — myositis?

Natural Killer (NK) cells are a specialized type of immune cell designed to recognize and eliminate harmful or abnormal cells in the body. Researchers are now studying how NK cells behave in myositis — whether they contribute to muscle inflammation, help regulate immune responses, or could become a target for future therapies.

Join us for an in-depth look at the latest research on NK cells in myositis, what scientists are discovering, and what these findings may mean for people living with myositis. Whether you are newly diagnosed or have been navigating myositis for years, speakers Lisa Christopher-Stine, MD, MHS and Shawn Rose, MD, PhD will help you better understand this emerging area of science and where it may lead. Thank you to webinar sponsor Nkarta.

05/29/2026

Learn about physical therapy and myositis as part of the 2026 TMA & KUMC Annual Regional Conference. https://bit.ly/4fLcwkr

Learn about physical therapy and myositis as part of the 2026 TMA & KUMC Annual Regional Conference. Want to learn more about myositis? Be sure to hit like a...

05/29/2026

There is currently no cure for inclusion body myositis.

For now, treatment focuses on supportive care, monitoring swallowing and respiratory concerns, and helping people maintain mobility and strength as much as possible.