Tyler's Dream

Tyler's Dream We are a nonprofit bringing hope to children & teens diagnosed with Ehlers-Danlos Syndrome and Syringomyelia.
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Through Happy Mail & support, we remind them they are seen, loved, and never alone. Tyler's Dream is a non profit for kids 0 to 19 that have been diagnosed with Syringomyelia or Ehlers Danlos Syndrome. You sign up on the website for your child to receive Happy Mail from their Amazon wish list from supporters. Your child will also receive a Welcome Gift after signing up on the website and a birthda

y card every year. If you are wanting to shop for the kids that are registered from their Amazon Wishlist, please register at tylersdream.org Once approved you will be able to view the lists and send Happy Mail as often as you like.

This was from last week's Wishlist Wednesday! 🤗 Thank you!!We are so grateful for those that believe in our mission and ...
09/07/2026

This was from last week's Wishlist Wednesday! 🤗 Thank you!!We are so grateful for those that believe in our mission and want to help brighten the day of a medically complex child living with Ehlers-Danlos Syndrome and Syringomyelia.

🎂🦓 For my birthday this year, I have two birthday wishes…I normally don’t celebrate my birthday on Facebook because it’s...
09/03/2026

🎂🦓 For my birthday this year, I have two birthday wishes…

I normally don’t celebrate my birthday on Facebook because it’s so close to Tyler’s birthday in November. I always want his birthday month to be about Tyler, raising funds in his memory and helping keep Tyler’s Dream going. 🩷

🦓 My first wish: Invite your friends to like and follow Tyler’s Dream on Facebook and Instagram! Share our page on your own page and in any groups that allow it. Doing these costs absolutely nothing, but it can make such a difference. 💙

I’ve had people tell me that Tyler’s Dream, EDS and Syringomyelia started showing up in their feeds because friends were liking, following and interacting with our page. That is how awareness spreads and how new families find us.

🎁 My second wish: If you’re able, consider making a donation to my birthday fundraiser to help us purchase zebra items for our packages.

I can’t think of a better birthday gift than that. 🎂🦓🩷

🦓🎨 TYLER’S DREAM ART CHALLENGE: SHOW US YOUR ZEBRA!🎨🦓Welcome to our very first Tyler’s Dream Art Challenge!We believe ar...
09/02/2026

🦓🎨 TYLER’S DREAM ART CHALLENGE: SHOW US YOUR ZEBRA!🎨🦓

Welcome to our very first Tyler’s Dream Art Challenge!

We believe art can be healing. A chance to express yourself, relax, have fun and create something that is completely your own. You don’t have to consider yourself “good at art” to participate. There is no right or wrong way to create!

We’ve included a two zebra coloring pages that you can download and color any way you would like. One with zebra lines shaded in and one without. It’s a starting point for all ages. But you don’t have to use the coloring page!

You can paint a zebra, draw your own, try needlepoint, decorate a rock, use fabric, clay, beads, paper or anything else you can dream up. Make it colorful, funny, beautiful, wild, sparkly or completely unexpected. Just make it YOURS!

This challenge is OPEN TO EVERYONE! You do not need to have EDS or be registered with Tyler’s Dream to participate. Kids, teens, adults, families, friends, classrooms, artists and definitely-not-artists are all invited!

When you’re finished, share your zebra with us in the comments or send it to us in a message. We’ll celebrate and share your creations throughout the month, and then bring them all together at the end of the month for one big showcase!

We can’t wait to see what you create!

A little update from me 💙On Friday, I had surgery for Thoracic Outlet Syndrome, a right first rib resection with anterio...
09/01/2026

A little update from me 💙

On Friday, I had surgery for Thoracic Outlet Syndrome, a right first rib resection with anterior scalenectomy. I ended up spending two nights in the hospital and was finally able to come home Sunday afternoon.

I also had a few amazing people who helped me through all of this, and I truly could not have had this surgery without them. I am so incredibly grateful. 💙

I have to say, there really is no place like your own bed! 😂 I actually ended up sleeping in the chair at the hospital because I just could not get comfortable in the hospital bed. Since being home, having an adjustable bed where I can raise and lower the head and feet has made getting comfortable so much easier.

I thought I’d share a few pictures from the weekend. One while I was waiting to go back for surgery, my lovely “bed” (aka the chair 😂), and finally heading HOME!

And I had to laugh when I saw the green gauze wrapped around my hands. I looked in the mirror and felt like some kind of superhero. 💚😂💚 I just wish they had superhero colors for EDS or Syringomyelia!

Right now, my job is to rest, heal, and recover, but I already can't wait until I'm feeling good enough to get back to doing what I love. I really miss our events and fundraisers and being out there raising awareness for Tyler’s Dream and these conditions.

And November will be here before we know it! 💙🎂 Tyler’s birthday month is always incredibly special to me and we always do a big fundraiser during November. I’m hoping we can not only raise much needed funds, but also raise a whole lot of awareness along the way. 💙🦓💙

There is something so special about seeing the smiles when one of our kids receives their Tyler’s Dream Welcome Package....
08/28/2026

There is something so special about seeing the smiles when one of our kids receives their Tyler’s Dream Welcome Package. 💙

Just look at Grayson’s smile! 🥰 These are the moments that bring us so much joy and remind us exactly why we do what we do.

A huge thank you to Grayson’s mom for sharing these sweet photos that I know made everyone smile and for continuing to advocate and raise awareness. Syringomyelia and Ehlers-Danlos Syndrome desperately need more awareness, and every voice and every shared story helps.
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We’re so excited to welcome another sweet girl to the Tyler’s Dream family! 💙🦓💙Our newest girl is from Louisiana, and he...
08/27/2026

We’re so excited to welcome another sweet girl to the Tyler’s Dream family! 💙🦓💙

Our newest girl is from Louisiana, and her welcome package was sent out yesterday! 📦 I’m so excited for her to receive it and hope it brings a little happiness and brightens her day.

Welcome to Tyler’s Dream! We’re so happy you’re here, and we hope you always know you’re not alone. 💙

It’s been a while since we’ve done a Wishlist Wednesday! There are a few items we use all the time in our packages, and ...
08/26/2026

It’s been a while since we’ve done a Wishlist Wednesday!

There are a few items we use all the time in our packages, and right now we’re running especially low on pop its and some of our favorite fidgets.

Of course, we can always use zebras, comfort blankets, and stamps too.

If you’d like to purchase something from our wishlist, every item goes directly toward helping us brighten the day of our amazing kids. 💙

Thank you for helping us keep the shelves stocked and the packages going out! 🦓📦💙

https://www.amazon.com/hz/wishlist/ls/3FTC73251KKFD?ref_=wl_share

If you have Ehlers-Danlos syndrome, are going through the diagnostic process, or even suspect you may have EDS, there is...
08/21/2026

If you have Ehlers-Danlos syndrome, are going through the diagnostic process, or even suspect you may have EDS, there is a reason my last post about Mast Cell Activation Syndrome was so long and included so much information: to give you the tools you need to better understand your body.

You may have heard people with EDS talk about “the trifecta”:

🦓 Ehlers-Danlos syndrome (EDS)
🩵 Dysautonomia, often POTS
💜 Mast Cell Activation Syndrome (MCAS)

These three conditions are frequently seen and discussed together, particularly in people with hypermobile EDS and hypermobility spectrum disorders.

So why do these conditions seem to overlap?

Connective tissue is found throughout our entire body, and mast cells live throughout connective tissues, especially in the skin, gastrointestinal tract and respiratory tract. Researchers are still trying to understand exactly why EDS, dysautonomia and mast-cell problems overlap in some people. There are several theories involving connective tissue, blood vessels, the autonomic nervous system, immune signaling and mast cells, but we still don't have all the answers.

And that is exactly why education and research are so important. Sometimes understanding what could be happening in your body is the first step toward knowing what questions to ask.

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Another child has joined Tyler’s Dream, and I’m so excited! 💙🦓💙Their Welcome Package is all packed and we’re heading to ...
08/21/2026

Another child has joined Tyler’s Dream, and I’m so excited! 💙🦓💙

Their Welcome Package is all packed and we’re heading to the post office!

Every child who signs up with Tyler’s Dream receives a Welcome Package as their very first package from us, and this one is heading all the way to Indiana!

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Cocoa, FL

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