Josie's Journey

Josie's Journey Welcome to the official Josie's Journey page. Josie's first day of Kindergarten was a joyous one. My first born's first day of big girl school.

Josie Claire was officially diagnosed with Rhabdomyosarcoma 09/29/10 but her Momma first heard the words, "Josie has cancer" on 09/22/10. I was so excited and proud. I was the typical Mom, clicking as many photos as I could. Getting ready, breakfast, before the bus with everyone, on the bus, getting off the bus.... well, you get the picture. Later that day I was reminiscing about her big day and

looked through the pictures. It was that day, 08/23/10, that I noticed something kinda odd about her right eye. Little did we know, one month later, she would begin the battle for her life. After a couple of weeks this "thing" in the corner of her eye continued to grow. We had consulted her Pediatrician on several occasions. She threw everything at it she could. Nothing helped. The "thing" kept growing. We needed a Pediatric Ophthalmologist but couldn't get an appointment until mid-October. I even took her to two Emergency Rooms in one day. Both refused to help even though I knew they had the ability to call in an Ophthalmologist at will. We were sent home. Frustrated and unable to give up, we call our Pediatrician again. She and her office staff worked to get Josie seen in Ashland by Dr. Epling and Dr. Gross. They took one look at her and told us we needed to go to a children's hospital because, "It could be serious."

09/22/10 - Less than one week later we were sitting at Nationwide Children's Hospital Ophthalmology unaware of what the day would bring. I thought maybe it was a cyst and had to be surgically drained. After Dr. Cassaday's initial exam she said Josie needed and MRI - immediately. We quickly went downstairs and waited on her turn. She was sedated and rolled back for her test. The wait seemed like forever but after a half hour, Josie was rolled back out to me. She lay there sleeping, in her medicine induced slumber, oblivious to the sobbing of her Momma. Shortly after she was rolled out to me the doctor called. All I remember was, "I have talked to the Radiologist on call and - Josie has a malignant tumor we believe to be Rhabdomyosarcoma." Malignant. But that means cancer - doesn't it. Not my daughter. Not my innocent 5 year old Josie Claire. Alas, it was true. The next couple hours we consulted with a surgeon. The next day we met with an Oncologist. Still - I was confused and numb. We filled out paperwork for programs, talked with a social worker, still I thought maybe they were wrong. I didn't speak a word of it to anyone but Josie's dad, my brother, Jarrod and my Dad. I swore everyone to secrecy. No one would speak a word of this until we were sure.

09/29/10 - Mum went with us to Columbus for her surgery. All she and anyone else knew was that we were going for the doctor to remove the "thing." We had asked for prayer but nothing specific. Her Dad and I had talked a lot that week. We had both done our research and made out our questions. We were ready. Josie went back for surgery and we sat there - knowing in our hearts that our sweet daughter, our first born, was going through the first of many procedures. The doctor came out and confirmed our greatest fear. Rhabdomyosarcoma. Our onslaught of questions began and were answered without hesitation. It only took about 10 minutes. He and I (divorced for almost 2 years) bowed our heads and said a prayer. We walked out and gave the news to the friends and family waiting. After all the tears and hugs, there were questions, so many questions. He and I simply handed over the research we had done and let them read it. And so it began.

12/28/2019

FAMily Legacy 🌠
Super Friend Levi is currently on hospice after a long battle 🀺 with High Spindle Cell Scarcoma 🦠. This is a secondary cancer πŸ‘Ύ directly related to the treatment he received at age 4️⃣, after being diagnosed, treated and beating Medulloblastoma 🧠. Levi is still with us here on Earth 🌎 but he is tired and his time βŒ› with us is limited. Mom Melina says that despite his pain πŸ˜– and his own fears 😨, Levi always thinks of others first. In true Levi fashion, he has made the decision to donate his tumors to "Project Every Child" after he lays down his sword βš”. In his own words, Levi states that he hopes that this last act of kindness will either help prevent or help completely cure other children currently battling πŸ₯Š monsters πŸ‘Ί created by treating πŸ’Šother monsters. Levi and his family need this FAMily πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦ to show them all the love πŸ’›, prayers πŸ™ and support as they continue to travel this different road πŸ›£. Levi, your bravery πŸ›‘ and selflessness are awe inspiring 🌟. FAM is honored to be a part of your story πŸ“–. You are seenπŸ‘€ and you are so very lovedπŸ’–πŸ’–. Thank you,πŸ¦Έβ€β™‚οΈ Levi for giving a gift that will help generations πŸ’«.



Cc: Levi’s Superfriends

Days 8 & 9.  We were fortunate enough to live in Ohio during Josie's diagnosis and treatment. We qualified for a program...
09/10/2019

Days 8 & 9.

We were fortunate enough to live in Ohio during Josie's diagnosis and treatment. We qualified for a program that helped with out of pocket medical expenses. We lost that when we moved to WV. Her cost of treatment, including all post treatment procedures, is over $1 million. We aren't finished either.

Josie has lost countless friends to cancer, starting just after diagnosis, at age 5. Cancer still haunts Her. She has lasting side effects and will never be the same. Not mentally and emotionally, not physically

Day 8 of... Well you already know. A little knowledge to pass along.
09/08/2019

Day 8 of... Well you already know. A little knowledge to pass along.

ccam Day 7. I typically refrain from profanity on this page but seriously... I need more people to   because children ar...
09/08/2019

ccam Day 7. I typically refrain from profanity on this page but seriously... I need more people to because children are dying and minimal reaearch is happening.

Because: Awareness ➑ Funding ➑ Research ➑ Cure

Since we didn't post yesterday...you get a 2fer! I know a few Rhabdomyosarcoma families with children diagnosed within t...
09/07/2019

Since we didn't post yesterday...you get a 2fer!

I know a few Rhabdomyosarcoma families with children diagnosed within the first months of life, stage 4 cancer in a newborn. Try to wrap your head around that!

  Fogot to post yesterday. Honestly this is unacceptable. We have been told the reason for this is, "There is no money i...
09/05/2019

Fogot to post yesterday.

Honestly this is unacceptable. We have been told the reason for this is, "There is no money in childhood cancer." How would you like to hear that if your child had the same diagnosis as mine?

09/02/2019
08/31/2019

It has been 8 years since Josie's last treatment. EIGHT! Happy anniversary Sis!

It is hard to believe but Josie started 9th grade today.
08/22/2019

It is hard to believe but Josie started 9th grade today.

Today Josie is 13! We are blessed to be her parents and walk along side her through her journey. To know her is to love ...
06/03/2018

Today Josie is 13! We are blessed to be her parents and walk along side her through her journey.

To know her is to love her.
She is a warrior.
She is the most empathetic person.
She feels deeply.
She loves deeply.
She wants to see others happy, even at the expense of her own happiness.

There is nothing greater than spending the day with her. She has faced many battles but is still here strong, sometimes broken, but ever standing. She is the model of what I want to become as a human. We will never forget one step of this journey because it has molded you into the person you are which is perfect.

All of her golden angels, please continue to watch over my girl. We never forget you and carry your spirits with us every day.

HAPPY BIRTHDAY, Josie Claire! We all love you so very much!

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Coal Grove, OH
45638

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