Lowe Syndrome Association, Inc.

Lowe Syndrome Association, Inc. Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Lowe Syndrome Association, Inc., Nonprofit Organization, Chicago Ridge, IL.

Our mission is to improve the lives of persons with Lowe syndrome and their families through fostering communication, providing education and supporting research so that individuals can attain their highest potential.

Meet Our LSA Families! 💙Our community is made up of incredible boys, families, and loved ones who make the Lowe syndrome...
08/28/2026

Meet Our LSA Families! 💙

Our community is made up of incredible boys, families, and loved ones who make the Lowe syndrome community so special.

Today, we’re celebrating some of the amazing boys and families who are part of LSA. Thank you for sharing your smiles, your stories, and your lives with our community. We’re so grateful to have you here!

Here’s to the boys who inspire us and the families who support them every step of the way. 💙

The Ankrom fundraiser at Pizza Ranch on August 17th raised an incredible $978.59 for the Lowe Syndrome Association! 🎉🍕A ...
08/24/2026

The Ankrom fundraiser at Pizza Ranch on August 17th raised an incredible $978.59 for the Lowe Syndrome Association! 🎉🍕

A huge thank you to everyone who supported the fundraiser and helped make it such a success for the Ankrom family! We’re so grateful for your support of the Lowe syndrome community. 🙌🏼

New School Year, New Goals! 📚🎒A new school year brings fresh opportunities, exciting milestones, and new goals to work t...
08/21/2026

New School Year, New Goals! 📚🎒

A new school year brings fresh opportunities, exciting milestones, and new goals to work toward.

Whether your child is focusing on academics, independence, friendships, therapy goals, or simply trying something new, we'd love to hear what's on your family's goal list this year!

💙What is one goal you or your loved one hopes to achieve this school year?

Share your goals in the comments and let's encourage one another as we start a new chapter together. Every step forward, big or small, is worth celebrating!

Back-to-school season can bring excitement, nerves, and plenty of preparation. 📚✏️🎒What helps your family have a success...
08/20/2026

Back-to-school season can bring excitement, nerves, and plenty of preparation. 📚✏️🎒

What helps your family have a successful transition?

📓 Staying organized
🏫 Navigating school accommodations
📅 Managing therapy schedules
💬 Communicating with teachers

What’s your best back-to-school advice? Share in the comments to help other families in the Lowe syndrome community! 🍎

Today on National Nonprofit Day, we celebrate the incredible Lowe Syndrome community. 💙Thank you to our families, caregi...
08/17/2026

Today on National Nonprofit Day, we celebrate the incredible Lowe Syndrome community. 💙

Thank you to our families, caregivers, volunteers, donors, advocates, and supporters who make our mission possible. Because of you, we can continue providing resources, connection, education, and hope to those affected by Lowe syndrome.

Every donation, volunteer hour, shared story, and act of support helps strengthen our community. Thank you for being part of the Lowe Syndrome Association family.

As we celebrate today, we invite you to consider supporting our mission with a donation. Every gift, no matter the size, helps us continue providing resources, advocacy, education, and connection for individuals and families affected by Lowe syndrome.

🔗Donate here: https://lowesyndrome.org/donate/

School season is here! 🎒Whether your child is heading back to school, learning from home, attending therapy programs, or...
08/12/2026

School season is here! 🎒

Whether your child is heading back to school, learning from home, attending therapy programs, or starting a new routine, we'd love to celebrate with you.

Share a first-day photo, school picture, or special milestone in the comments below. 💙

Advice for New Families 💙Receiving a Lowe syndrome diagnosis can bring a lot of emotions and questions. While every fami...
08/11/2026

Advice for New Families 💙

Receiving a Lowe syndrome diagnosis can bring a lot of emotions and questions. While every family's journey is unique, the support and wisdom of those who have walked this path can make a meaningful difference.

What advice would you give to a family that is newly navigating a Lowe syndrome diagnosis?

✨ Share your tips, encouragement, resources, or words of hope in the comments below.

Together, we can help remind new families that they are not alone and that a supportive community is here for them every step of the way.

Earlier this summer, we shared a Lowe Syndrome Summer Bucket List filled with fun family activities. 💙Now we want to kno...
08/08/2026

Earlier this summer, we shared a Lowe Syndrome Summer Bucket List filled with fun family activities. 💙

Now we want to know, how many did you complete?
☀️ Did you try something new?
📸 Did you make special memories?
💙 Did you enjoy time together as a family?

Share your favorite summer memory and how many you completed in the comments!

Where Is Our LSA Family Joining From? 💙🌎One of the most amazing things about the Lowe Syndrome community is that we're c...
07/29/2026

Where Is Our LSA Family Joining From? 💙🌎

One of the most amazing things about the Lowe Syndrome community is that we're connected across cities, states, and even countries. Today, we'd love to see just how far our community reaches! Drop your city and state (or country) in the comments below and let us know where you're joining us from📍

We'll use your responses to create a special community map showing all the places our LSA family calls home 💙

We can't wait to see our community come together from around the world!

International Self-Care Day 💙Today is a reminder that caring for yourself isn't selfish, it's essential. Whether you're ...
07/24/2026

International Self-Care Day 💙

Today is a reminder that caring for yourself isn't selfish, it's essential. Whether you're a caregiver, family member, individual with Lowe syndrome, friend, or supporter, taking time to rest and recharge helps you continue showing up for yourself and those you love.

Self-care doesn't have to be big. It can be as simple as taking a walk, enjoying a quiet moment, reaching out to a loved one, or doing something that brings you joy.

How are you practicing self-care today? Share with us in the comments. We'd love to hear what helps you recharge.

Address

Chicago Ridge, IL

Telephone

+12166307723

Website

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