Breathe with MD, Inc.

Home
United States
Cleveland, TN
Breathe with MD, Inc.

We are a 501(c)(3) nonprofit that educates and raises awareness about breathing muscle weakness in NMD. We promote a proactive approach to respiratory care.

Our mission focuses on NIV.

09/02/2026

Yesterday evening, we published our eighth and final lesson to our introductory level online course, “Breathing Muscle Weakness 101,” developed specifically for individuals living with Neuromuscular Disease (NMD) and their loved ones.

There is still time to enjoy this free opportunity to get equipped with key knowledge to help in getting better respiratory care which can lead to improved quality of life.

Learn more/enroll here: https://forms.gle/LAYNMFYTBJAwpSEZ6

09/01/2026

In “Practical Guide to Management of Long-Term Noninvasive Ventilation for Adults With Chronic Neuromuscular Disease,” the authors share three goals for long-term ventilatory support: Enable restful, restorative sleep; relieve breathlessness; and normalize respiratory gas exchange night and day.

Learn more at https://pmc.ncbi.nlm.nih.gov/articles/PMC10353174/

08/31/2026

“The respiratory pump is responsible for moving the air in and out of the lungs. The respiratory pump fails when it operates against an increased workload or when the respiratory muscles fail to generate enough force. Both of these circumstances predispose to respiratory muscle fatigue, which is defined as the inability to sustain a contractile force against a constant workload. As fatigue increases the patient develops a rapid shallow breathing pattern, which is not fatigue-specific, but rather a reflex response to increased work of breathing.”

Reference: Athanasios Voulgaris, Maria Antoniadou, Michalis Agrafiotis, Paschalis Steiropoulos, "Respiratory Involvement in Patients with Neuromuscular Diseases: A Narrative Review", Pulmonary Medicine, vol. 2019, Article ID 2734054, 11 pages, 2019. https://doi.org/10.1155/2019/2734054

08/30/2026

Looking 👀 at you, adults with slowly progressive Neuromuscular Disease (NMD)… 😊

Neuromuscular breathing weakness has a way of “sneaking up on” us. We won’t necessarily experience symptoms every day, and sometimes those symptoms are dismissed as having a cause that is unrelated to NMD. This is why it’s so important to be seen regularly by a clinician who specializes in the breathing problems of those who have NMD.

08/29/2026

“Chronic respiratory failure is the most common cause of morbidity and mortality for individuals with neuromuscular disease (NMD). While the onset of respiratory failure in the acute setting is well-defined, the onset of chronic respiratory failure is often insidious and its evolution is poorly recognized and described. Presenting first as nocturnal hypoventilation, identifying this change is subtle clinically and often depends on the patient’s and family’s reporting of symptoms and the clinician having a high level of concern and suspicion.”

Article quoted: https://pmc.ncbi.nlm.nih.gov/articles/PMC10657685/

08/28/2026

In the month of August, we have mailed over 100 consumable respiratory supplies from our inventory for free to those who reside in the United States of America (USA), live with a Neuromuscular Disease (NMD), and are in need.

Check out our inventory/access the request form at https://docs.google.com/forms/d/e/1FAIpQLSfosrp73EU4XVKrtKCEAPvUR_RQ3MbHrbU6yKnr4882pxNILw/viewform.

08/27/2026

Our August email update was sent earlier this week. Read it here: https://conta.cc/4xbRCRm

08/24/2026

“NIV can be optimized by adjusting parameters such as mode of ventilation, inspiratory time, and inspiratory and expiratory pressures. There is no strong evidence supports one mode of ventilation over another, although a backup respiratory rate may lead to better patient-ventilator synchrony and improved gas exchange. Patients with bulbar impairment may not be able to tolerate NIV or achieve adequate ventilation. The panel suggests an ongoing assessment of sleep quality, digital downloads, leaks, oximetry (capnography where available), and determining optimal settings along with optimizing secretion management.”

Note: NIV stands for noninvasive ventilation.

Reference: Khan, Akram, et al. “Respiratory Management of Patients with Neuromuscular Weakness: An American College of Chest Physicians Clinical Practice Guideline and Expert Panel Report.” CHEST, vol. 164, no. 2, 2023, pp. 394–413.

Access the full article at https://journal.chestnet.org/article/S0012-3692(23)00353-7/fulltext.

08/21/2026

Imagine living months to years without appropriate management or intervention for something so critical as a breathing impairment. Those with Neuromuscular breathing weakness experience this at a level that is unacceptable.

Possible symptoms of neuromuscular breathing weakness with hypoventilation (under ventilation) during sleep can include non-restful sleep, frequent awakenings, morning headaches, and anxiety and/or difficulty breathing while lying flat, just to name a few.

These symptoms may be subtle and not experienced every day. Some individuals may not experience all of these symptoms, and these are often mistaken to have causes other than breathing muscle weakness.

This is why it is common to go months or even years with undiagnosed and untreated breathing muscle weakness. If you or a loved one is living with any form of Neuromuscular Disease (NMD), see a neuromuscular breathing specialist for evaluation and any recommended testing, attend check-ups, and use any appropriate prescribed interventions.

To learn more about appropriate care options for Neuromuscular breathing weakness, enroll in our self-paced online course that is open through the end of 2026.

Enroll here: https://forms.gle/LAYNMFYTBJAwpSEZ6

08/20/2026

The third annual Breathe with MD, Inc. "Breathing Muscle Weakness 101," introductory level online course opened on April 25. Lesson 6: Supplemental Oxygen may be the most important lesson of this ongoing course, as it explains how and why supplemental Oxygen can be dangerous for someone with weakened breathing muscles, ways of giving supplemental Oxygen that are safe, and ways to self-advocate or advocate on behalf of a loved one to ensure a medical error is not made.

Many clinicians are unaware of the dangers of supplemental Oxygen for those living with Neuromuscular Disease (NMD), so it is imperative that patients and families are informed and equipped to navigate situations where supplemental Oxygen may be recommended.

There is still time to enroll, log on, and learn all about breathing muscle weakness in a free, self-paced online format developed just for those living with NMD and their loved ones.

Learn more/enroll here: https://forms.gle/LAYNMFYTBJAwpSEZ6

Address

Cleveland, TN
37312

Telephone

+14236418846

Website

http://www.breathewithmd.org/

Alerts

Be the first to know and let us send you an email when Breathe with MD, Inc. posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Breathe with MD, Inc.:

Want your organization to be the top-listed Non Profit Organization in Cleveland?