The B Brave Foundation

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The B Brave Foundation B Brave Foundation is a 501(c)(3) nonprofit organization that improves the lives of children with inc

Caring for a child with a rare, incurable neurological disorder can take everything a parent has. Medication schedules, ...
10/09/2026

Caring for a child with a rare, incurable neurological disorder can take everything a parent has. Medication schedules, appointments, and overnight care leave little room for sleep, let alone for a parent's own health.

That load is real, and it builds over time. B Brave's Counseling and Self Care Fund exists because caregivers need support too. The fund offers up to $500 a year toward counseling and therapy sessions, including art therapy, cognitive behavioral therapy, EMDR, play therapy, and bereavement support, or toward a gym membership.

Taking care of yourself is part of caring for your family. Learn about the fund and apply: https://bbravefoundation.org/children-and-families/family-resources/

Doctors, nurses, social workers, and child life specialists often notice a family's needs before the family has words fo...
10/07/2026

Doctors, nurses, social workers, and child life specialists often notice a family's needs before the family has words for them.

A referral to B Brave may help when a family has just received a rare, incurable neurological diagnosis, when new costs are piling up around hospital stays or equipment, or when a family seems to be carrying everything alone. You do not need to know exactly what the family needs. Share their situation, and B Brave will follow up to learn more.

B Brave offers practical support, financial assistance tailored to each family, and connection to people who have walked a similar road. Every family's situation is different, and support is shaped around them.

Refer a family: https://bbravefoundation.org/healthcare-professionals/refer-a-child/

Some costs cannot wait. A family may need gas to get to the hospital tomorrow, or groceries during a week when one paren...
10/02/2026

Some costs cannot wait. A family may need gas to get to the hospital tomorrow, or groceries during a week when one parent is staying at the bedside.

B Brave's Urgent Need Fund is designed for needs like these. It provides gas cards, transportation vouchers, grocery cards, and gift cards for meals, up to $100 a year, for families caring for a child with a rare, incurable neurological disorder.

It is a smaller fund by design, focused on pressing day-to-day costs, and it sits alongside B Brave's larger Children & Families Financial Assistance Fund.

Families can learn more and apply: https://bbravefoundation.org/children-and-families/family-resources/

To help keep the fund available, give at https://bbravefoundation.org/donate/

Friends often want to help a family caring for a child with a rare, incurable neurological disorder. A broad offer can b...
09/30/2026

Friends often want to help a family caring for a child with a rare, incurable neurological disorder. A broad offer can be sincere, but it may still leave the family with the work of deciding what to ask for and coordinating everyone who offers.

Try making one manageable offer: “Could I leave dinner at your door on Thursday?” or “Would a ride to an appointment help next week?” Give the family an easy way to decline or suggest something else. If they say yes, take care of the details you can.

Support looks different in every household. B Brave’s guide for developing a support system offers more practical ideas: https://bbravefoundation.org/children-and-families/developing-a-support-system/

When a child’s care takes a family away from home, a place to stay can become one more expense to manage. Lodging is one...
09/25/2026

When a child’s care takes a family away from home, a place to stay can become one more expense to manage. Lodging is one of the needs B Brave’s Children & Families Financial Assistance Fund can consider.

The fund is tailored to each family’s circumstances and offers up to $2,500 annually, depending on available funding. The aim is practical: ease a financial burden so a family can focus on their child.

Families can learn about the fund at https://bbravefoundation.org/children-and-families/family-resources/ and apply at https://bbravefoundation.org/grant-application-form/. To help make this support possible, give at https://bbravefoundation.org/donate/.

After a child is diagnosed with a rare, incurable neurological disorder, families may be asked to make decisions, coordi...
09/23/2026

After a child is diagnosed with a rare, incurable neurological disorder, families may be asked to make decisions, coordinate appointments, and explain their situation to people who want to help. They may not yet have words for what they need.

A useful first step can be an introduction. B Brave connects children and families with support, and anyone who knows a family who might benefit can refer a child through our online form. We listen to each family and work from their needs.

If you know a family who might benefit, start here: https://bbravefoundation.org/healthcare-professionals/refer-a-child/

Comfort Carts do their job well, which means they need restocking. A book goes home with a child who needed something to...
09/18/2026

Comfort Carts do their job well, which means they need restocking. A book goes home with a child who needed something to hold onto. A game gets worn out from actually being played. That's the cart working exactly as intended, and it means we're always looking ahead to the next round of items.

For families spending long stretches in a children's hospital because of a rare, incurable neurological disorder, these small items break up days that otherwise blur together between medical rounds and monitor beeps. Keeping a single cart fully stocked for a year costs $2,000, and every contribution, large or small, goes directly toward the next batch of books, games, and comfort items.

If you'd like to help stock the next cart, visit https://bbravefoundation.org/donate/.

A single fundraiser or year-end gift can do a lot of good, but families managing a rare, incurable neurological disorder...
09/16/2026

A single fundraiser or year-end gift can do a lot of good, but families managing a rare, incurable neurological disorder need support that shows up consistently, not just when it's convenient for the calendar.

That's the idea behind our Bridge Builder program. Donors commit to monthly or annual giving at whatever level fits their situation, whether that's an individual gift or a corporate partnership across our Platinum, Gold, and Silver tiers. That predictable funding is what lets us approve a Family Support Grant quickly, keep a Comfort Cart stocked, or respond to a referral the same week it comes in, instead of waiting for the next big event.

If you've supported us before and want that support to keep working between fundraisers, becoming a Bridge Builder is the simplest way. Learn more at https://bbravefoundation.org/donate.

Rare disease is rare precisely because most healthcare providers encounter it only a handful of times, if ever, in their...
09/11/2026

Rare disease is rare precisely because most healthcare providers encounter it only a handful of times, if ever, in their careers. That unfamiliarity can make an already difficult conversation with a family even harder, not because providers lack compassion, but because no one has walked them through what these families actually need to hear and feel.

Our speaker program is built to close that gap. We work with medical teams, hospital departments, and healthcare organizations to share practical tools for communicating with families navigating a rare, incurable neurological diagnosis, informed directly by families who have lived it.

If your team could use this kind of preparation, you can request a speaker at https://bbravefoundation.org/healthcare-professionals/request-a-b-brave-speaker/.

Joey Scaparotti's life is the reason B Brave exists. When his parents, Sara and Sam, created this foundation, they built...
09/09/2026

Joey Scaparotti's life is the reason B Brave exists. When his parents, Sara and Sam, created this foundation, they built it around a simple belief: what happened to their family shouldn't happen to another family without support standing beside them.

The Joey Bear Grant carries that belief forward. It provides $500 in direct support to families who have lost a child to a rare, incurable neurological disorder, funds a family can use for counseling, sibling bereavement support, memorial costs, or whatever matters most to them in that season. There's no fixed list, because grief doesn't follow one either.

If you know a family who could use this support, or want to honor Joey's memory by contributing, learn more at https://bbravefoundation.org/children-and-families/family-resources/.

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P. O Box 35294
Cleveland, OH
44135

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