Project 1 in 100

07/07/2026

There is still time to register for the Science, Simplified Webinar with HeartWorks this evening. Join us tonight to understand the science behind today's discoveries and how we connect them to the therapies of tomorrow.

Ever wonder how a skin sample can become heart cells? Or what it really means when we talk about regenerative medicine for congenital heart disease?

Join us for Science, Simplified, a virtual webinar designed to break down the science behind HeartWorks into clear, easy-to-understand language. No medical degree required. 💙

We'll explore the research, therapies, and technologies being developed for CHD, explain how they work, and answer your questions along the way.

Whether you're a heart parent, patient, supporter, or simply curious about the future of CHD care, this webinar is for you.

➡ Reserve your spot: https://donate.heartworksinc.org/sciencesimplified / link in bio

06/25/2026

We are excited to share this opportunity for you to learn more about the science at HeartWorks.

This webinar will explore key concepts behind HeartWorks' work, including regenerative medicine, stem cells, induced pluripotent stem cells (iPSCs), and how a simple skin sample can become heart cells in the lab.

Whether you're a heart family, supporter, healthcare professional, or simply curious about the future of CHD care, this session is designed to make complex science easier to understand. No scientific background is required.

Bring your questions and connect the science behind today's discoveries to the therapies of tomorrow.

Click here to register for this FREE webinar: https://donate.heartworksinc.org/sciencesimplified


HeartWorks

05/28/2026

The mental health side of CHD is so important to recognize and discuss. Open communication is essential to the health and wellness of those affected and the families who surround them.

You don’t need to navigate this alone. Connect with us if you have questions or if you would like to share a story you think would help the CHD community.

05/11/2026

May is Mental Health Awareness Month. For those living with CHD, mental health is heart health.

Sources: American Heart Association, JACC, BJSM

05/08/2026

"I needed to remind myself that I can do hard things. That I can sit with discomfort and keep going anyway. Working out is therapy in motion. It's showing up for myself on the days my mind feels heavy" -

Such incredible words from Meagan. Swipe to the next slide to see all her thoughts! Thank you for sharing, Meagan!

Let us know below - why do you workout? What are you moving through? How can we best support?

This mental health awareness month we are committed to increasing the stories and experiences of this entire community, supporting one another, and shattering any stigma. Mental health MATTERS!

mentalhealth chdawareness

04/25/2026

Thank you Dr. Fontan! How many Fontan patients/parents do we have here? Comment below and connect with others!

Thank you for sharing,

04/18/2026

600+ miles
3 countries
37 states

100 hours. One community.

Together, we turned movement into momentum, raising awareness for congenital heart disease across miles, states, and borders.🎈

04/17/2026

🚨 Event Alert! MD and DE families!!!

04/10/2026

As promised — (Marie-Jo) just dropped the science behind why movement matters for CHD hearts, and it’s a must-read for every CHD patient/family.

For those with Fontan circulation, the research is striking: the leg muscles literally do the work of the missing ventricle. Muscle loss isn’t just a fitness issue, it’s a predictor of hospitalization. And across hundreds of Fontan patients in exercise studies, the safety data is overwhelmingly reassuring.
But this isn’t just a Fontan story. Marie-Jo also breaks down research showing that for CHD patients across the spectrum — even those with simple, repaired defects — years of restriction and overprotection have taken a real toll on mental health. Studies show it’s not disease severity that predicts whether CHD kids stay active, it’s whether they believe they CAN. Self-efficacy. Confidence. The feeling that their body is something to trust, not fear. Movement builds that.

This isn’t wellness fluff. This is peer-reviewed research, translated into language we can actually understand. Swipe through for the highlights, then go read the full article — search “Between the Beats” on Substack. Read the whole thing.

And today, the 100th day of the year, we’re putting this science into action. 🫀🏃🚴‍♀️

The Move With Heart Virtual 5k is LIVE. You have 100 hours to complete a 5k in honor of the 1 in 100 born with CHD. Walk, run, ride, roll — however you move, it counts.

Join us on Strava → search “Project 1 in 100 Move With Heart” in Clubs, record your workout, and share it.
Free. Virtual. For every heart. Sponsored by .medical
Sign-up HERE: 🔗 project1in100.org/events