02/24/2026
Mental health challenges faced by people living with rare conditions remain widely misunderstood and under-researched. This track will focus on bringing these realities into focus and exploring how they can be better addressed.
For many rare diseases, mental health conditions are not only co-morbidities but can be core features of the disease experience, shaped by biological factors and compounded by psychological and social challenges. Sessions will explore the gaps in integrated care, from fragmented transitional pathways for young people with intellectual disabilities to the lack of structured neuropsychological assessment for adults. Drawing on emerging evidence and lived experience, discussions will examine gaps in research, definitions, biomarkers and trial design, as well as the profound impact of rare diseases on families and caregivers, who often face stress, isolation and limited support.
This track will provide a critical space to elevate mental health as a European policy priority, and to explore integrated approaches across care, research and social systems.
👉 Register & learn more: https://go.eurordis.org/register-in
