06/06/2026
This week, national media outlets have covered a story about that does NOT reflect the current medical understanding, lived experiences, and realities of people with Down syndrome and their families.
The believes outdated and inaccurate information can have profound consequences on medical care, policy, and public perception.
Trusted, accurate information for new and expecting families can be found in the Prenatal & Newborn Pamphlet: https://bit.ly/4aUSL44
People deserve access to current, evidence-based information when making important decisions. They also deserve the opportunity to hear directly from people with Down syndrome and families whose experiences reflect the remarkable progress that has been made in healthcare, education, employment, independence, and community inclusion.
Importantly, people with Down syndrome deserve to be seen, valued, and understood as individuals whose lives are defined by possibility, contribution, and human dignity—not by outdated assumptions or misconceptions.
Our national coalition members—, , the , and the —represent more than 250,000 people with Down syndrome and their families throughout the U.S., with a considerable international footprint.
Together we stand strong in our commitment to ensuring that every conversation about Down syndrome is guided by accurate information, current medical knowledge, lived experience, and respect for the dignity and potential of every person.
For additional information and resources on Down syndrome across the lifespan, visit: gigisplayhouse.org, globaldownsyndrome.org, ndsccenter.org, and ndss.org.
The Global Down Syndrome Foundation, the National Down Syndrome Congress, and the National Down Syndrome Society have teamed up to publish the third edition of the groundbreaking Prenatal & Newborn Down Syndrome Information Pamphlet, available in English, Spanish and Icelandic. The third edition
