Doin' It For Drew

Doin' It For Drew This page is dedicated to raising awareness of Cystic Fibrosis and our son Drew's journey with the disease. Drew was born with Cystic Fibrosis.

His mutations are deltaF508 and R560T.

It's been a while, but wanting to share that the Moores are moving on :)
05/25/2017

It's been a while, but wanting to share that the Moores are moving on :)

04/04/2017

I'm not okay with this (and you shouldn't be either)
A new blog post at http://66roses.com/

Our battle against Cystic Fibrosis

This year to support CF I am doing something a little different. I'm a believer in the power of the community, and want ...
04/04/2017

This year to support CF I am doing something a little different. I'm a believer in the power of the community, and want to use my family and friends to support Emily's Entourage. Emily inspires people and she inspired me. She started small, recognized success and is racing like hell to scale because her life depends on it. Emily's Entourage is a model for action and change that I believe will transform research in and beyond the CF community.
Rather than asking for straight donations, I'm hoping to contribute to her Charity Buzz online auction (https://www.charitybuzz.com/support/EmilysEntourage) by collecting time and experiences from people I know for people to bid on - you don't have to be a bidder, only asking who you know that might be willing to donate their time to a "Meet & Greet" or make the donation of an event similar to the ones attached.
Check out the bidding happening on lunch with some of our friends like Roni or Susannah. It doesn't matter where you live or what you have to offer. These meetings with a recognized and respected members of the community have historically raised significant interest and funds from bidders and we would be grateful to have your support. You can set the parameters for the donation (ie specific dates or locations, coffee/lunch/dinner, time constraints, etc).
Can you help? Who do you know? What can you offer? Thanks in advance for all of your help

Emily's Entourage is a 501(c)3 that raises funds and awareness to help cure CF. Recent breakthroughs are changing the face of CF, but unfortunately...

Introducing the CF Learning Network. Data coming soon!
01/01/2017

Introducing the CF Learning Network. Data coming soon!

The Cystic Fibrosis Foundation has been a driving force behind research on therapeutics to increase longevity. It has a well-developed nati...

12/16/2016

Money buys science and science saves lives. Emily's Entourage has my support, and I know they'd be grateful to have yours as well. Please consider a year-end donation to support this CF research that is so close to my heart ❤️

In the market for a new magazine, or have a renewal you'd be willing to make through our school website? Drew would love...
09/10/2016

In the market for a new magazine, or have a renewal you'd be willing to make through our school website? Drew would love your support!

Drew is participating in a magazine sale to earn money to support Immaculate Heart of Mary PTO - OH. To help him reach his goal, click on the link and shop at the personalized store he created. Thanks!

If you have a moment and appreciate my "patient activist" ways, kindly throw a vote in the hat for me under the patient ...
07/21/2016

If you have a moment and appreciate my "patient activist" ways, kindly throw a vote in the hat for me under the patient activist category ❤️

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Cincinnati, OH

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