Maurya Koduri Foundation

03/31/2026

A Full House SPG4: 2nd Annual Poker Night
A huge thank you to the Still Water Community and all our friends who joined us on March 28, 2026, for our Second Annual Poker Night Fundraiser.

Yash and I kicked off the evening with a heartfelt thank you to our players, followed by an update on our fight against SPG4, an ultra-rare neurodegenerative disease. The room was moved by a powerful two-minute video that Maurya made, which perfectly captured the reality of SPG4 and the cutting-edge research currently underway.

The Winners:
The competition was fierce but friendly! After a night of strategic plays, we crowned our top three tournament winners. We kept the momentum going with a lively raffle that saw many of our guests taking home some incredible prizes.

Gratitude:
This event wouldn’t have been possible without the generosity of our community. A special thank you to:

Our Event Sponsors: and Edward Jones

Our Raffle Sponsors: For the exciting items that kept the energy high. Oberweis Sharko's Bbq Allstate Entourage 'srestaurant Nothing Bundt Cakes

Your support brings us one step closer to SPG4 cure. We can’t wait to see you all again next year! Vamsi Koduri

03/26/2026

2 days to go...If you haven't RSVPed yet, please do so. Cash Prizes for Top winners, Food is included and many raffle prizes!! 100% of Revenue donated to www.mauryakoduri.org

Hi everyone! We are excited to invite you to the Maurya Koduri Foundation's 2nd Annual Poker Night on Saturday, March 28th.

Last year was a milestone for us—thanks to your incredible support, we donated $50,000 toward SPG4 research. This progress is only possible when community support meets scientific investment. We are fighting every day to improve the lives of children like our son who are battling this ultra-rare disease, Neurodegenerative disease SPG4 and we can’t do it without you.

When: Saturday, March 28th, 2026 @ 5:00 PM

Where: StillWater Club House

Please check out the flyer below for details and help us spread the word by sharing this post. Let’s play for a cure! Thank you!

03/11/2026

My son- Maurya Koduri' s Poetry!! I couldn't stop sharing!! Poster Designed by him using Gemini!

03/11/2026

Imagined and Designed (with Gemini) by my son Maurya Koduri who is afflicted with Ultra-rare Neuro Degenrateive disease SPG4. www.mauryakoduri.org

03/04/2026

Thank you to all our sponsors and raffle prizes sponsors for the 2nd Annual Poker Night at Still Water Clubhouse on March 28th, 2026, 5 PM onwards. This is a fundraising event for an ultra rare neurodegenerative disease SPG4. Please reach out via email or text to register. Lot of raffle prizes!! Please attend to support the cause. Thank you!!

02/28/2026

Today is Rare Disease Day. It has been nearly seven years since our son, Maurya Koduri, was diagnosed with SPG4, an ultra-rare disease.

Since that day, our mission has been clear: raise global awareness and fuel the scientific research needed to find a cure. Every dollar invested in science brings us one step closer to changing the lives of Maurya and many other children facing this diagnosis.

Scientific progress doesn't happen in a vacuum—it happens because of community support. If you’re able, please consider joining our mission.

Support the research: www.mauryakoduri.org

Share this post to help us spread the word!

P.S. This incredible image was fully envisioned and created by Maurya himself using AI!

02/27/2026

Hi everyone! We are excited to invite you to the Maurya Koduri Foundation's 2nd Annual Poker Night on Saturday, March 28th.

Last year was a milestone for us—thanks to your incredible support, we donated $50,000 toward SPG4 research. This progress is only possible when community support meets scientific investment. We are fighting every day to improve the lives of children like our son who are battling this ultra-rare disease, Neurodegenerative disease SPG4 and we can’t do it without you.

When: Saturday, March 28th, 2026 @ 5:00 PM

Where: StillWater Club House

Please check out the flyer below for details and help us spread the word by sharing this post. Let’s play for a cure! Thank you!

02/06/2026

Maurya is already wheelchair bound, but the progressive nature of SPG4—an ultra-rare disease—is rapidly affecting his remaining mobility. After exhausting every pediatric physical and occupational therapy option available, we are turning to a new frontier: G-EO Robot-assisted Gait Therapy from REHA Technology at . Despite these extreme challenges, Maurya’s resilience, curiosity, and infectious smile and intelligence are what keep us moving forward!

12/17/2025

The SPG4 community has reached a significant milestone, and we owe this milestone to a powerful network of support. We offer our sincere thanks to the visionary researchers at Drexel University College of Medicine and UMass Chan Medical School for their tireless work and the publication of this pivotal study. We also want to recognize our fellow fundraising families; our shared commitment is the engine driving this progress. To our donors and advocates: thank you for believing in this vision. Together, we have moved one step closer to a future without SPG4. Here is the link for National Library of Medicine Publication- https://pubmed.ncbi.nlm.nih.gov/41311060/
and here is the link for the Drexel publication- https://drexel.edu/.../Breakthrough-on-gene-therapy-for... Maurya Koduri Foundation

12/12/2025

We are happy to announce that Maurya Koduri is enrolled into the Spastic Paraplegia Centers of Excellence Research Network (SPCERN) Natural History Study Pilot at the 's Hospital Medical Center on December 11, 2025. Maurya is the first patient in NORTH AMERICA for this pilot study. With this study, researchers will find out more about the signs and symptoms and HSP in its early stages with its progression. This information will help facilitate early diagnosis, enable counseling and anticipatory guidance to families and help develop a TREATMENT for HSP in the future. This study also aims to support critical research infrastructure for collaborative high-quality research on HSP in North America and beyond. So thankful to the principal investigator Dr.Donald Gilbert and Clinical Research Coordinator Karlee Migneault. Please consider supporting our foundation that is dedicated for RESEARCH and CURE. Thank you!

11/11/2025

November 11, 2025 - Maurya Koduri Foundation today announced new funding to ensure the preservation of a rare, naturally occurring SPG4 cattle model housed at Hillcrest Farm. This unique large-animal herd is an essential resource, providing insights into SPG4 pathology that cannot be replicated in smaller models such as mice. By preserving this model, the Foundation keeps open a vital research pathway necessary for scientists to refine and test potential treatments.

Maurya Koduri Foundation is proud to collaborate with The Lilly and Blair Foundation and Cure SPG4 Foundation in this crucial effort for SPG4 research. Your support ensures progress continues. Please consider donating at www.mauryakoduri.org. Thank you!