Maurya Koduri Foundation

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Maurya Koduri Foundation

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A Non Profit Organization to increase awareness and fund research to find a CURE for an Ultra Rare Progressive Neurodegenerative Disease HSP SPG4

10/17/2026

Today, marks World HSP & PLS Awareness Day—a day dedicated to standing alongside families, advocates, researchers, and organizations worldwide in the fight against Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS).

For the Maurya Koduri Foundation, this day hits close to home. Childhood-onset SPG4 is extremely rare, progressive, and currently without an approved treatment. But for us, raising awareness is just the first step.

Over the past year, we have continued to unite families and leading scientists across the globe, funding critical research and advancing multiple therapeutic avenues. What once felt like an insurmountable obstacle has grown into a powerful, coordinated movement to transform the future for children affected by SPG4.

Awareness gives us a voice. Research gives us hope. And for these children, time is everything.

Discover how we are driving change and how you can support our mission at www.mauryakoduri.org

09/23/2026

Dear Praveen and Family- Thank you so much for visiting us and for showing such incredible support for our mission at the Maurya Koduri Foundation. We are deeply grateful for your generosity and your donation toward SPG4 research. Raising awareness and funding for an ultra-rare progressive neurodegenerative disease SPG4 is a cause close to our hearts, and having your support truly inspires us to do more!!

More power to you and your family!!

09/02/2026

This is exactly why we do what we do. At the Maurya Koduri Foundation, we are dedicated to raising awareness and securing funding to fight SPG4- an ultra-rare, progressive neurodegenerative disease. SPG4 needs humanity’s help. If you’d like to join our mission, please donate at www.mauryakoduri.org Thank you!

08/29/2026

So proud of our daughter Disha as she kicked off Maurya Koduri Foundation 's 5K Run/Walk/Roll Event with her welcome speech on August 23rd in the presence of Mayor and his wife and ~100 supporters Scott Wehrli for Naperville Please also listen to Maurya's powerful speech that he has written but used AI voice because he has speech challenges. Thank you!

08/25/2026

What an incredible turnout for Maurya Koduri Foundation's 3rd Annual 5K Run/Walk/Roll on August 23! Sunlit skies welcomed local participants, while supporters across the globe stepped up for our largest, most successful fundraiser to date.

This year’s 5K was truly special as a global event—from Houston, California, Arizona, and North Carolina to India, Australia, and across America, people everywhere united behind our mission.

We were honored to have Naperville Scott Wehrli and his wife join us in person to support Maurya, our foundation, and the drive toward a cure for SPG4.

As proud parents, watching the morning unfold was unforgettable:
- Disha kicked off the event with a wonderful welcome speech.
-Maurya delivered his speech using his AI assistant, inspiring everyone present.
- Yashodha Sunkara welcomed Mayor Wehrli, his wife, and our extraordinary support crew, while providing an overview of SPG4 and its progression.
- Vamsi Koduri shared a crucial update on our research milestones, current funding, and how the community can continue to take action.

With renewed determination, we are more motivated than ever to push research forward until we find a cure for SPG4. Every child facing this ultra rare disease deserves a brighter, healthier future. We need your support. Please follow, like, share, educate yourself and donate. www.mauryakoduri.org Thank you!

08/21/2026

We are honored to announce that Mayor of Naperville Scott Wehrli will be joining us as the Chief Guest at the Maurya Koduri Foundation's 3rd Annual 5K Run/Walk/Roll/ Virtual Event on Sunday, August 23, 2026 at Waubonsie Lake Park Trail, Aurora, IL Mayor Wehrli will officially flag off the event to launch the 5K event.

Please show your support for the ultra rare progressive Neurodegenerative disease SPG4 community by registering today. We look forward to seeing you there! Thank you!

08/18/2026

Many thanks to our BRONZE sponsor Alloy Personal Training Fox Valley We appreciate your support for SPG4 community. Thank you for supporting the research for a progressive ultra rare neurodegenerative disease SPG4. They will be setting up a booth at the event. Please make sure to check them out. Vamsi Koduri Yashodha Sunkara

08/15/2026

The burden of drug development should never fall on grieving parents because an ultra-rare disease like SPG4 lacks commercial viability. Families should not have to raise hundreds of thousands or millions navigate intricate regulatory landscapes, and finally face agonizing choices regarding experimental treatments. However, we refuse to sit idle. We step up to pioneer these solutions not just for Maurya, but for the 136 children living with ultra Rare Disease SPG4 today and others who will follow. Please join our 5K event on Sunday, August 23 to support- Thank you! https://www.mauryakoduri.org/events-1/3rd-annual-charity-for-rarity-5k-maurya-koduri-foundation-1

08/13/2026

Huge thank you to our 'Double Platinum Sponsor for our supporting Maurya Koduri Foundation's 5K Event- Please register here and support! Thank you! https://www.mauryakoduri.org/events-1/3rd-annual-charity-for-rarity-5k-maurya-koduri-foundation-1

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Cincinnati, OH
45229

Website

http://www.mauryakoduri.org/

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