Pulmonary Fibrosis Foundation

Pulmonary Fibrosis Foundation Our ultimate goal is to find a cure for pulmonary fibrosis. This creates a collaborative environment that will help us achieve many of our goals.

The Pulmonary Fibrosis Foundation is committed to accelerating research, empowering our community, and transforming care so that everyone with pulmonary fibrosis can live a better life. The mission of the Pulmonary Fibrosis Foundation is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis. Until this goal is achieved, the PFF is committed to advancing impro

ved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and health care providers. Our signature programs include:
PFF Care Center Network
PFF Registry
PFF Help Center
PFF Ambassador Program
An international network of support groups and online communities
The PFF Summit
Comprehensive disease education materials

Our expert Medical Advisory Board and the biennial PFF Summit allow us to maintain an ongoing dialogue with physicians, researchers, industry representatives, and the patient community. Our peer-reviewed research program supports projects that improve understanding of pulmonary fibrosis and will lead to successful therapies. We have developed significant relationships with industry partners and upheld our position as the honest broker to inform those affected by pulmonary fibrosis of important scientific breakthroughs.

We are proud to recognize the Hales Family Foundation for their generous partnership as a Platinum Sponsor of the PFF Wa...
09/02/2026

We are proud to recognize the Hales Family Foundation for their generous partnership as a Platinum Sponsor of the PFF Walk - NYC Metro and for their longtime support of the Pulmonary Fibrosis Foundation.

Your dedication makes the work of the PFF possible. Thank you, Hales Family Foundation!

09/02/2026

Pulmonary fibrosis explained, with Kathryn Fenwick DNP, FNP-BC

Today’s Portrait of PF comes from Bill.===My name is Bill Ashley, and I’m living with idiopathic pulmonary fibrosis. A f...
09/02/2026

Today’s Portrait of PF comes from Bill.
===
My name is Bill Ashley, and I’m living with idiopathic pulmonary fibrosis. A few years ago, I accomplished the impossible and completed a 106-mile journey walking through the Florida Keys to raise money and awareness for the Pulmonary Fibrosis Foundation. This is my story.

The day I learned of my diagnosis will forever be ingrained in my mind. What started as a routine physical quickly became a life-changing moment for me and my family. My wife, Tiffanie, and I were in shock when my doctors told me that I had IPF and then stated that, at most, I would have 18 to 24 months left to live. Before leaving the room, my doctor informed me that I should go home and get my affairs in order.

Our car ride home from this appointment was filled with tears as we were told that there was no cure for my diagnosis, only treatments that may slow its progression. I made an appointment with another doctor for a second opinion; however, there was a two-week wait. Those two weeks of waiting for my second opinion were the longest days of my life. The mental pressure this disease places on a person is incredibly difficult. You can feel like your only option is to give up and assume you are dying.

My second opinion was at the Mayo Clinic in Rochester, Minnesota. While my diagnosis was confirmed, the staff approached the care plan differently. They urged me to change my mindset and suggested that I start considering how I was going to manage my disease. After that appointment, I gained a new outlook. I decided to spend the rest of my life living with IPF instead of wondering when I would die from it.

Thankfully, my team at the Mayo Clinic connected me to the Pulmonary Fibrosis Foundation. My entire relationship with my diagnosis changed once I became part of the PFF. I started attending support group meetings and met people with the same experiences as myself. Knowing that I was not alone in this journey is very helpful.

That summer, I was speaking with one of my colleagues about a yearly walk he does from Key Largo to Key West. He completed this a few times and raised money for different charities. After I told him about my involvement with the Pulmonary Fibrosis Foundation, we thought this could be a perfect way for me to give back to the organization.

I contacted the PFF and worked with them on organizing my fundraiser, “The Keys for a Cure.” In July, I began training for my 106-mile journey along the Florida Keys. Six months later on January 5th, I started my journey, pushing myself to walk seven miles per day while spreading information about pulmonary fibrosis and the Pulmonary Fibrosis Foundation to everyone I met along my route. I walked the entire 106-mile journey over a two-week period, and on January 17th, I crossed mile marker 0 in Key West. Throughout this experience, I raised over $45,000 while meeting countless new people and raising awareness about the disease.

I believe in the Pulmonary Fibrosis Foundation. They are dedicated people driving real change for all of us affected by PF.

Day 2 of posting a fact every single day during Pulmonary Fibrosis Awareness Month 💙💚
09/02/2026

Day 2 of posting a fact every single day during Pulmonary Fibrosis Awareness Month 💙💚

What comes to mind? Tell us in the comments, and we might share your responses with the community later this month as we...
09/02/2026

What comes to mind? Tell us in the comments, and we might share your responses with the community later this month as we celebrate Pulmonary Fibrosis Awareness Month and encourage our community to do it "Today, not someday" 💙💚

Last weekend was filled with community connection, inspiring walkers and teams, and unforgettable moments! We’re celebra...
09/01/2026

Last weekend was filled with community connection, inspiring walkers and teams, and unforgettable moments!

We’re celebrating an amazing $157,784 and counting raised at the PFF Walk - NYC Metro. To everyone who walked, fundraised, donated, and helped spread the word — thank you for being a part of it! 💙

Join us at an upcoming PFF Walk in a city near you or virtually on National Walk Day! 👟

09/01/2026

LANDMARKS SHINING BLUE FOR PF AWARENESS
💙✨💙✨
Tonight, all of the locations mentioned below will be shining blue as a part of our long-running "BlueUp4PF" campaign, where buildings, landmarks, and structures all across the United States light up in recognition of PFAM.

Is there a building or structure in your community that will be shining blue? If so, drop it in the comments or DM us to let us know, and we'll share a picture!

Tonight's BlueUp4PF schedule:

Sept. 1-30 – Blue Black Square, West Hartford, CT

Sept. 1-30 – City Hall and Police Station, Leominster, MA

Sept. 1-30 – Delamar West Hartford Hotel, West Hartford, CT

Sept. 1-30 – Henley Street Bridge, Knoxville, TN

Sept. 1-30 – Delaware Legislative Hall, Dover, DE

Sept. 1-30 – Hilton Garden Inn Portland Downtown Waterfront, Portland, ME

Sept. 1-30 – Manatee County Administration Building, Bradenton, FL

Sept. 1-30 – Market Street Bridge, Steubenville, OH and Follansbee, WV

Sept. 1-30 – Sakonnet River Bridge, Portsmouth, RI

Sept. 1-30 – St. Joseph’s Hospital, Phoenix, AZ

Sept. 1-30 – Tryon Riverfront Inn New Bern, New Bern, NC

Sept. 1-15 – Boehringer Ingelheim Pharmaceuticals, Inc., Ridgefield, CT

Sept. 1-15 – Bristol Myers Squibb, Lawrence Township, NJ

Sept 1-9 – City Hall, Boston, MA

Sept. 1-4 Eloy Water Tower, Eloy, AZ

Sept. 1-3 – Baltimore World Trade Center, Baltimore, MD

Sept. 1-3 – Market Street Bridge, Steubenville, OH

Sept. 1 – City of Greensboro Town Hall, Greensboro NC

Sept. 1 – Jefferson Street Viaduct, Ottumwa, IA

Sept. 1 – Zion’s Bank, Boise, ID

Sept. 1 – Visalia Rawhide, Visalia, CA

Today’s Portrait of PF is from Jesse Mata, who wrote this beautiful poem about his journey with a lung transplant. This ...
09/01/2026

Today’s Portrait of PF is from Jesse Mata, who wrote this beautiful poem about his journey with a lung transplant. This morning, we posted a video of Jesse reciting this poem. You can view it in our reels tab. Thank you so much Jesse for writing and sharing this moving poem!

💙💚

My Scars Tell a Story

My scars tell a story few can see,
A map of the road that was given to me.
They speak of nights filled with fear and prayer,
And of loving hands that carried me there.
My scars are not signs of what I lost,
But reminders of life at a sacred cost.
They tell of lungs once tired and worn,
And of the day a new life was born.
They tell of waiting for a call to come,
Of whispered prayers when my strength was gone.
They tell of courage when I was afraid,
And of the miracle that God had made.
My scars tell of a generous soul,
Whose final gift helped make me whole.
A stranger’s love now breathes in me,
A gift of grace beyond what eyes can see.
They tell of first steps taken slow,
Of learning once again to breathe and grow.
Of every sunrise that I now embrace,
And every breath received through God’s great grace.
I no longer hide the marks I wear.
They are my testimony, my answered prayer.
For these scars are not my shame to conceal—
They are proof that miracles are real.
So when you see the scars upon my chest,
Know that I have been abundantly blessed.
My scars tell a story of hope reborn—
A life once fading, now beautifully restored.

Day 1 of posting a fact every single day during Pulmonary Fibrosis Awareness Month 💙💚
09/01/2026

Day 1 of posting a fact every single day during Pulmonary Fibrosis Awareness Month 💙💚

Address

223 W Jackson Boulevard, Suite 350
Chicago, IL
60606

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+18448255733

Website

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