Pulmonary Fibrosis Foundation

05/29/2026

Stiff lungs explained by Dr. Amy Hajari Case 🫁

In this clip from Pulmonary Fibroiss 101, which was filmed at PFF Summit 2025, our Chief Medical Officer Dr. Case uses the example of a sponge to help you understand scar tissue in the lungs.

05/29/2026

Support groups can be an incredibly valuable resource for people living with PF or ILD. 💙💚

To find a group near you, tap the link below!
https://www.pulmonaryfibrosis.org/patients-caregivers/medical-and-support-resources/find-a-support-group

05/29/2026

🚶‍♀️ Every step matters. Join the PFF Walk today! 🚶‍♀️

You can sign up at PFFWalk.org to join us in a city near you or virtually on National Walk Day. 💙

05/28/2026

Yes, you can exercise with interstitial lung disease 💪

In this article, a few ILD experts (including our own Chief Medical Officer, Dr. Amy Hajari Case!) talk about the best ways you can work out while living with PF and ILD.

🔹Pulmonary rehab
🔹Aerobic exercise
🔹Strength training
🔹Stretching
🔹Breathing exercise
🔹Balance exercise

Read the article here! ⬇️

Not sure how to exercise with IPF? This guide lists workouts to consider, pacing strategies, and when to seek medical help.

05/27/2026

Pulmonary fibrosis made simple with Dr. Amy Hajari Case.

In this short clip from the full "Pulmonary fibrosis 101" presentation at last November's PFF Summit conference, Dr. Case explained the basics of interstitial lung disease. Watch the full, 90-minute presentation over on our YouTube channel.

05/26/2026

Donna is right about research studies. Without research studies, new treatments wouldn’t be available. Thanks to the thousands of people who have joined studies, new treatments have been approved, and now more and more patients are living longer, healthier lives. And, like Donna, many people get to watch their children and grandchildren grow up. 🫂

If you’ve joined a research study, we want to hear from you! Send us a short story along with your photo, and we’ll share it on our social media page so that you can help inspire people to join studies. We’re not asking you to get on stage. We just want an email 💙✉️💚

Get started here: https://www.pulmonaryfibrosis.org/get-involved/volunteer/my-research-study-story

05/24/2026

🎉🎉 In case you missed it! 🎉🎉

We are so grateful for the more than 3,000 people who have enrolled in for the PFF Community Registry to give researchers the data they need.

The PFF Community Registry is an online research study where you complete a series of in-depth surveys. Your answers are then sent to researchers for analysis. The more people who join, the better the PFF Registry dataset will be.

Read our full press release about this milestone and sign up at https://www.pulmonaryfibrosis.org/get-involved/volunteer/pff-community-registry

05/23/2026

What does interstitial lung disease look like? In this clip from Pulmonary Fibrosis 101, which was filmed at PFF Summit last November, Dr. Amy Hajari Case explains the difference between these two charts. Watch the full video on YouTube!

05/22/2026

Maggie knows exactly what her dad and her family went through. Now, she wants your story.

The PFF Community Registry is an online research study where you complete a series of in-depth surveys. Your answers are then sent to researchers for analysis. The more people who join, the better the PFF Registry dataset will be. Researchers are using this data to uncover a new wealth of knowledge about PF and ILD.

Learn more and sign up at https://www.pulmonaryfibrosis.org/get-involved/volunteer/pff-community-registry

05/21/2026

🥦 Some prescriptions can be found in the grocery store. Others are found at your local park’s walking trail. Some are even right at home, like starting that new hobby you’ve been putting off.

In this full-length PFF Summit 2025 sessions, the experts are talking about three of the most common non-pharmaceutical treatments for PF and ILD, which often include nutrition, exercise, and mental health strategies. Watch now to learn all about how these options might work for you! https://youtu.be/9ELFyMp9GTc

05/20/2026

💪 It really can help. Pulmonary fibrosis and interstitial lung disease can make it difficult to move around and do the simple, everyday tasks — like walking, eating, or showering. But with pulmonary rehab, you can improve your ability to get your daily tasks done.

This is a clip from Pulmonary Fibrosis 101, which was filmed at PFF Summit last November! The full-length session is on YouTube and includes more than an hour of in-depth information about pulmonary fibrosis.