Pulmonary Fibrosis Foundation

Pulmonary Fibrosis Foundation The mission of the Pulmonary Fibrosis Foundation is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis.

Until this goal is achieved, the PFF is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and health care providers. Our signature programs include:
PFF Care Center Network
PFF Registry
PFF Help Center
PFF Ambassador Program
An international network of support groups and online communities
The

PFF Summit
Comprehensive disease education materials

Our expert Medical Advisory Board and the biennial PFF Summit allow us to maintain an ongoing dialogue with physicians, researchers, industry representatives, and the patient community. This creates a collaborative environment that will help us achieve many of our goals. Our peer-reviewed research program supports projects that improve understanding of pulmonary fibrosis and will lead to successful therapies. We have developed significant relationships with industry partners and upheld our position as the honest broker to inform those affected by pulmonary fibrosis of important scientific breakthroughs.

Get outside for a good cause! With the start of summer, there’s no better time to consider starting a fundraiser for the...
06/18/2026

Get outside for a good cause! With the start of summer, there’s no better time to consider starting a fundraiser for the PF community.

Everyone has their “why.” For some, it’s about honoring someone they love.
For others, it’s about raising awareness about the disease. For many, it’s simply about doing something positive for a cause that affects so many in our community. That’s what Team PFF is all about. It’s about choosing something meaningful to you and dedicating it to pulmonary fibrosis. An example of an outstanding individual who turned what they love into a fundraiser for the PFF last summer is Henry Allen, who hiked the Grand Canyon and raised $3,105.

Walk or run. Host a cookout or an outdoor movie night. Or create something entirely your own. Whatever you choose — do it for the PFF. Every fundraiser helps accelerate research, empower our community, and transform care so that everyone with pulmonary fibrosis can live a better life. This summer, give something back for the gift of breath.

Announcing Let’s Talk Cough! On October 28, 2026, join the global chronic cough community to share YOUR expertise on wha...
06/18/2026

Announcing Let’s Talk Cough! On October 28, 2026, join the global chronic cough community to share YOUR expertise on what it’s really like to live with chronic cough. Learn more at letstalkcough.org.

Sharing your lived experience as part of the Let’s Talk Cough meeting will inform the FDA, life science companies, researchers, and more to help shape new medical therapies and approaches to treating chronic cough. Let’s Talk Cough will help illuminate the need for targeted treatment approaches and care pathways for chronic cough.

Save the date and sign up to stay informed at letstalkcough.org.

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Get outside for a good cause! With the start of summer, there’s no better time to consider starting a fundraiser for the...
06/17/2026

Get outside for a good cause! With the start of summer, there’s no better time to consider starting a fundraiser for the PF community.

Everyone has their “why.” For some, it’s about honoring someone they love.
For others, it’s about raising awareness about the disease. For many, it’s simply about doing something positive for a cause that affects so many in our community. That’s what Team PFF is all about. It’s about choosing something meaningful to you and dedicating it to pulmonary fibrosis. James and Luke are examples of outstanding individuals who turned what they love into a fundraiser for the PFF by running a lemonade stand, which raised $328.10 last summer.

Walk or run. Host a cookout or an outdoor movie night. Or create something entirely your own. Whatever you choose — do it for the PFF. Every fundraiser helps accelerate research, empower our community, and transform care so that everyone with pulmonary fibrosis can live a better life. This summer, give something back for the gift of breath.

IPF research is currently underway to find potential new treatments. And we want to tell you all about it! Join us for t...
06/17/2026

IPF research is currently underway to find potential new treatments. And we want to tell you all about it! Join us for the FREE “Clinical Trial Innovation Series” on June 23. Everyone in the PF and ILD community is welcome to attend.

The presentation will include three main topics:

🔹 Boehringer Ingelheim will speak about a phase 2 study to find out if a medicine called BI 765423 can improve lung function in people living with idiopathic pulmonary fibrosis.

🔹 MannKind will speak about two studies looking at nintedanib inhalation powder (MNKD-201) for people living with idiopathic pulmonary fibrosis, a phase 1b study and a phase 2 global study.

🔹 Trevi Therapeutics will speak about a phase 3 study for chronic cough in people living with idiopathic pulmonary fibrosis.

❌ Can’t make it? Register anyway and we’ll send you the recording.

Looking for a speaker for your upcoming event? Book a PFF Ambassador! They’re available to speak at your support group m...
06/17/2026

Looking for a speaker for your upcoming event? Book a PFF Ambassador! They’re available to speak at your support group meetings, educational events, fundraisers, conferences, and other community programs. They share their personal experiences with pulmonary fibrosis and interstitial lung disease to educate, inspire, and raise awareness.

Is it true? 🤔 There are a lot of misconceptions about pulmonary fibrosis and interstitial lung disease on the web. Not e...
06/16/2026

Is it true? 🤔
There are a lot of misconceptions about pulmonary fibrosis and interstitial lung disease on the web. Not everything you read is true. In this full-length webinar, Jenny Williams is debunking myths and talking about the REAL facts when it comes to ILD and PF!

06/15/2026

🤖💊 Can AI speed ILD drug discovery?

In our newest webinar, “The Digital Doctor,” Dr. Manoj Maddali talks about AI and interstitial lung disease. He talks about the good, the bad, and even the ugly sides of AI when it comes to all things pulmonary fibrosis. 🤖

Every mile she ran made a difference. In honor of her father, who she lost to IPF, Breada ran 26 miles in the NYC Marath...
06/14/2026

Every mile she ran made a difference. In honor of her father, who she lost to IPF, Breada ran 26 miles in the NYC Marathon. 💙💚

You don’t have to run a marathon — just take that first step. Like Breada, you can turn your passion into a positive impact! You can support the pulmonary fibrosis and interstitial lung disease community by hosting events, taking on challenges, or celebrating milestones. However you choose to give back, you'll be helping to advance research, education, and support. Ready to get started? Launch your fundraiser today through our program, Team PFF!

More than one million Americans rely on supplemental oxygen, but too many people struggle to access the type that doctor...
06/13/2026

More than one million Americans rely on supplemental oxygen, but too many people struggle to access the type that doctors prescribe. Linda says that it's the difference between staying home and joining your family, and between merely getting by and truly living.

Want to learn all about these studies? Part 2 of the Clinical Trial Innovation Series is now on YouTube! Filmed at PFF ...
06/12/2026

Want to learn all about these studies? Part 2 of the Clinical Trial Innovation Series is now on YouTube! Filmed at PFF Summit 2025 last November, tune in as the experts talk about these three exciting research studies.

Address

223 W Jackson Boulevard, Suite 350
Chicago, IL
60606

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+18448255733

Website

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