Pulmonary Fibrosis Foundation

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Pulmonary Fibrosis Foundation Our ultimate goal is to find a cure for pulmonary fibrosis. This creates a collaborative environment that will help us achieve many of our goals.

The Pulmonary Fibrosis Foundation is committed to accelerating research, empowering our community, and transforming care so that everyone with pulmonary fibrosis can live a better life. The mission of the Pulmonary Fibrosis Foundation is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis. Until this goal is achieved, the PFF is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and health care providers. Our signature programs include:
PFF Care Center Network
PFF Registry
PFF Help Center
PFF Ambassador Program
An international network of support groups and online communities
The PFF Summit
Comprehensive disease education materials

Our expert Medical Advisory Board and the biennial PFF Summit allow us to maintain an ongoing dialogue with physicians, researchers, industry representatives, and the patient community. Our peer-reviewed research program supports projects that improve understanding of pulmonary fibrosis and will lead to successful therapies. We have developed significant relationships with industry partners and upheld our position as the honest broker to inform those affected by pulmonary fibrosis of important scientific breakthroughs.

Interested in starting a pulmonary fibrosis (PF) or interstitial lung disease (ILD) support group? The Pulmonary Fibrosi...
10/19/2026

Interested in starting a pulmonary fibrosis (PF) or interstitial lung disease (ILD) support group? The Pulmonary Fibrosis Foundation is here to help with resources and guidance to get started!

Thank you to our PFF Walk - Washington, D.C. sponsors! 👏 Your partnership helps us make a lasting impact in the lives of...
10/18/2026

Thank you to our PFF Walk - Washington, D.C. sponsors! 👏

Your partnership helps us make a lasting impact in the lives of those affected by pulmonary fibrosis (PF) and interstitial lung disease (ILD). Together, we're accelerating research, empowering our community, and transforming care so that everyone with PF and ILD can live a better life. 💙

"I have a deeply personal connection to pulmonary fibrosis. For eight years, my father fought this disease and through ...
10/17/2026

"I have a deeply personal connection to pulmonary fibrosis. For eight years, my father fought this disease and through it all he remained the foundation of our family — a teacher, friend, scholar, and coach to so many.

I fundraise for the Pulmonary Fibrosis Foundation in his honor to support education, awareness, research, and the search for a cure, because I know firsthand how meaningful more time can be. His fight taught me to never quit, keep moving forward, and figure things out no matter how difficult the road becomes.

Running in his name and meeting my wife were the two things that helped me find real peace. Running gave me a way to turn grief into purpose, carry his strength with me, and continue his fight for other families facing this disease."

💙💚 Thank you, Mark Garofalo for sharing your story and being part of Team PFF!

Team PFF is the Pulmonary Fibrosis Foundation's third-party event fundraising program. Members of Team PFF are passionate community members who actively fundraise, raise awareness, and host their own events. By creating your own fundraiser for the PFF, you can help accelerate research, empower our community, and transform care so that everyone with pulmonary fibrosis can live a better life.

We’re representing the PF and ILD community at CHEST! This annual conference is a gathering of thousands of healthcare ...
10/17/2026

We’re representing the PF and ILD community at CHEST! This annual conference is a gathering of thousands of healthcare providers to learn the latest insights in pulmonary, critical care, and sleep medicine from globally recognized leaders.

Next week, visit us at booth 1147 to say hello to our staff and to learn about our free resources.

At CHEST, we’ll be:
🔹 Presenting posters on the PFF Care Center Network and PFF Community Registry
🔹 Networking with CHEST attendees to tell them about the PFF
🔹 Attending sessions

We can’t wait for another exciting year at CHEST!

Today, let's talk about mold and ILD 🍄😷 Exposure to mold can lead to this type of interstitial lung disease. Swipe tho...
10/16/2026

Today, let's talk about mold and ILD 🍄😷 Exposure to mold can lead to this type of interstitial lung disease. Swipe though the photos to read about causes, symptoms, and treatment options.

This is just one of our 23 free fact sheets. Join us every Friday right here on Facebook for Fact Sheet Friday! Each Friday, we'll post one of our ENTIRE Fact Sheets so you can read it right here.

10/15/2026

Today is World Chronic Cough Day. If you want to see Dr. Kershaw's full presentation and learn about how to manage your cough, check out the full length session, "Dealing with the Cough," on our YouTube channel!

10/15/2026

5 strategies doctors use to treat cough 🗣️

Today is World Chronic Cough Day. If you want to see Dr. Kershaw's full presentation and learn about how to manage your cough, check out the full length session, "Dealing with the Cough," on our YouTube channel!

Today is World Chronic Cough Day. We at the PFF have joined with The Asthma and Allergy Foundation of America (AAFA), C...
10/15/2026

Today is World Chronic Cough Day. We at the PFF have joined with The Asthma and Allergy Foundation of America (AAFA), COPD Foundation, and the Global Allergy & Airways Patient Platform (GAAPP) to mark October 15th as a day to raise awareness of chronic cough and its impact on daily life.

This initiative aims to fully describe the impact of chronic cough on the lives of those affected across many conditions, such as PF or ILD, their current management strategies, unmet medical needs, and treatment benefits that matter most to them, to inform the development of new therapies.

The 2026 theme, “Let’s Talk Cough,” invites people living with chronic cough to share their experiences and be heard. This year’s messages highlight that a cough lasting more than eight weeks in adults can be a condition in its own right, with effects that reach far beyond the cough itself. The campaign encourages people to seek medical advice, talk openly about how chronic cough affects them, and help improve recognition, care and research.

On October 28, 2026, the Let’s Talk Cough initiative will culminate in a hybrid, externally-led patient-focused drug development (EL-PFDD) meeting, conducted in parallel with the U.S. Food and Drug Administration’s (FDA) PFDD initiative. The meeting will be streamed live, bringing members of the global chronic cough community together to share their experiences and perspectives. A “Voice of the Patient” report will summarize insights gathered during the Let’s Talk Cough meeting and throughout the planning process, creating an invaluable resource for researchers, life science companies, regulators, healthcare professionals, members of the chronic cough community, and others.

Do you have something to say about your experience dealing with the cough? Tell your cough story in the comments below.

Address

223 W Jackson Boulevard, Suite 350
Chicago, IL
60606

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+18448255733

Website

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