Foundation for Sarcoidosis Research

07/31/2026

Hello FSR participants,
We hope you are all enjoying your summer thus far. We would like to inform you of our next great topic. This will be an experiential session, focusing on coping with the challenges of living with sarcoidosis with self-compassion. We will be guided through breathing, deep relaxation and guided imagery. These practices can be effective tools to reduce stress, pain and support emotional regulation- all essential in coping with chronic illness. We hope to see you there!

Speaker: Nancy O'Brien, CYT
Date: Wednesday, August 5th, 2026
Time: 6:30 pm - 7:30 pm (EST)
Location: Virtual

https://loom.ly/8jiMZeE

07/29/2026

Tate Basildon has been through it all. And he is still going through it. Pulmonary and cardiac sarcoidosis have invaded his life. He takes prednisone and suffers. Yet he says he wakes up every day lucky to be alive. Tate is a fellow podcaster who shares his stories on his own platform.

www.stopsarcoidosis.org/sarc-fighter-podcast/

07/28/2026

Survey: Microplastics and Sarcoidosis

FSR is collaborating with the University of Texas at Austin on a new research study examining environmental exposures, microplastics, and sarcoidosis. All study activities can be done from your home.

Participation involves completing an anonymous online survey (approximately 10–15 minutes). A subset of participants will then receive a brief educational video (~15 minutes) on microplastic exposure and health implications, followed by a short follow-up questionnaire approximately one week later.

Participation is completely voluntary, no identifying information will be collected, and your responses will remain anonymous.

Register here: https://loom.ly/BhGiVpw

07/23/2026

Do you have a sarcoidosis research project involving cardiovascular, cerebrovascular or brain health research? The American Heart Association and the Foundation for Sarcoidosis Research are co-funding a fellowship award for sarcoidosis. Grant opportunities are available for students in pre-doctoral and clinical health degree programs, and postdoctoral applicants seeking to enhance their training. Explore these opportunities and apply today!

2027 Predoctoral Fellowship: https://loom.ly/RrZxkU0

2027 Postdoctoral Fellowship: https://loom.ly/b3sMiaY

07/20/2026

You're invited to join the Foundation for Sarcoidosis Research (FSR) for our Regional Sarcoidosis Summit: Education, Connection, and Community: A Sarcoidosis Patient Event!

This FREE educational event brings together people living with sarcoidosis, caregiver and care partners, advocates, and healthcare experts for a day of learning, connection, and community.

You'll hear the latest information on living with sarcoidosis, ask questions directly to specialists, connect with others who understand your journey, and discover resources to help you navigate life with the disease.

Please note that this event is in-person

Date: Saturday, September 26
Location: Sheraton Philadelphia Downtown

Deadline to register: September 15

Learn More and Reserve your spot today: https://www.stopsarcoidosis.org/philadelphia-patient-event/

07/17/2026

In 2025, FSR published “Living with Sarcoidosis – Insights from the FSR-SARC Patient Registry.” This report highlights data from nearly 7,000 individuals with sarcoidosis who shared their experiences living with sarcoidosis in the FSR-SARC Patient Registry (FSR Registry) from 2014-2025.

When asked about employment, 23% of FSR Registry participants reported that they are no longer working due to disability, and 80% of those who are no longer employed needed to end their jobs due to the health effects of sarcoidosis.

Read the 10-Year Impact Report or join the FSR Registry to add details of your sarcoidosis journey here.
https://www.stopsarcoidosis.org/registry-report/

07/16/2026

Advance your sarcoidosis career training with a new fellowship opportunity! The American Heart Association and the Foundation for Sarcoidosis Research are co-funding a fellowship award for sarcoidosis. Whether you are in a pre-doctoral or clinical health degree program, or in postdoctoral training, there is an opportunity for you! Learn more and apply now!

2027 Predoctoral Fellowship: https://loom.ly/RrZxkU0

2027 Postdoctoral Fellowship: https://loom.ly/b3sMiaY

07/14/2026

07/14/2026

"Every breakthrough begins with support.

When you give to the Foundation for Sarcoidosis Research, you're investing in a better future for everyone affected by sarcoidosis.

Your generosity helps FSR:
•Accelerate research
•Develop trusted clinician and patient resources
•Expand clinician engagement
•Grow patient support programs
•Raise awareness and understanding of sarcoidosis
As Congressman Danny K. Davis shared:

"There is still much more work to do and still hope to deliver. We owe them [patients] more research, more understanding, and above all, more hope."

Together, we can turn hope into action by advancing research, improving care, and bringing us closer to better treatments and, ultimately, a cure.

Support our mission:
https://bit.ly/4v8zaY2
Foundation for Sarcoidosis Research