Foundation for Sarcoidosis Research

Foundation for Sarcoidosis Research Since 2000, FSR has fostered over $9 million in sarcoidosis-specific research efforts and has worked diligently to provide resources to thousands.
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The Foundation for Sarcoidosis Research is the nation’s leading nonprofit organization dedicated to finding a cure for this disease and to improving care for sarcoidosis patients. Since 2000, FSR has fostered over $5 million in sarcoidosis-specific research efforts and has worked diligently to provide resources to thousands.

The Foundation for Sarcoidosis Research is working to better the experiences of patients so they can receive one-on-one ...
10/03/2026

The Foundation for Sarcoidosis Research is working to better the experiences of patients so they can receive one-on-one support with:
-Insurance denials & appeals
-Prior authorizations
-Medicare & Medicaid enrollment
-Disability applications & appeals
-Financial barriers to care

No one should have to navigate these challenges alone. Learn more about this new support program and how FSR is working to improve access to care: https://www.stopsarcoidosis.org/contact-us/

Today is  , a day dedicated to raising awareness about the vital role oxygen therapy plays for people living with seriou...
10/02/2026

Today is , a day dedicated to raising awareness about the vital role oxygen therapy plays for people living with serious respiratory conditions like sarcoidosis, COPD, pulmonary fibrosis, and pulmonary hypertension.

For more than 1.5 million people in the U.S. living with serious lung and heart conditions, supplemental oxygen is essential to breathe, stay active, and live independently. Yet too many people face barriers to getting the right oxygen equipment when they need it.

That’s why FSR is proud to stand with patients, caregivers, and advocates calling on Congress to pass the bipartisan SOAR Act (H.R. 2902/S. 1406) before the end of the year.

The SOAR Act would improve access to the oxygen equipment and respiratory support patients need—including portable and high-flow oxygen.

This World Oxygen Day, we’re raising our voices for a future where everyone who needs supplemental oxygen can get the right oxygen, when and where they need it. The time for oxygen reform is now.

Read the press release here for more information: https://loom.ly/oQrAsFY

The Foundation for Sarcoidosis Research (FSR) is proud to be a member of the Lung Transplant Collaborative, a group of p...
10/02/2026

The Foundation for Sarcoidosis Research (FSR) is proud to be a member of the Lung Transplant Collaborative, a group of patient advocacy and healthcare organizations working together to advance awareness, education, support, and access for the lung transplant community.

Together, the Collaborative has been nominated for the inaugural Prix Galien Patient First Award in Honor of Michael J. Fox for its work on Lung Transplant Awareness Day. We’re proud to stand alongside our fellow Collaborative members: Lung Bioengineering (a subsidiary of United Therapeutics Corp.), American Thoracic Society, Lung Transplant Foundation, National Scleroderma Foundation, PF Warriors - Pulmonary Fibrosis, IPF, other Rare Lung Diseases, Pulmonary Fibrosis Foundation , Pulmonary Hypertension Association , Taylor's Gift Foundation, Transplant Life Foundation, Transplant Recipients International Organization (TRIO), and Wescoe Foundation for Pulmonary Fibrosis.

Observed annually on October 9, Lung Transplant Awareness Day is a national initiative to raise awareness, promote education, and empower advocacy around lung transplantation.

For many people living with advanced lung disease, a lung transplant may be the only path forward. This day helps share stories, connect communities, expand education, and advocate for greater access, research, and support.

Join us on October 9 for Lung Transplant Awareness Day and help raise awareness for a future full of breath and possibility.
Thank you to the Galien Foundation for this recognition and to our partners for their dedication to making a difference!

10/01/2026

Today, FSR is excited to celebrate six years of extraordinary leadership and passion of our very own President and CEO, Mary McGowan! 🎉

Under her leadership we have built a network of 54 hospitals and a expansive network of clinicians committed to improving care, we have grown our volunteer network with boots on the ground around the world, we have expanded our research funding by over 300% to expedite advances in sarcoidosis care, and we made significant legislative changes that to improve the lives of over 60 million Americans by ensuring access to FMLA for all who wish to participate in clinical trials.

Happy Anniversary, Mary! Thanks for serving as beacon of hope and catalyst for progress for the whole sarcoidosis community. 💜

We’re proud to highlight Keideesha English, one of our 2026 Team Rally for Sarc runners! 🏃‍♂️💜Running has become much mo...
09/30/2026

We’re proud to highlight Keideesha English, one of our 2026 Team Rally for Sarc runners! 🏃‍♂️💜

Running has become much more than a hobby for Keideesha; it has been a journey of perseverance, growth, and faith. She had the pleasure of running NYC alongside her cousin, Kaitlyn, in honor of Kaitlyn's father and Keideesha's uncle, Alvin Kilgore, who passed away from sarcoidosis in September 2025. His unwavering faith, resilience, and love for his family left a lasting impact on all who knew him. She is grateful for the opportunity to honor his legacy while raising awareness and support for sarcoidosis research.

As a wife, mother, Army veteran, CrossFit athlete, and runner, Keideesha understand the importance of resilience, purpose, and community. Through this marathon journey, she hopes to use her love of running to support those affected by sarcoidosis, help advance the mission of FSR, and inspire others to persevere through life's challenges.

Help Keideesha reach her goal and leave a message of support: https://loom.ly/4HQGmp8

Thank you to the to incredible Foundation for Sarcoidosis Research Volunteer Leaders, Theresa, Kapri, Susan, and Leticia...
09/30/2026

Thank you to the to incredible Foundation for Sarcoidosis Research Volunteer Leaders, Theresa, Kapri, Susan, and Leticia for leading affinity group discussions, guiding attendees to resources, and being a beacon of hope to all who attended FSR's Mid-Atlantic Sarcoidosis Regional Summit

Mary Mcgowan, Tricha Shivas, Colleen Dundas, MPH

Temple Health Jefferson Health Penn Medicine

Join us virtually on Thursday, October 22 at 11:00 AM EST for the next entry in the FSR Grantee Webinar series! This web...
09/29/2026

Join us virtually on Thursday, October 22 at 11:00 AM EST for the next entry in the FSR Grantee Webinar series! This webinar will feature Dr. Maneesh Bhargava, FSR Scientific Advisory Board (SAB) Member and 2021 FSR Pilot Grant Awardee.

Dr. Bhargava will share about his FSR Pilot Grant project, Comprehensive Assessment of Signal Transduction Pathways in Sarcoidosis. He and his team focused on exploring a new approach to studying inflammatory cells in sarcoidosis, including enzymes called kinases which help control inflammation. The presentation will be followed by a Q&A, so bring your questions!

Register here: https://loom.ly/1y5tRxo

Promising new research identifies three genes that may play a role in why people do or do not get sarcoidosis.  Also a l...
09/29/2026

Promising new research identifies three genes that may play a role in why people do or do not get sarcoidosis. Also a look at why hard work makes us feel better going all the way back to the old world philosophers, and how that might help you in your battle with sarcoidosis.

Listen to the latest episode of the Sarc Fighter Podcast: https://www.stopsarcoidosis.org/sarc-fighter-podcast

We’re proud to highlight Haley Argenziano, one of our 2026 Team Rally for Sarc runners! 🏃‍♂️💜Haley is proud to be runnin...
09/28/2026

We’re proud to highlight Haley Argenziano, one of our 2026 Team Rally for Sarc runners! 🏃‍♂️💜

Haley is proud to be running the 2026 TCS New York City Marathon in support of the Foundation for Sarcoidosis Research (FSR), a cause that is deeply personal to her. She is dedicating this race to Pat, her friend's father, who lives with cardiac sarcoidosis and whose strength, optimism, and perseverance have inspired her throughout her life.

Through this journey, Haley hopes to raise awareness, support critical research, and help advance better treatments and ultimately a cure for this disease. She is honored to run for Team FSR and for Pat!

Help Haley reach her goal and leave a message of support: https://loom.ly/VDFNplE

A look back at the just-concluded   Foundation for Sarcoidosis Research Mid-Atlantic  Regional Summit. 💜It was wonderful...
09/28/2026

A look back at the just-concluded Foundation for Sarcoidosis Research Mid-Atlantic Regional Summit. 💜

It was wonderful to bring together patients, caregivers, and clinicians for a day of learning, connection, and collaboration around sarcoidosis. A special thank you to the Founding FSR Global Sarcoidosis Clinic Alliance Members Jefferson Health and Temple Health and FRS Global Sarcoidosis Clinic Alliance Member, University of Pennsylvania.

Craig Lipset, Mary E. Cobb, Leslie Serchuck, Mary Mcgowan, Rohit Gupta, Misha Rosenbach, Behram Khan, Raphael Perez, Sarah Sandison, Elise Hoover, Tricha Shivas, David Fischer, Kristen Vargas, Julie Collins Colleen Dundas, MPH.

Address

320 W Ohio Street , Suite 300
Chicago, IL
60654

Opening Hours

Monday 8am - 4pm
Tuesday 8am - 4pm
Wednesday 8am - 4pm
Thursday 8am - 4pm
Friday 8am - 4pm

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