Scleroderma Foundation of Greater Chicago

Scleroderma Foundation of Greater Chicago Our mission is to provide support, education, and research for scleroderma patients and their familes

Here's a sneak peek at the chef lineup for this year’s Cooking Up a Cure! We are blown away by the talent joining us. Th...
07/30/2026

Here's a sneak peek at the chef lineup for this year’s Cooking Up a Cure! We are blown away by the talent joining us. The roster of celebrity chefs, restaurants and beverage companies is better than ever! Indulge in over 40 gourmet food and beverage stations, each one serving up delicious bites - from savory to sweet - as well as beer, wine and craft cocktails.

Don't miss out on this incredible culinary experience—all for a great cause--funding critical scleroderma research and providing support to those living with this disease.

Tickets are selling fast! Grab yours and see the full lineup at www.cookingupacurechicago.com

We're celebrating our 18th ANNUAL walk in Milwaukee! Join us in Germantown, WI on August 15 and bring hope to scleroderm...
07/30/2026

We're celebrating our 18th ANNUAL walk in Milwaukee! Join us in Germantown, WI on August 15 and bring hope to scleroderma patients and their families. Gather your loved ones as we stand together against scleroderma. Every dollar raised brings us closer to a cure and helps provide critical resources. Sign up today at www.stopscleroderma.org/germantown and be a part of this inspiring community event!

This year, Team Barb is walking in memory of Barbara "Barb" Marion, who passed away in April after a courageous 24-year ...
07/30/2026

This year, Team Barb is walking in memory of Barbara "Barb" Marion, who passed away in April after a courageous 24-year journey with scleroderma.

A devoted mother, sister, aunt, nana, and friend, Barb faced the challenges of scleroderma with remarkable strength, determination, and grace. Even when the disease changed her life, it never defined her. She remained fiercely independent, deeply devoted to her family, and an inspiration to everyone who knew her.

"She taught us what resilience looks like. No matter what challenges scleroderma put in front of her, she found a way forward."

Every team has a story. Every step honors someone. Every walk brings hope.

As we head into our August Walk to Cure Scleroderma events and our Hometown Edition Walk, open to anyone, anywhere, we invite you to become part of a community that walks with purpose. Whether you're honoring a loved one, celebrating a survivor, or standing beside someone living with scleroderma, there's a place for you.

Join us and help create hope for families like Barb's.

👉 Explore walks & get involved: https://www.stopscleroderma.org/walk

Hey Aurora! This is your LAST CHANCE to preregister and save $5 for the Walk to Cure Scleroderma happening THIS SUNDAY, ...
07/29/2026

Hey Aurora! This is your LAST CHANCE to preregister and save $5 for the Walk to Cure Scleroderma happening THIS SUNDAY, August 2! We hope to see you and your loved ones at beautiful Waubonsie Lake Park as we walk together to raise awareness and critical funds for scleroderma patients and their families. We can’t wait to see you and your team there. Together, we can make a difference! Pre-registration closes 7/30 at midnight. Register now at www.stopscleroderma.org/aurora.

To every parent of a child with scleroderma... this is for you.Grace's story is one we share to bring you hope.Diagnosed...
07/28/2026

To every parent of a child with scleroderma... this is for you.
Grace's story is one we share to bring you hope.

Diagnosed with systemic scleroderma and interstitial lung disease as a child, Grace endured countless medical appointments, treatments, and challenges. But her diagnosis did not define her future.

In her newest blog post, Grace shares her journey from a frightened child navigating a rare disease to a confident young woman using her voice to create change. We hope Grace's story reminds you that there is hope, there is community, and there is a future filled with possibilities.

Read Grace's story here: https://www.stopscleroderma.org/post/growing-up-with-scleroderma

07/24/2026

"You can't fight this laying down."

While everyone's journey is different, staying active, moving your body, and keeping going...even on difficult days, can help maintain mobility and independence.

Living with scleroderma takes determination, adaptability, and resilience. Mo's message is a reminder to keep moving forward, one step at a time.

Connect with the Scleroderma Foundation of Greater Chicago for support, resources, and a community that understands. https://www.stopscleroderma.org/

Every connection has the potential to change a child's journey.One of the most important parts of our work happens outsi...
07/23/2026

Every connection has the potential to change a child's journey.

One of the most important parts of our work happens outside the office. This week we're at the Society for Pediatric Dermatology meeting, connecting with the physicians and specialists who care for children living with morphea and pediatric scleroderma.

We're sharing our educational resources, introducing providers to the support available for families, building new relationships, and identifying experts who can help strengthen our network of care. Every conversation brings us one step closer to ensuring families have access to the information, community, and specialized care they deserve.

If you're attending the meeting, we'd love to connect!

Let's get moving! We're excited to welcome Dr. Stephanie Frade, joining us all the way from Australia, for an inspiring ...
07/22/2026

Let's get moving!
We're excited to welcome Dr. Stephanie Frade, joining us all the way from Australia, for an inspiring session on exercising with scleroderma. Whether you're just getting started or looking for new ways to stay active, you'll discover practical strategies to overcome common barriers, manage symptoms, and build confidence through movement.

Grab your spot here: https://us02web.zoom.us/meeting/register/XNTo_4hxQhuGn5ZtIPn0xQ

Ten years ago, Judy was diagnosed with scleroderma. When she signed up for her first walk, she had no idea what to expec...
07/22/2026

Ten years ago, Judy was diagnosed with scleroderma. When she signed up for her first walk, she had no idea what to expect. A simple Facebook post led to an outpouring of support, and she's been walking ever since.

Today, Judy is grateful for the incredible progress research has made over the past decade. While she's doing well, she knows many others are still fighting this disease every day. That's why she continues to lead Team Hey Jude with hope, gratitude, and a commitment to making a difference.

Ready to make an impact? As we head into our August Walk to Cure Scleroderma events and our Hometown Edition Walk, open to anyone, anywhere, we invite you to step into this movement with us.

👉 Explore walks & get involved: https://www.stopscleroderma.org/walk

Have you ever found yourself wishing you had a different illness?Visit Scleroderma Truth Blog, where Donna shares the ra...
07/21/2026

Have you ever found yourself wishing you had a different illness?

Visit Scleroderma Truth Blog, where Donna shares the raw emotions of living with scleroderma-related lung disease, including the unexpected feeling of "disease envy".

If you've ever felt frustrated, isolated, or guilty for the emotions chronic illness can bring, this blog is for you. Discover why these difficult thoughts are more common than we admit.

Read the blog here: https://www.stopscleroderma.org/post/the-green-monster-disease-envy

Address

1 S Dearborn, Ste 2000
Chicago, IL
60603

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+13126601131

Website

Alerts

Be the first to know and let us send you an email when Scleroderma Foundation of Greater Chicago posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Scleroderma Foundation of Greater Chicago:

Shortcuts

Share

Category