Scleroderma Foundation of Greater Chicago

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Scleroderma Foundation of Greater Chicago Our mission is to provide support, education, and research for scleroderma patients and their familes

“I wake up to a memo. I was never invited to give input!”Karen's body has been holding Congressional hearings without he...
10/01/2026

“I wake up to a memo. I was never invited to give input!”

Karen's body has been holding Congressional hearings without her for more than 16 years. But behind the humor is a powerful story about diagnosis, self-advocacy, finding your voice, and realizing that surviving isn't the only goal.

Karen is sharing her story in our newest Scleroderma Truth blog, and she's inviting YOU to be part of what comes next.

Read: https://www.stopscleroderma.org/post/my-body-holds-congressional-hearings-without-me

Meet Karen in Chicago on October 17 at our Patient Education Conference, where she'll lead Using Your Voice: An Interactive Self-Advocacy Workshop.

Can't make it to Chicago? Share your voice through Karen's patient, caregiver, or healthcare provider survey. Your insights can help shape future self-advocacy tools and resources.

Read. Share. Speak up. Be part of the conversation.

Take charge of your GI health at the Scleroderma Patient Education Conference on October 17 in Chicago! Beth Doerfler, R...
09/29/2026

Take charge of your GI health at the Scleroderma Patient Education Conference on October 17 in Chicago! Beth Doerfler, RD and Joy Liu, MD from the Northwestern Scleroderma Program will showcase how nutrition plays a vital role in GI issues, offering a unique opportunity to optimize your dietary choices and improve scleroderma symptoms. Beth Doerfler is the first dietitian to be fully integrated into a gastroenterology division for both research and patient care and Dr. Liu is an Instructor of Medicine in the Division of Gastroenterology & Hepatology at Northwestern Medicine specializing in neurogastroenterology and motility. Register now for FREE at www.stopscleroderma.org/fallconference.

09/26/2026

“It’s like a big hug.”

That’s how Brooke describes what it feels like to connect with the scleroderma community.

Our 2026 Chicago Patient Education Conference is a chance to find that connection.

📍 Chicago, IL — Gleacher Center
📅 Saturday, October 17
🎟️ Complimentary registration + lunch included

Come learn from scleroderma experts.
Come ask questions.
Come build your self-advocacy toolkit.
Come meet people who understand.

Come for the information. Stay for the connection.

👉 Reserve your complimentary spot: stopscleroderma.org/fallconference2026

You could feel the love in the room last night at our 18th annual Cooking up a Cure in Chicago! What an honor to see the...
09/26/2026

You could feel the love in the room last night at our 18th annual Cooking up a Cure in Chicago! What an honor to see the way patients, family, friends, chefs, supporters and the hospitality industry as a whole showed up once again for this cause. It was an incredible night of good food, good vibes and the common thread that holds us together. The desire to give back and support those living with scleroderma. We are beyond grateful! More pics to come.

We are so excited for the 18th annual Cooking Up a Cure happening TOMORROW in Chicago! A special thank you to our sponso...
09/23/2026

We are so excited for the 18th annual Cooking Up a Cure happening TOMORROW in Chicago! A special thank you to our sponsor for your support. We’re bringing together over 40 of Chicago’s best restaurants, bakeries, breweries, and distilleries to serve you up an unforgettable night while we fundraise for a cure. This is your last chance to get tickets at: www.cookingupacurechicago.com. See you there!

“Do the things that scare you. Take the next step. And know that we’re cheering for you all the way.” Four years ago, Ro...
09/21/2026

“Do the things that scare you. Take the next step. And know that we’re cheering for you all the way.”

Four years ago, Ronna was an active 35-year-old mom, wife, small business owner, and someone who loved to move her body. But something didn't feel right. What began as a conversation about chronic migraines led to an autoimmune workup, a diagnosis of scleroderma, and the discovery that she was also living with interstitial lung disease (ILD).

“When I got my diagnosis, so many questions ran through my head. How would my body respond to treatment? What did my future hold? How long could I continue living at 7,500 feet?”

Then, after taking time to process her diagnosis, Ronna made a decision: she wasn’t going to let fear define what came next. She was going to do the things that scared her. In the latest Scleroderma Truth blog post, Ronna shares her inspiring journey of being knocked down by a life-changing diagnosis, finding her strength again, and defying expectations as she learns to live, and run at high elevations with scleroderma and interstitial lung disease.

There are so many reasons to come to Cooking Up a Cure, and tickets are going fast! Come for the incredible food. Bring ...
09/21/2026

There are so many reasons to come to Cooking Up a Cure, and tickets are going fast!

Come for the incredible food. Bring someone you love. Connect with the scleroderma community. Invite your friends for a great night out. Bid on something special in the silent auction. Or simply come because you want to be part of something that makes a difference.

Whatever brings you through the door, you’ll leave knowing you helped support people living with scleroderma and move us closer to a cure.

And as David says, no one ever regrets coming!

We hope to see you there.

This is your last chance to get your tickets now and come be part of it!

September 24, 2026📍 Theater on the Lake | Chicago

Get your ticket here: https://www.stopscleroderma.org/cooking-up-a-cure

Special thank you to our sponsor Wintrust

Address

1 S Dearborn, Ste 2000
Chicago, IL
60603

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+13126601131

Website

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