IIH Champ Foundation

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IIH Champ Foundation My name is Tanya Ward-CEO/Founder of IIH Champ Foundation. I am living with IIH💙💚

07/02/2026

This week, my family is mourning the loss of someone we love while also preparing to celebrate new life in the months ahead(We’re going to be grandparents). As we travel to honor my husband’s mother, we’re reminded that life can hold both heartbreak and hope at the same time. One chapter is ending, while another is just beginning. Even in the middle of grief, we’re choosing to hold on to the love, memories, and legacy she leaves behind.

Living with IIH doesn’t pause when life gets difficult. The headaches, the pressure, the fatigue, and the uncertainty don’t take a break because we’re grieving. But neither does my purpose. This journey has taught me that strength isn’t about pretending everything is okay it’s about continuing to move forward, even when your heart feels heavy.

06/18/2026

A day in my mind living with IIH💙💚

Full episode available on Spotify

05/26/2026

Sometimes your story can help someone else💙💚

If you’re living with IIH I would love to hear your story.

I’ve been living with IIH since 2017!!!

Celebrating our 3 years anniversary💙💚3 years ago, IIH Champ Foundation started with pain, purpose, and a vision to make ...
05/18/2026

Celebrating our 3 years anniversary💙💚

3 years ago, IIH Champ Foundation started with pain, purpose, and a vision to make sure nobody facing Idiopathic Intracranial Hypertension felt alone.

I am Tanya the founder & CEO of the IIH Champ Foundation and I was diagnosed in 2017.
I felt alone and scared and eventually decided to spread awareness because of this rare neurological condition is not talked about enough.

Today, we celebrate 3 years of advocacy, awareness, education, community, and impact.

From surgeries... to hard days... to victories...
to voices being heard...

Thank you to every supporter, patient, volunteer, donor, listener, and person who believed in this mission.

We're just getting started.💙💚



05/14/2026

Just a quick Q&A about living with IIH💙💚

04/17/2026

Living with an invisible rare condition (IH) has been life altering but I'm ok.

No sympathy needed just awareness.

Some days are better than others but l have learned to live with IIH.

I am grateful for all of the support that I receive.

I'm not 100% health wise but I will continue to show up!

No one fights alone!!!

04/15/2026

What if everyday was a flare day living with IIH?

Someone asked this question….

04/10/2026

If you’re having a flare day give yourself grace…..

Episode 5!!!!!!!!
04/08/2026

Episode 5!!!!!!!!

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Chicago, IL

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