BDAI's mission is to improve the quality of life for the inherited bleeding disorders community by supporting individuals and their families with unbiased information and resources that help all affected live healthy and active lives. BDAI supports families affected by inherited bleeding disorders by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle. These rare diseases, which affect about 1% of the general population, are often difficult to diagnose and are some of the most costly chronic disorders to treat. The ability to access reliable and unbiased information is especially important for families seeking answers and support soon after the initial diagnosis. BDAI serves as a non-profit connection between its members and the many medical providers, treatment centers, public and private insurance agencies and government programs that offer medical and financial assistance. The organization also offers a welcoming community for individuals and families to meet, interact, and share information and advice. By providing social and education events for the community throughout the year, BDAI helps foster a sense of connection between its members and provides continual opportunities to learn new ways to manage life with these disorders. Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical providers, and government agencies while representing the bleeding community in the world at large. Bleeding Disorders Alliance Illinois believes that, with the proper support and resources, its members have the potential to be defined not by their conditions, but by their contributions to the world. We are a not-for-profit 501(c)(3) organization and partners with The National Hemophilia Foundation, and The Hemophilia Federation of America.
