Middle East Cystic Fibrosis Association

Middle East Cystic Fibrosis Association MECFA is a community of clinical professionals committed to improving the survival and quality of life for people born with CF in the Middle East.

https://linktr.ee/MECFA

Why does MADI matter?Because treatment cannot reach children who remain unseen.Over the next three years, MADI aims to p...
06/12/2026

Why does MADI matter?

Because treatment cannot reach children who remain unseen.

Over the next three years, MADI aims to provide:

* 45 diagnostic systems donated to hospitals across the region
* 45,000 sweat tests donated
* 6,000 genetic tests provided

These are not just numbers.

Each test represents a child searching for answers.

Each diagnosis opens a door to care.

Each child found is a child who finally has a chance to be counted.

๐Ÿ”— Support the campaign:

https://tinyurl.com/ms8n3ea6

Sweat testing and patient discussions were also made during the team's visit.
06/12/2026

Sweat testing and patient discussions were also made during the team's visit.

Here are some pictures from the 3rd day of training:1. Bulent Karadag giving a speech about CF Centers2. Yasemin Gokdemi...
06/12/2026

Here are some pictures from the 3rd day of training:

1. Bulent Karadag giving a speech about CF Centers
2. Yasemin Gokdemir making her talk on modulator therapies
3-4 ร–zge KeniลŸ CoลŸkun talking about physiotherapy and giving a workshop.
5-6-7 Muhammad Fareeduddin presenting certificates to the attendees of the workshop.

Every donation to MADI helps build a pathway to treatment.$40 helps provide a sweat test.$200 helps provide a genetic te...
06/10/2026

Every donation to MADI helps build a pathway to treatment.

$40 helps provide a sweat test.

$200 helps provide a genetic test.

Together, these tests help identify children with cystic fibrosis and determine whether they may qualify for life-changing therapies.

Diagnosis is not the end of the journey.

It is where the journey begins.

๐Ÿ”— Donate today:
https://tinyurl.com/ms8n3ea6

Training continues both online and in person. ๐Ÿ’ป๐Ÿฅ explained nutrition in cystic fibrosis via Zoom, while .dr.ozgekenisco...
06/10/2026

Training continues both online and in person. ๐Ÿ’ป๐Ÿฅ explained nutrition in cystic fibrosis via Zoom, while .dr.ozgekeniscoskun is leading an in-person session on airway clearance.

Second day continues.. Thank you all for participating and thank you for making this possible.
06/10/2026

Second day continues.. Thank you all for participating and thank you for making this possible.

What happens when a child with cystic fibrosis is never diagnosed?They are not countedThey are not included in health pl...
06/08/2026

What happens when a child with cystic fibrosis is never diagnosed?

They are not counted

They are not included in health planning.

They cannot access genetic testing.

They cannot qualify for treatment.

Across parts of our region, this remains the reality for far too many children.

MADI: The Path to Progress is working to change that by strengthening diagnostic pathways and helping children get the answers they need.

Because if we don't find them, they don't exist.

๐Ÿ”— Learn more and support the campaign:
https://tinyurl.com/ms8n3ea6

Our board member was in ECFS, Lisbon in ECFS-CTN Training workshop for RCs.
06/03/2026

Our board member was in ECFS, Lisbon in ECFS-CTN Training workshop for RCs.

This CF Awareness Month, we are sharing stories that remind us why diagnosis matters.There was a time when Rami could no...
05/15/2026

This CF Awareness Month, we are sharing stories that remind us why diagnosis matters.

There was a time when Rami could not access treatment.

His family sold land so he could survive.

Today, he is married and the father of twins.

What changed?

Diagnosis โ†’ access โ†’ treatment.

MADI is working so children across our region do not have to wait for answers while medicine sits just out of reach.

If we donโ€™t find them, they donโ€™t exist.

๐Ÿ”— Learn more and support the campaign:
https://tinyurl.com/ms8n3ea6

This CF Awareness Month, we are focusing on something many people never think about:Diagnosis.Because without diagnosis:...
05/13/2026

This CF Awareness Month, we are focusing on something many people never think about:

Diagnosis.

Because without diagnosis:
There is no treatment.
No genetic confirmation.
No eligibility for modern therapies.

Across our region, many children with cystic fibrosis are still waiting to be identified.

MADI exists to change that.

$40 provides a sweat test.
$200 provides a genetic test.

This is how survival begins.

๐Ÿ”— Donate here:
https://tinyurl.com/ms8n3ea6

Address

675 VFW Parkway Suite 226
Chestnut Hill, MA
02467

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