Middle East Cystic Fibrosis Association

Home
United States
Chestnut Hill, MA
Middle East Cystic Fibrosis Association

MECFA is a community of clinical professionals committed to improving the survival and quality of life for people born with CF in the Middle East.

https://linktr.ee/MECFA

09/04/2026

*We have started in Pakistan. Now help us do it again.*

There are hospitals across our region with clinicians ready to care for children with cystic fibrosis — but without the diagnostic resources needed to find them.

MADI's three-year goal is to help change that:

*45 hospitals*
*45 diagnostic systems*
*45,000 sweat tests*
*6,000 genetic tests*

Pakistan is a beginning, not the finish line.

Every new hospital means another community where a child with CF has a better chance of being found.

Every $40 can provide a sweat test.

Every $200 can provide a genetic test.

*Help us reach the next hospital.*

🔗 Donate:
https://tinyurl.com/4z64x2wp

09/02/2026

*MADI is moving from a plan to action.*

With support from the *Cystic Fibrosis Foundation*, MECFA has been able to expand CF diagnostic capacity in Pakistan.

Diagnostic equipment and testing are helping create something that has been missing: a pathway for more children suspected of having cystic fibrosis to receive reliable testing.

But equipment alone isn't enough.

Building sustainable diagnostic capacity means trained teams, continued testing, patient data, specialist care, and a commitment to keep the system operating.

Pakistan demonstrates what can happen when organizations invest in the infrastructure needed to *find patients first.*

Now we need to take that model further.

*Building diagnostic pathways so treatment can follow.*

🔗 Support MADI:
https://tinyurl.com/4z64x2wp

08/31/2026

*MADI MONDAY: What is the CF diagnostic gap?*

In countries with established cystic fibrosis programs, diagnosis often begins early. Sweat testing, genetic testing, specialist care, and patient registries are part of an established system.

But that system does not exist everywhere.

Across parts of the Middle East, North Africa, and Central and South Asia, children with symptoms of CF may go years without access to reliable diagnostic testing.

And when we don't diagnose them:
They aren't counted.

Their governments don't know how many patients need care.

Hospitals can't demonstrate the true need for CF services.

And patients remain disconnected from treatments that could change their lives.

*MADI was created to close this gap.*

Our goal is not simply to donate tests. It is to build diagnostic pathways that continue long after the initial donation.

*If we don't find them, they don't exist.*

🔗 Learn more:

https://tinyurl.com/4z64x2wp

08/28/2026

For many of us, it is dinner out.

For MADI, *$40 can provide a sweat test for a child suspected of having cystic fibrosis.*

Our three-year goal is to donate *45,000 sweat tests* across our region.

We cannot reach that goal without people deciding that one test matters.

Because behind every test is a real child.

A real family.

And parents who deserve to know why their child is sick.

You don't need to fund 45,000 tests.

*Fund one.*

And help us find one more child.

🔗 Donate to MADI:
https://tinyurl.com/ms8n3ea6

08/26/2026

What happens when we start finding the patients who were previously invisible?

The impact goes far beyond one diagnosis.

Hospitals begin to understand the true number of people with cystic fibrosis.

Governments see the need for specialized CF services.

Health ministries have evidence to plan budgets and purchase medicines.

Researchers gain data about CF in populations that remain seriously underrepresented in global research.

And pharmaceutical companies can see where patients who may benefit from their therapies actually live.

**Diagnosis creates data.
Data creates evidence.
Evidence can create access.**

This is the bigger vision behind MADI.

We are not simply donating tests.

*We are building the evidence needed to change CF care across our region.*

🔗 Learn more and support MADI:
https://tinyurl.com/ms8n3ea6

08/24/2026

*MADI MONDAY: Why does genetic testing matter?*

A sweat test can tell us a person has cystic fibrosis.

Genetic testing tells us *which CFTR mutations they have* — and today, that information can change the treatment options available to them.

For some patients, access to CFTR modulator therapies depends on knowing their mutations.

Yet across parts of our region, genetic testing remains difficult or unaffordable for many families.

That is why MADI aims to provide *6,000 genetic tests* over three years.

We don't want to stop at finding patients.

We want to help create the pathway that takes them from *diagnosis → genetic confirmation → appropriate treatment.*

*Find them. Count them. Treat them.*

🔗 Support MADI:
https://tinyurl.com/ms8n3ea6

08/21/2026

*You don't have to make a large donation to change a child's path.*

$40 can provide a sweat test.

$200 can provide a genetic test.

A test can provide an answer.

An answer can lead to specialized care.

Genetic confirmation can help identify which treatments may be appropriate for that patient.

This is how change starts — *one child at a time.*

If 10 people give $40, that's 10 sweat tests.

If 100 people give $40, that's 100 opportunities to find a child who might otherwise remain undiagnosed.

*Will you help us find one?*

🔗 Donate to MADI:
https://tinyurl.com/ms8n3ea6

08/19/2026

*For some parents, the hardest words are not “your child has cystic fibrosis.”*

They are:

*“We don’t know what is wrong.”*

Imagine watching your child struggle to breathe, lose weight, suffer repeated infections — and still having no answer.

For too many families in our region, access to a simple, reliable CF diagnostic test is not available where they live.

MADI is working to change that.

We want families to have answers.

We want children to be found.

And once we find them, we can begin the work of getting them the care they need.

*Building diagnostic pathways so treatment can follow.*

🔗 Support MADI:
https://tinyurl.com/ms8n3ea6

08/17/2026

*MADI MONDAY: Why do we need to count CF patients?*

Finding a patient is only the beginning.

When a child is diagnosed with cystic fibrosis, that diagnosis becomes part of something much bigger.

It helps us understand how many people are living with CF, where they are, which mutations they have, and what care and medicines they need.

Without reliable patient data, governments cannot plan services, hospitals cannot demonstrate need, and access to new treatments becomes much harder to achieve.

That is why MADI will not only expand diagnosis — it will also build the data needed to advocate for better CF care across our region.

*Find them. Count them. Treat them.*

MADI: The Path to Progress

🔗 Learn more and support MADI:
https://tinyurl.com/ms8n3ea

08/15/2026

When you support MADI, you're doing more than making a donation.

You're helping a child receive an accurate diagnosis.

You're helping a family finally get answers.

You're helping doctors provide the right care.

You're helping governments understand the true impact of cystic fibrosis.

Every gift helps build a stronger future for children living with CF across our region.

Thank you for standing with us.

🔗 Donate today:

https://tinyurl.com/ms8n3ea6

Address

675 VFW Parkway Suite 226
Chestnut Hill, MA
02467

Website

http://www.mecfa.org/

Alerts

Be the first to know and let us send you an email when Middle East Cystic Fibrosis Association posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Middle East Cystic Fibrosis Association:

Want your organization to be the top-listed Non Profit Organization in Chestnut Hill?