Middle East Cystic Fibrosis Association

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Middle East Cystic Fibrosis Association

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MECFA is a community of clinical professionals committed to improving the survival and quality of life for people born with CF in the Middle East.

https://linktr.ee/MECFA

10/28/2026

*The next person diagnosed with cystic fibrosis may already be receiving medical care — just not for CF.*

They may be treated repeatedly for respiratory infections.

They may struggle with poor growth or persistent digestive problems.

Their doctors may suspect cystic fibrosis but have no access to reliable diagnostic testing.

*That is the gap MADI is working to close.*

We are building diagnostic pathways across the Middle East, North Africa, and Central and South Asia so more hospitals can identify patients and connect them to appropriate care.

Our goal is to provide 45 diagnostic systems, 45,000 sweat tests, and 6,000 genetic tests over three years.

But we need support to reach those goals.

*$40 provides one sweat test.*

*$200 provides one genetic test.*

You can help turn clinical suspicion into an answer.

*Help us find the next patient.*

Donate:
https://tinyurl.com/5x289c9r

10/26/2026

*MADI MONDAY: Can someone reach adulthood without knowing they have cystic fibrosis?*

*Yes. And it happens.*

Although cystic fibrosis is often diagnosed during childhood, some people reach adolescence or adulthood without receiving an accurate diagnosis.

They may have experienced years of recurring respiratory infections, chronic sinus problems, digestive difficulties, or unexplained infertility.

Some have milder or less typical symptoms that make CF harder to recognize.

In countries where newborn screening and reliable diagnostic testing are limited, identifying these patients can be even more challenging.

*Cystic fibrosis is not exclusively a childhood diagnosis.*

Through MADI: The Path to Progress, MECFA is working to expand access to sweat testing and genetic testing so more people living with CF can be identified and connected to appropriate care.

*Every patient deserves an accurate diagnosis, regardless of age.*

Learn more:
https://tinyurl.com/5x289c9r

10/23/2026

*Cystic fibrosis care doesn't stop at the hospital door.*

Families play an essential role in managing CF every day.

From airway clearance and nutritional support to medications, infection prevention, and recognizing changes in symptoms, much of CF care takes place at home.

That is why family education must be an integral part of every comprehensive CF program.

At MECFA, we recognize that strengthening CF care means supporting both healthcare professionals and the families who manage this complex disease every day.

Through our regional collaborations, we work to promote clinical education, family involvement, and stronger CF care practices.

*Informed families and well-trained clinical teams are essential partners in better CF care.*

Learn more about MECFA:
https://www.mecfa.org

10/21/2026

*What if your donation could help a hospital diagnose children with cystic fibrosis for years to come?*

That is the long-term goal behind MADI.

We are not simply purchasing diagnostic tests.

We are helping hospitals establish the equipment, trained personnel, and testing capacity needed to identify patients who might otherwise remain undiagnosed.

A functioning diagnostic service can support countless clinical decisions over its lifetime.

And every patient identified creates an opportunity for appropriate care, genetic evaluation, and inclusion in national health planning.

Our three-year goal is to equip *45 hospitals* and provide *45,000 sweat tests and 6,000 genetic tests* across our region.

*Help us build diagnostic capacity that lasts.*

$40 can provide a sweat test.

$200 can provide a genetic test.

Donate to MADI:
https://tinyurl.com/5x289c9r

10/19/2026

*MADI MONDAY: Why does every CF patient need to be counted?*

A patient registry is much more than a list of names.

It provides essential information about the number of people living with cystic fibrosis, their genetic mutations, their health outcomes, and the treatments they receive.

For countries developing CF services, this information is critical.

Without reliable patient data, health authorities struggle to determine how many patients need specialized care, what medicines should be available, and where resources should be directed.

*This is why MADI connects diagnosis with patient registration and long-term care.*

Finding patients is the first step. Documenting their needs helps build the evidence required to improve national CF services.

*Find them. Count them. Treat them.*

MADI: The Path to Progress

Learn more:
https://tinyurl.com/5x289c9r

10/16/2026

*Better cystic fibrosis care requires more than medical knowledge. It requires measuring outcomes and improving how care is delivered.*

At MECFA, quality improvement is an essential part of our regional work.

Through partnerships between experienced CF centers and developing programs, we help clinical teams examine their practices, identify gaps, and introduce measurable improvements.

Our collaborations have included CF centers in Türkiye, Tunisia, and Pakistan, with a focus on strengthening clinical practices and building local expertise.

Quality improvement helps teams address important questions:

Are patients receiving appropriate nutritional care?

Are lung function and growth being monitored consistently?

Are families receiving the education they need?

Are clinical teams using patient data to improve outcomes?

*The goal is not simply to provide more care. It is to provide better care — consistently and sustainably.*

This is one of the ways MECFA works to strengthen cystic fibrosis services across our region.

Learn more:
https://tinyurl.com/2kph4nn7

10/14/2026

*A hospital cannot diagnose a disease without the tools to find it.*

Across parts of our region, dedicated physicians care for children with symptoms of cystic fibrosis but lack access to reliable diagnostic equipment and testing supplies.

MADI is working to change that.

Our three-year goal is to provide:

*45 diagnostic systems to 45 hospitals*

*45,000 sweat tests*

*6,000 genetic tests*

With support from partners, including the Cystic Fibrosis Foundation for diagnostic expansion in Pakistan, we are beginning to put this model into practice.

But there are many more hospitals to reach.

*$40 can provide one sweat test.*

*$200 can provide one genetic test.*

Help MECFA build the diagnostic capacity needed to find more patients and connect them to care.

*The next diagnosis starts with access to testing.*

Donate today:
https://tinyurl.com/5x289c9r

10/12/2026

*MADI MONDAY: Did you know cystic fibrosis affects more than the lungs?*

Many children with cystic fibrosis struggle to gain weight and grow normally because CF can interfere with digestion and the absorption of nutrients.

Without a diagnosis, these children may receive treatment for malnutrition without anyone recognizing the underlying disease.

A correct diagnosis allows clinicians to investigate pancreatic function, provide appropriate nutritional support, and begin comprehensive CF care.

This is another reason why access to reliable sweat testing is so important.

Through *MADI: The Path to Progress*, MECFA is working to expand diagnostic capacity in hospitals where children with CF may otherwise remain unidentified.

*Finding CF early means treating more than the symptoms. It means identifying the disease.*

Learn more and support MADI:
https://tinyurl.com/5x289c9r

10/10/2026

With Ahmet Uluer, Anagram Non-porcine enzyme producer Bob and Epicore team in NACFC, Atlanta.

10/09/2026

Congratulations to Fulya Özdemircioğlu Her poster was elected for The Best 10 Young Junior Investigator Competition at the NACFC in Atlanta.

Address

675 VFW Parkway Suite 226
Chestnut Hill, MA
02467

Website

http://www.mecfa.org/

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