International PANS/PANDAS Registry

International PANS/PANDAS Registry IPR is a patient-centered database of information on PANS & PANDAS aimed at streamlining researchers

If you haven’t joined the International PANS Registry (IPR), you can enroll at our website (https://pansregistry.org/
) to be a candidate for future studies in just 15 minutes, or by investing 45 minutes your child can become part of the epidemiology study that seeks to further understand the scientific community’s understanding of this horrible disease. If you are able to support PRAI’s mission o

f finding a cure for PANS by helping to fund the International PANS Registry, you can donate here: https://www.paypal.com/donate/?cmd=_s-xclick&hosted_button_id=YQJLZ7X5MB3L6&source=url&fbclid=IwAR2eG8EJvim7MBQnTPe6ZP80HS-L02FKU6j5oEjAbl2tpsy3U0mtlV0nFKg

About the survey data
Survey data reported here was collected as part of the first wave of the IPR Epidemiology Study, from July 2020 to December 2021, and based on parent report of both cases (individuals suspected of having PANS or who have PANS-like features) and their healthy siblings. The IPR Epidemiology Study is a registry-based, longitudinal study designed to improve characterization and phenotyping of individuals with Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) and PANS-like features.

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7624 Hampton Green Drive
Chesterfield, VA
23832

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(804) 615-5377

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