Angelman Strong Connecticut

05/26/2026

Walk photos are here!!! Thank you Ethea Photography (and her helpers!).

05/18/2026

Thank you for coming!!!

05/15/2026

Make an impact and double your donation!!💙💪🏻

💙 THE POWER OF 15 💙

Today, May 15, we are launching a special 15-hour fundraising blitz for Angelman Strong 2026. YOU can help us unlock an incredible $15,000 matching gift!

Why 15?
Angelman syndrome is caused by a loss of function on the 15th chromosome, making this number deeply meaningful to our community.

⏰ From 8AM to 11PM EST, every donation made during our Power of 15 campaign will help us work toward unlocking a $15,000 matching gift from a generous donor.

🎯 Our Goal:
Raise $15,000 in 15 hours to unlock the match and turn it into $30,000 for the Angelman Syndrome Foundation.

Here’s how you can help:
✅ Donate on May 15th
✅ Share this campaign with family & friends
✅ Ask others to give just $15 in honor of the 15th chromosome
✅ Help us spread awareness for Angelman syndrome

Every gift matters. Every share matters. Every dollar gets us closer to critical research, support, and hope for families impacted by Angelman syndrome.

05/14/2026

05/13/2026

Our friends over at CT Party Characters will be bringing a very special guest from 9-10 this Saturday at the walk! Hope to see you there!!!

04/15/2026

✨ Don’t miss these fundraising incentives!! ✨

03/26/2026

Your Angelman Strong participation,fundraising efforts and support make an impact!💙

03/20/2026

If you want a t shirt- register today!!!!

Can’t make it? Register and fundraise as a virtual walker!

We can’t wait to see you! Less than two months away!

https://support.angelman.org/event/2026-angelman-strong-ct-cheshire/e763269

03/13/2026

Your Angelman Strong fundraising efforts are making a real and meaningful impact. Because of this incredible community, important advancements in Angelman syndrome research are happening right now—bringing us closer to better treatments and, one day, a cure.

Every dollar raised, every mile walked, and every story shared helps fuel the scientists, clinicians, and families who are working tirelessly to change the future for individuals living with Angelman syndrome.

From groundbreaking research studies to expanding clinical trials and increasing awareness around the world, your dedication is helping turn hope into progress.

Thank you for standing strong with us and continuing to move this mission forward. Together, we are making a difference. 💙

ASF-Funded Research Published!
New findings show that increasing overall UBE3A levels may improve many Angelman-related learning and behavioral challenges. This discovery is an encouraging insight for future gene therapies.

The study also found that seizures appear to be linked to one specific version of the UBE3A protein, helping explain why epilepsy in Angelman syndrome can be especially difficult to treat.

“The UBE3A gene makes a protein that comes in two different versions – one short form of UBE3A and one longer form. In our study, we explored how each version of UBE3A contributes to certain Angelman syndrome symptoms using a mouse model. We found that most symptoms could be improved with either version of the UBE3A protein. However, seizures associated with Angelman syndrome depended on only one specific version (the shorter form of UBE3A). This information is expected to guide future therapeutic development strategies.”
— Joe Krzeski, first author
UNC Chapel Hill, North Carolina

“Our study highlights the importance of restoring the appropriate versions of the UBE3A protein to address the full spectrum of Angelman syndrome symptoms. This has important implications for gene-therapy approaches aimed at reinstating one or both versions of the UBE3A protein.”
— Ype Elgersma, principal investigator
Erasmus University MC, Rotterdam

This ASF-funded work helps move the field toward smarter, more targeted therapies for the Angelman community.

Discoveries like this happen because of fundraising and participating in events like Angelman Strong. Every donation fuels ASF Funded Research. Thank you for making this happen!

See the published work here: https://www.nature.com/articles/s41380-026-03468-9