Chiari Fund is a 501(c)(3) nonprofit organization and shall operate exclusively for charitable purposes Chiari Fund’s purpose is to provide financial assistance for people with Arnold Chiari Malformation and/or Related Disorders. Based upon need and availability of funds, we provide direct financial assistance to those affected by a rare brain disorder called Arnold Chiari Malformation (ACM). We w
ill also provide financial assistance for those affected by related disorders of, but not limited to, Syringomyelia (SM), Ehlers Danlos Syndrome (EDS), Craniocervical Instability (CCI), and Tethered Cord. Our means of fundraising are, but not limited to, direct donations, fundraising, and grants. Our means of financial assistance are helping those in need seek medical attention by paying doctor bills, hospital bills, and other medical related bills. We will also provide assistance by helping individuals with travel to and from doctors and/or hospitals. Furthermore, those that are in need of assistance in paying for electricity, water, gas, etc. These programs are implemented regardless of race, color, gender, national origin, age, religion, creed, disability, veteran's status, sexual orientation, gender identity or gender expression. All board members and anyone else that is associated with Chiari Fund receive no compensation. Our goal is that 90% + is given directly to those in need. All of these programs come at a huge cost therefore fundraising and donations are an integral part of what Chiari Fund does. With the necessary needs to help the Chiari community, it is our hope that all of those that need doctor care can receive it. In turn, the Chiari community is better off as a whole. Although Chiari Fund only puts a band aid on a huge problem, it is a start.
