Charlotte, North Carolina Hydrocephalus Association WALK

12/20/2025

Want the latest news in hydrocephalus research, education, and community programs? Our newsletter delivers important updates, upcoming events, and meaningful ways to stay involved, right to your inbox!
Subscribe here: https://www.hydroassoc.org/newsletter/

12/20/2025

12/14/2025

Preparing for brain surgery can feel overwhelming, but learning what to expect and talking with your care team can make a huge difference. A little prep can support a smoother procedure and recovery! Read the full article to prepare for shunt surgery: https://www.hydroassoc.org/hydrocephalus-shunt-surgery/

12/14/2025

My Hydro Bear is more than a teddy bear. Its shunt reflects the real experiences of many in our community, helping people feel seen, understood, and less alone. Designed with children in mind but meaningful for all ages, My Hydro Bear offers connection, reassurance, and a shared sense of experience 🧸 💙
Order yours today: https://bit.ly/48tO6be

12/08/2025

YouTube stars Rhett & Link highlighted the Hydrocephalus Association on their Good Mythical Morning show, which reaches more than 19M subscribers! 🤩 We're thankful for the awareness this brings for the hydrocephalus community and grateful that they chose to support our mission and encouraged their viewers to do the same. A big thanks to the entire Mythical Crew for helping make this moment possible! 💙
Check out the clip, stay tuned for more, and watch the full episode on YouTube: https://www.youtube.com/watch?v=tzp40aeTSEs&t=1044s

12/07/2025

We are excited to name Dr. Thomas Arnold of UC San Francisco as the 2025 Accelerator Award recipient! His project, focused on choline’s role in congenital hydrocephalus, represents the kind of bold research that could lead to new non-surgical therapies. Congratulations, Dr. Arnold! 🥳 https://www.hydroassoc.org/2025-accelerator-award-recipient/

12/03/2025

Did you spot the Hydrocephalus Association cleats on the field over the weekend? Denver Broncos’ Adam Trautman wore his custom cleats proudly during the team’s win, helping raise awareness for the more than 1 million people in the US living with hydrocephalus. Thank you, Adam, for raising awareness! https://mycausemycleats.org/player/adam-trautman/

12/03/2025

Support the Hydrocephalus Association by donating this Giving Tuesday 💙

11/24/2025

11/17/2025

Parents of premature infants already face enormous stress in the NICU. When posthemorrhagic hydrocephalus is added, the need for clear information and support grows even stronger. This article highlights what families say they need most and how HA offers guidance, connection, and programs like RAISE to help them navigate life after the NICU. Learn more here: https://www.hydroassoc.org/nicu-preparing-families-for-life-with-hydrocephalus/