RP Gene Research Foundation

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United States
Charlotte, NC
RP Gene Research Foundation

We are a 501(c)3, nonprofit dedicated to raising funds to support research for Retinitis Pigmentosa, PRPF 31.

We recently discovered that both of our children have Retinitis Pigmentosa, PRPF 31. This is a progressive degenerative eye disease that causes blindness. There is no cure, but there are scientist out there trying to conduct research, but they struggle to obtain the necessary funding. This nonprofit was created solely for the purpose of raising awareness and funding for RP research. No person should have to go blind and we are determined to make sure a cure is found.

04/02/2026

🌟 Did you know? There are promising trials for Retinitis Pigmentosa. You can search for trials at https://clinicaltrials.gov/search?viewType=Table&cond=Retinitis%20Pigmentosa

You can also visit our website to discover how you can support or get involved!

04/01/2026

PYC is currently recruiting for their trial on the PRPF31.

02/13/2026

Explore the impact you can make in the fight against Retinitis Pigmentosa. Visit rpgene.org today to learn how your support can drive vital research forward.

http://rpgene.org

02/11/2026

Join the movement to combat blindness and make a real difference in the lives of those affected by Retinitis Pigmentosa. Visit our website to explore how you can contribute to vital research and help us find a cure.

http://rpgene.org

02/09/2026

A future without blindness is within reach. By visiting rpgene.org, you can learn how to contribute to groundbreaking research that aims to combat Retinitis Pigmentosa and restore vision for those in need.

http://rpgene.org

02/06/2026

A brighter future is possible with your support for Retinitis Pigmentosa research. Together, we can fund the vital studies needed to combat blindness and change lives for those affected.

02/04/2026

Unlock new possibilities in vision research by visiting rpgene.org today. Your engagement can help pave the way for groundbreaking discoveries in the fight against Retinitis Pigmentosa.

02/03/2026

Do you or someone you love have Retinitis Pigmentosa and would benefit from a pair of Ray-Ban Meta Glasses to help you with everyday tasks? If so, we are giving away a pair. Register for a chance to win on our website!

Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa

01/18/2026

Join the fight against Retinitis Pigmentosa by supporting vital research initiatives. Your contribution can fuel groundbreaking discoveries that bring hope to families affected by this condition.

01/16/2026

A heartfelt journey ignited the mission to combat Retinitis Pigmentosa, driven by the desire to bring hope and healing to families affected by this condition. Milestones achieved reflect the unwavering commitment to funding vital research and raising awareness for a brighter future.

01/12/2026

Join the fight against Retinitis Pigmentosa and help us uncover a cure. Visit rpgene.org for updates and discover how you can make a difference today.

Address

Charlotte, NC

Website

http://www.rpgene.org/

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