Life for Lila

Life for Lila “Life for Lila” is our way of going beyond treating her symptoms and helping find a cure. Lila was born on October 26, 2007; the youngest of 3.

With UMDF leading the charge to find a cure we believe children with Mitochondrial Disease will someday avoid having to deal with the challenges Lila faces. Not long after she was born, it was realized that Lila would face many challenges that most other children would not. After seeing many different specialists and going through various test, she was diagnosed with Mitochondrial Disease, Complex

1 Deficiency. Through the Life for Lila page, you will see updates on how Lila is progressing and different activities she is doing.

💜💜💜 Eaddy Richardson
09/02/2025

💜💜💜
Eaddy Richardson

Celebrate the life of Lila Richardson, leave a kind word or memory and get funeral service information care of McEwen Pineville Chapel.

Service information
08/30/2025

Service information

We are using CaringBridge to keep family and friends updated in one place. We appreciate your support and words of hope and…

08/28/2025

We are using CaringBridge to keep family and friends updated in one place. We appreciate your support and words of hope and…

Sunday update. 💚
08/24/2025

Sunday update. 💚

We are using CaringBridge to keep family and friends updated in one place. We appreciate your support and words of hope and…

08/24/2025
Please continue to keep the Richardsons in your thoughts and prayers.
08/21/2025

Please continue to keep the Richardsons in your thoughts and prayers.

We are using CaringBridge to keep family and friends updated in one place. We appreciate your support and words of hope and…

Update written by Dan
08/20/2025

Update written by Dan

We are using CaringBridge to keep family and friends updated in one place. We appreciate your support and words of hope and…

Lila did great with her EEG! We will have results back in a week. Best of all, her sissy came for a visit. Thank you for...
08/07/2024

Lila did great with her EEG! We will have results back in a week. Best of all, her sissy came for a visit. Thank you for your continued thoughts and prayers💚

Lila has been having an uptick in seizure activity and had a grand mal seizure on Sunday. She hasnt had a seizure that b...
08/05/2024

Lila has been having an uptick in seizure activity and had a grand mal seizure on Sunday. She hasnt had a seizure that bad in 9 years. Luckily she has a prescheduled 48 hour EEG that started today. As you can tell by the picture, nothing will crush her spirit (although she wants the new headwear off immediately 😎). We are prayerfully hoping this test provides Lila’s medical team direction on what is causing the seizures so we can treat her properly… and ditch the new “street cred” attire.

Address

Charlotte, NC

Alerts

Be the first to know and let us send you an email when Life for Lila posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Life for Lila:

Share