The Ramsay Hunt Syndrome Foundation

The Ramsay Hunt Syndrome Foundation The Ramsay Hunt Syndrome Foundation (RHSF) is a 501(c)(3) nonprofit organization. Donate directly here: givebutter.com/RHSF

We founded the RHSF in 2024 to provide improved education for patients, their families and friends, and providers.

This resource offers practical guidance for those navigating facial paralysis and recovery. Books like this can help pat...
06/05/2026

This resource offers practical guidance for those navigating facial paralysis and recovery. Books like this can help patients and families feel more informed, less alone, and better prepared to ask the right questions. Have you read this one yet?

Dizziness can look different for everyone. For some, it feels like spinning. For others, it may feel like imbalance, lig...
06/02/2026

Dizziness can look different for everyone. For some, it feels like spinning. For others, it may feel like imbalance, lightheadedness, or disconnection.

Have you experienced dizziness with Ramsay Hunt syndrome? Understanding your symptoms can help your provider better support your care.

Here’s a book we recommend from our RHSF Book Series:Metamorphosis by Faye Linda WachsSharing meaningful reads that insp...
05/31/2026

Here’s a book we recommend from our RHSF Book Series:
Metamorphosis by Faye Linda Wachs

Sharing meaningful reads that inspire healing, resilience, education, and connection along the RHS journey.

Find more resources on our site: www.ramsayhuntfoundation.org/resources

If Ramsay Hunt syndrome is suspected, time matters. Early evaluation can help confirm what’s happening and guide the rig...
05/28/2026

If Ramsay Hunt syndrome is suspected, time matters. Early evaluation can help confirm what’s happening and guide the right care. If you or someone you love is experiencing facial paralysis, ear pain, rash, dizziness, or hearing changes, seek urgent medical attention.

Save this photo for easy reference and learn more at RamsayHuntFoundation.org

Here’s a book we recommend from our RHSF Book Series:Light Keepers by Mike ShoremanSharing meaningful reads that inspire...
05/24/2026

Here’s a book we recommend from our RHSF Book Series:
Light Keepers by Mike Shoreman

Sharing meaningful reads that inspire healing, resilience, education, and connection along the RHS journey.

Find more resources on our site: www.ramsayhuntfoundation.org/resources

Here’s a book we recommend from our RHSF Book Series:But You Look so Well by Denise TrewarthaSharing meaningful reads th...
05/17/2026

Here’s a book we recommend from our RHSF Book Series:
But You Look so Well by Denise Trewartha

Sharing meaningful reads that inspire healing, resilience, education, and connection along the RHS journey.

Find more resources on our site: www.ramsayhuntfoundation.org/resources

Registration is now open for Face Forward 2026, the Ramsay Hunt syndrome Patient Support Summit! Join us in Chapel Hill,...
05/14/2026

Registration is now open for Face Forward 2026, the Ramsay Hunt syndrome Patient Support Summit!

Join us in Chapel Hill, NC for a powerful day of education, connection, advocacy, and community. Don’t miss this opportunity to network, share experiences, and help elevate care for those living with RHS. Register today through the link or QR code. 💜

www.ramsayhuntfoundation.org/faceforward2026

05/10/2026

Imagine receiving a diagnosis that most people, even many doctors, have never heard of. No roadmap. No community. No one to turn to.

That’s the reality for far too many people living with Ramsay Hunt syndrome- a rare neurological condition caused by the varicella-zoster virus that can trigger facial paralysis, severe ear pain, hearing loss, and lasting nerve damage. Its effects are life-altering, yet awareness remains heartbreakingly low.

But it doesn’t have to be this way.
The Ramsay Hunt Syndrome Foundation (RHSF) is bringing the community together this fall for Face Forward 2026, a powerful one-day summit built around the belief that patients and caregivers deserve education, encouragement, advocacy and each other.

We’re asking for your help to spread the word. A simple share — to your patients, your followers, or your professional network — could connect someone to the support and community they’ve been desperately searching for.

✨ Face Forward 2026 Patient Support Summit
📅 September 19, 2026
📍 The Friday Center, Chapel Hill, North Carolina (15 minutes from RDU Airport)
🔗 www.ramsayhuntfoundation.org/faceforward2026
or secure your spot directly here:
https://lp.constantcontactpages.com/ev/reg/dtdg7j4

Every story shared makes someone feel less alone. When you speak up, you help shorten the path to understanding, diagnos...
05/08/2026

Every story shared makes someone feel less alone. When you speak up, you help shorten the path to understanding, diagnosis, and care for someone else walking this road.

Your voice matters more than you think.

🤍 Read real patient stories on our website and share your story with us 🤍

Address

PO Box 2038
Chapel Hill, NC
27515

Website

https://givebutter.com/RHSF

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