The Ramsay Hunt Syndrome Foundation

The Ramsay Hunt Syndrome Foundation The Ramsay Hunt Syndrome Foundation (RHSF) is a 501(c)(3) nonprofit organization. Donate directly here: givebutter.com/RHSF

We founded the RHSF in 2024 to provide improved education for patients, their families and friends, and providers.

We’ve received so many great questions already and we want to keep them coming.What would YOU like to hear our experts d...
09/02/2026

We’ve received so many great questions already and we want to keep them coming.What would YOU like to hear our experts discuss at the Face Forward Patient Support Summit?

💬 Comment your question below
📩 DM us directly
✉️ Email us at [email protected]
🔒 Questions can be submitted anonymously also (please just note in DM/email)

And if you haven’t registered yet, be sure to join us for this impactful day of connection, education, support, and community.

👉 Register for Face Forward 2026 at ramsayhuntfoundation.org/faceforward2026

One day can make a lasting impact.The RHSF Patient Support Summit brings together patients, caregivers, healthcare profe...
08/23/2026

One day can make a lasting impact.

The RHSF Patient Support Summit brings together patients, caregivers, healthcare professionals, and advocates for a full day of learning, collaboration, and encouragement.

You'll leave with practical information, valuable connections, and the reminder that you are not facing this journey alone.

We can't wait to welcome you this September.

Visit our website to register and learn more about this year's summit.

Registration for Face Forward 2026 is officially open!Join patients, caregivers, medical professionals, therapists, and ...
08/17/2026

Registration for Face Forward 2026 is officially open!

Join patients, caregivers, medical professionals, therapists, and advocates for a day focused on education, recovery, hope, and connection.

September 19, 2026
Chapel Hill, North Carolina

Don't wait! Secure your place today and be part of a community that's working to improve the future of Ramsay Hunt Syndrome care.

Scan the QR code to register or visit www.ramsayhuntfoundation.org.

Your partnership can help change lives. By sponsoring Face Forward 2026, you'll help provide education, resources, and m...
08/09/2026

Your partnership can help change lives. By sponsoring Face Forward 2026, you'll help provide education, resources, and meaningful connections for individuals and families affected by Ramsay Hunt syndrome.

Together, we can expand awareness, strengthen patient support, and improve access to trusted information. Every sponsorship makes a difference.

Contact us today to learn about sponsorship opportunities and how your organization can get involved.

Know someone who needs to be in the room? Tag a patient, caregiver, or clinician who shouldn't miss Face Forward 2026 an...
08/07/2026

Know someone who needs to be in the room? Tag a patient, caregiver, or clinician who shouldn't miss Face Forward 2026 and help them find their community.�

Many people have never heard of Ramsay Hunt Syndrome until it affects someone they love. Early diagnosis can make a mean...
08/05/2026

Many people have never heard of Ramsay Hunt Syndrome until it affects someone they love. Early diagnosis can make a meaningful difference, yet the condition is often mistaken for Bell's palsy.

Learning the signs helps patients receive the care they need sooner.

Share this post to help spread awareness, and join us at Face Forward 2026 to hear from experts and patients who understand the journey firsthand. Visit our website to learn more and register for the summit.

Behind every breakthrough is someone willing to share what they've learned.At Face Forward 2026, you'll hear directly fr...
08/02/2026

Behind every breakthrough is someone willing to share what they've learned.

At Face Forward 2026, you'll hear directly from leading clinicians, researchers, and patient advocates dedicated to improving care for those living with Ramsay Hunt Syndrome.

Whether you're newly diagnosed, a caregiver, healthcare provider, or long-time community member, this summit is designed to educate, empower, and connect.

Register today and reserve your spot by scanning the QR code or visiting our website.

For many people recovering from Ramsay Hunt syndrome, facial movements don't always return the way they expect. This con...
07/31/2026

For many people recovering from Ramsay Hunt syndrome, facial movements don't always return the way they expect. This condition is called synkinesis, and while it can be frustrating, it's also something many patients experience and treatment options are available.

Understanding what's happening is the first step toward finding support and effective care.

Learn more about Ramsay Hunt Syndrome and recovery resources by visiting our website.

Friends, save the details. Face Forward 2026 takes place on September 19 from 8 am to 4 pm at the Friday Center in Chape...
07/30/2026

Friends, save the details. Face Forward 2026 takes place on September 19 from 8 am to 4 pm at the Friday Center in Chapel Hill, NC. Register today to hold your spot.�

Timing matters with RHS. Antiviral treatment works best within 72 hours of symptoms, and early care can reduce nerve dam...
07/27/2026

Timing matters with RHS. Antiviral treatment works best within 72 hours of symptoms, and early care can reduce nerve damage and improve recovery. If you suspect RHS, don't wait, seek care right away. Learn more by visiting our website and registering for Face Forward 2026.

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PO Box 2038
Chapel Hill, NC
27515

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