HDSA North Carolina Chapter

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Chapel Hill, NC
HDSA North Carolina Chapter

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HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s Disease and their families.

10/30/2026

THERE IS STILL TIME!
THE 2026 Team Hope Walk - North Carolina SILENT AUCTION ENDS TOMORROW AT 12:30 PM 💙

Whether you are looking for something fun for yourself, a special gift for someone else or simply seeking another way to support families impacted by Huntington’s disease, we invite you to browse, bid, and have a little fun along the way.

Check out our amazing auction items, place your bids, and check back often—you don’t want to get outbid!

northcarolina.hdsa.org/ncauction26

Winners will be announced at the Team Hope Walk!

10/30/2026

🌸🌿 Amaryllis season is in full bloom, grab yours today!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together.

Click: https://www.flowerpowerfundraising.com/index.php/marketplace/seller/profile/shop/hdsa?fbclid=IwY2xjawVIQdJleHRuA2FlbQIxMABwZG9mAWJyaWQRMW1RSzVZWWE1Tkc1THBnaTNzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeWvdaJkiKlqdWc02gz5_HbIEgsQ3wC7gncFavCyp8dzl_n0780k_Ny4iccqk_aem_enQDobMIoeKbMwOSgR34Ag to learn more.

10/27/2026

BID. WIN. SUPPORT HDSA! 💙

The 2026 Team Hope Walk - North Carolina Silent Auction is NOW OPEN!

Whether you are looking for something fun for yourself, a special gift for someone else or simply seeking another way to support families impacted by Huntington’s disease, we invite you to browse, bid, and have a little fun along the way. Check out our amazing auction items, place your bids, and check back often—you don’t want to get outbid!

northcarolina.hdsa.org/ncauction26

Get your bids in by Saturday, October 31 at 12:30 PM.

Winners will be announced at the Team Hope Walk!

10/27/2026

Join us on Thursday, November 12th at 11:00 AM ET for a community webinar on the PRECISE-HD Trial, a Phase 3 study evaluating pridopidine in Huntington’s disease.

Learn more about the PRECISE-HD study, what potential participation might involve, and where to find additional information.

The presentation will feature Nils Confer, PhD, Executive Medical Director at Prilenia, along with HDSA's own Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement. Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services.

To learn more, and register, visit: https://hdsa-org.zoom.us/webinar/register/WN_j8aCveJNTxCk2yzQpJj5Zg #/registration

10/27/2026

🌸🌿 Fall is in full swing, and Amaryllis season is officially upon us!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together.

Click:https://www.flowerpowerfundraising.com/index.php/marketplace/seller/profile/shop/hdsa?fbclid=IwY2xjawVIQdJleHRuA2FlbQIxMABwZG9mAWJyaWQRMW1RSzVZWWE1Tkc1THBnaTNzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeWvdaJkiKlqdWc02gz5_HbIEgsQ3wC7gncFavCyp8dzl_n0780k_Ny4iccqk_aem_enQDobMIoeKbMwOSgR34Ag to learn more.

10/26/2026

Alnylam has shared early results from a trial of its huntingtin-lowering drug, now named brezosiran.

To read Alnylam’s letter to the community, visit:https://hdsa.org/wp-content/uploads/2026/10/EHDN-Summary-for-PAE_Final_21Oct2026.pdf and, to read the full press release, visit: https://hdsa.org/news/alnylam-announces-positive-initial-phase-1b-data-for-brezosiran-aln-htt02-demonstrating-deep-and-durable-huntingtin-lowering-in-huntingtons-disease/

Thank you to the participants and families who made this possible. 💙

10/23/2026

Upcoming webinar!

Join us on Thursday, November 12th at 11:00 AM ET for a community webinar on the PRECISE-HD Trial, a Phase 3 study evaluating pridopidine in Huntington’s disease.

Learn more about the PRECISE-HD study, what potential participation might involve, and where to find additional information.

The presentation will feature Nils Confer, PhD, Executive Medical Director at Prilenia, along with HDSA's own Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement. Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services.

To learn more, and register, visit: https://hdsa-org.zoom.us/webinar/register/WN_j8aCveJNTxCk2yzQpJj5Zg #/registration

10/23/2026

‼️ We are only EIGHT DAYS away! ‼️

Join us for the 2026 Team Hope Walk - North Carolina on Saturday, October 31st at Laurel Hills Park for a family-friendly day full of supporting families impacted by Huntington’s disease!

🎃 It is on Halloween, so we highly encourage you to wear costumes! There will be a costume contest!

Registration is FREE! If you haven’t registered yet, REGISTER TODAY: https://hdsa.org/thwnc

Bring the family, wear your costumes and come spend the morning with us for an amazing cause.

📅 October 31 | Laurel Hills Park
⏰ Check-in at 10 AM | Event starts at 11 AM

Mark your calendars, friends! We can’t wait to see you there!

10/21/2026

🌸🌿 Amaryllis season is officially HERE!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together.

Click:https://www.flowerpowerfundraising.com/index.php/marketplace/seller/profile/shop/hdsa to learn more.

Address

Chapel Hill, NC

Telephone

+18003454372

Website

http://northcarolina.hdsa.org/

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