Rothmund-Thomson Syndrome Foundation

02/26/2026

This Saturday, February 28th, we celebrate Rare Disease Day. 💜
Our community has grown over the past year, welcoming new faces and families. Though the journey isn’t always easy, we are stronger together — connected, supported, and never alone.

02/19/2026

💜 Ready for Rare Disease Day? 💜

Show your support for Rothmund-Thomson Syndrome by grabbing a hoodie or tee from the link below.

Rare doesn’t mean alone. Together we thrive. 🧬🦓

Show your RTS pride on Rare Disease Day, February 28, 2026!

01/29/2026

Grateful hearts and strong connections at our most recent Sharing & Caring Conference. 💚

Together, the RTS community continues to uplift, learn, and inspire. 🦓🎗🤍 We are incredibly thankful for everyone who volunteered their time and talents showing up for our RTS families.

01/18/2026

Less than 2 weeks to purchase your squares and help out a great cause! January 31st is the deadline!

Super Bowl Squares are on sale now for $10.00 each and helps to support RTS Foundation. As you know, Rothmund-Thomson Syndrome is very rare and we do our all to help support research and education for families effected with this disease. With 1/2 of the proceeds going to RTS Foundation, you still have a chance to win $125 after the 1st, 2nd, 3rd quarters and at games end.
This is the 17th year we've been hosting this fundraiser and it's one of our favorites!
You can click on the link below or use the QR Code to purchase tickets.
https://www.paypal.com/ncp/payment/EBNKFNR5WRPJ8


Good luck and thank you for your continued support!

01/07/2026

Super Bowl Squares are on sale now for $10.00 each and helps to support RTS Foundation. As you know, Rothmund-Thomson Syndrome is very rare and we do our all to help support research and education for families effected with this disease. With 1/2 of the proceeds going to RTS Foundation, you still have a chance to win $125 after the 1st, 2nd, 3rd quarters and at games end.
This is the 17th year we've been hosting this fundraiser and it's one of our favorites!
You can click on the link below or use the QR Code to purchase tickets.
https://www.paypal.com/ncp/payment/EBNKFNR5WRPJ8


Good luck and thank you for your continued support!

12/05/2025

10/16/2025

Our RTS Warriors!

10/11/2025

Meet Your Board!
From Right to Left-
Camille Carlson
Staci Hanson
Tamara Madsen
Bekah Blankers
Kara Hanson
Lisette Riggle

09/13/2025

September is Childhood Cancer Awareness Month! 🩷 Let’s all show our love for our childhood cancer warriors!

03/01/2025

Today, on Rare Disease Day, we stand in solidarity with those living with Rothmund-Thompson Syndrome, a rare condition that often goes unnoticed. This day reminds us of the strength, resilience, and courage of our warriors! While there’s still much to learn, together we can raise awareness, support research, and create a brighter future for those impacted. Let’s amplify their voices and continue to fight for hope and understanding. 💙

02/26/2025