The Willow Tree Foundation

The Willow Tree Foundation The Willow Tree Foundation funds respite opportunities for parents of medically fragile children.

09/02/2025

Dear parents of medically complex children (and/or who know other parents of medically complex children), I've received a request from a physician looking for parents to try out a tool he is developing. Here is what he shared with me:

Hi everyone — I'm a pediatrician who's spent most of my career working with children with medical complexity and their families in the U.S. I've built a very early version of a medication tracking tool specifically designed for parents like you — and I’m now looking for 5–10 parents who might be willing to test it and share brief feedback.

The tool:
Lets you enter scheduled and as-needed meds (manually or by uploading a photo of a label or med list)
Sends email reminders when meds are due — asking you to confirm if they were given (or not, with reason)
Exports a PDF med history you can share with providers
It’s simple and private — no downloads, no account needed, no cost, and no clinical data is stored. I'm testing usability and whether this actually helps reduce stress and manual tracking. What I’m hoping for is for people to try using it for a few days to a week and then just fill out a simple, brief feedback form.

If you are interested, please email me at: [email protected] and I will provide you with his contact information and he'll set up from there. Thank you.

Another unique opportunity to share the parent/patient voice alongside the physician voice in this short narrative essay...
04/01/2025

Another unique opportunity to share the parent/patient voice alongside the physician voice in this short narrative essay. The link gives you the first page; to see page 2 you have to have access to the journal (or reach out to me directly.)

An abstract is unavailable.

01/18/2025

CPN originated in the personal story of a rare disease mom, and now bereaved parent, who began advocating for pediatric palliative care and the needs of familie

01/11/2025

Have you experienced a "family meeting" with your child's care team? Tell us about your experiences.

Learn more about the benefits of a family meeting this guide:
https://bit.ly/4fTXZ2q

12/16/2024

If you had asked me how I felt when my 6-month old daughter was diagnosed with a fatal disease and we learned that she would die in early childhood, I would hav

12/04/2024

Grief is naturally a parent’s constant companion, from diagnosis – or lack thereof – onwards, including into bereavement. Psychologist Wendy Lichenthal, PhD is both a grief researcher and a clinician, with a particular expertise in the psychology of cancer for the patient and the family.

She will frame aspects of the grief experience and discuss using meaning and meaning-making to help with coping, regardless of diagnosis.

Register and join us TONIGHT at 8:00 pm ET. Registration is free!
Register: https://bit.ly/49jI4Zm

A unique and once in a lifetime opportunity for me to share a story as the parent of a medically complex child and the s...
10/17/2024

A unique and once in a lifetime opportunity for me to share a story as the parent of a medically complex child and the special connection I had with my son, Jack. My story, “Fly Away”, was told live onstage in New York City. The Nocturnists and Bellevue Literary Review

Mother of four, writer, and attorney Ann Schrooten reflects on a pivotal moment from her fifteen year journey caring for her son Jack, who lived with congeni...

10/08/2024

Humanizing healthcare through storytelling. The Nocturnists is an award-winning medical storytelling program founded in 2016 by San Francisco internal medicine physician Emily Silverman.

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P. O. Box 13145
Chandler, AZ
85248

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