HDSA-Albany

10/16/2026

Join us for a walk in support of HDSA mission! Support a great cause, spread awareness and join in on some wholesome fun! See you on 11/7!

Register here:

https://give.hdsa.org/event/2026-team-hope-walk-albany/e723902/register/new/select-tickets

Donate here:

https://give.hdsa.org/give/723902 #!/donation/checkout

Join us for the Team Hope Walk, HDSA’s nationwide fundraising event bringing together families, friends, and communities to support those affected by...

10/14/2026

Join us for a walk in support of HDSA mission! Support a great cause, spread awareness and join in on some wholesome fun! See you on 11/7!

Register here:

https://give.hdsa.org/event/2026-team-hope-walk-albany/e723902/register/new/select-tickets

Donate here:

https://give.hdsa.org/give/723902 #!/donation/checkout

10/14/2026

Upcoming webinar!

Join us on November 12th at 11:00 AM ET for a community webinar on the PRECISE-HD Trial, a Phase 3 study evaluating pridopidine in Huntington’s disease.

Learn more about the PRECISE-HD study, what potential participation might involve, and where to find additional information.

The presentation will feature Nils Confer, PhD, Executive Medical Director at Prilenia, along with HDSA's own Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement. Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services.

To learn more, and register, visit: https://hdsa-org.zoom.us/webinar/register/WN_j8aCveJNTxCk2yzQpJj5Zg #/registration

10/07/2026

Watch Part 2 of the Clinical Trials Showcase, recorded at the 2026 HDSA Annual Convention in Phoenix, Arizona.

Continue exploring Huntington’s disease clinical research and the role clinical trials play in advancing potential treatments. This session offers individuals and families impacted by HD an opportunity to learn more about research and the hope driving our community forward.

Visit: https://youtu.be/6WuuOHgK1JA to watch the full video, and learn more about HDSA’s resources, research, and ways to get involved at Huntington's
Disease Society of America.

Help for Today. Hope for Tomorrow.

10/05/2026

Let’s Talk About the BLA Update: What It Means for the HD Community

Join Tam, Allison, and Maryann for a conversation about the Biologics License Application (BLA) update and what it means for the Huntington’s disease community.

Together, they break down the terminology, discuss questions on the minds of individuals and families impacted by HD, and offer perspective on navigating hope and uncertainty as the community follows the path toward potential new treatments.

Visit: https://www.buzzsprout.com/2092862/episodes/19896338-let-s-talk-about-the-bla-update-what-it-means-for-the-hd-community.mp3?download=true to listen to the full episode.

10/05/2026

A member of our HDSA-Albany board is participating in the NYC Marathon to support our cause by raising funds. Huntington's Disease is a devastating and incurable rare disorder that combines the debilitating effects of ALS, Alzheimer's, and Parkinson's, progressively eroding mental, emotional, and physical capabilities. At 18 years old, I received a diagnosis of Huntington's Disease, and since then, I have devoted myself to increasing awareness about this condition. To achieve this goal, I have engaged in various activities such as panel discussions, podcasts, educational series, and medical interviews. Additionally, I have introduced innovative fundraising initiatives, including movement months and kickball tournaments. Running a marathon, however, is a new challenge I had not previously considered. I kindly request your support in this endeavor by donating to help combat Huntington's Disease.

https://people.com/woman-diagnosed-with-huntingtons-disease-at-18-speaks-out-exclusive-11974246?fbclid=IwRlRTSAR9GZZleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEefuYlfn2LCw7Fl1RFgdQLLuq6SB5VWr32y_qBUF9gJps0OOIZbCS-Ptfahbg_aem_D-2rVRoOlcn-FEziLLz2DA

Fundraising page:

https://give.hdsa.org/fundraiser/7121529