Center For Ehlers Danlos Syndrome Alliance

Center For Ehlers Danlos Syndrome Alliance CEDSA is all about the patient, their caregivers, physicians and their staff, plus schools and teache

If you can find it in your heart to donate to this man's marathon run it would be appreciated. Dr. Dr. Michael Holick is...
04/14/2026

If you can find it in your heart to donate to this man's marathon run it would be appreciated. Dr. Dr. Michael Holick is in large part why Leeza is alive today and help us get to the right cardio team. Dr. Holick has turned 80 and is running the Boston Marathon tomorrow for the 3rd time. Not many of can say we can do it once, let alone go up heart attack hill in the course.
Dr. Holick does a lot for EDS and the world leading Vitamin D expert. He has also been a consultant to NASA for 30 years. I hope you can donate if not cheer him on!

https://www.givengain.com/project/michael-raising-funds-for-tufts-medical-center-110947

RIP He was a man who listened and cared.
04/04/2026

RIP He was a man who listened and cared.

Today, we pause to reflect on the mothers in our lives whether it’s our own, our wives who raise our children, or those ...
05/11/2025

Today, we pause to reflect on the mothers in our lives whether it’s our own, our wives who raise our children, or those who step into the role of “mother” for someone in need. To all of you: we tip our hats and say thank you. Thank you for your strength, your compassion, and your unwavering love.
For some of us, Mother’s Day brings a quiet heartache. When you’ve lost your mother, this day feels different. But I know she wouldn’t want tears—she’d want us to celebrate the life she gave us and hold tightly to the memories she left behind.
There are mothers among us who live with a pain few can comprehend—the pain of losing a child. Whether through addiction, illness, or tragic circumstance, their loss is etched in their hearts and visible in their eyes. No words can truly fill the emptiness, but we stand with you. May today bring a spark of joy through fond memories.
Then there are the mothers we know through our work, those who are not with their children today. Not because they don’t love them, but because circumstances, systems, or misunderstandings have forced them apart. Some have children with medical needs that were misinterpreted and misunderstood. Others face a system that too often fails to see the full truth. These mothers cry tears not of celebration, but of sorrow and longing.
Mother’s Day is meant to honor all that it means to be a mother—but for many, it’s also a reminder of what’s missing. We must do better. The system is broken, and though we push for change, it doesn’t come fast enough.
So today, when you hug your loved ones, take a moment to hug them a little tighter—for the mothers who can't. Hold space in your heart for the mothers who are grieving, who are separated, who are longing to be with their children. They, too, deserve to be honored.

05/08/2025

We are wishing all of our EDSers an extra spoon to help make it through today and everyday. For those you do not know about the spoon theory, it is below. It isn't only for us, it applies to anyone who fights a medical condition.

If you have not heard of the Spoon Theory by Christine Miserandino, please check out
We are wishing all of our EDSers an extra spoon to help make it through today and everyday. For those you do not know about the spoon theory, it is below. It isn't only for us, it applies to anyone who fights a medical condition.

If you have not heard of the Spoon Theory by Christine Miserandino, feel free to google it or check out https://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

It helps bring awareness to others, how much energy (or spoons) that those with chronic conditions spend doing basic everyday activities.

We, at CEDSA, wish you all a happy Ehlers Danlos Syndrome Awareness Month! While we may all be a little different, we’re...
05/05/2025

We, at CEDSA, wish you all a happy Ehlers Danlos Syndrome Awareness Month! While we may all be a little different, we’re part of the same herd. We just have differences like zebras have different stripes.

Today we at CEDSA would like to honor Doctor Edvard Lauritz Ehlers and Doctor Henri-Alexandre Danlos who were both born ...
03/26/2025

Today we at CEDSA would like to honor Doctor Edvard Lauritz Ehlers and Doctor Henri-Alexandre Danlos who were both born on March 26th. It is these two doctors who Ehlers Danlos Syndrome was named after.

Doctor Edvard Lauritz Ehlers was born in 1863 in Copenhagen, Denmark where his father was mayor. He qualified in medicine in 1891. He died on May 7, 1937 in, we suspect, Copenhagen.

Doctor Henri-Alexandre Danlos was born in 1844 in Paris, France. He received his doctorate in 1874. He died on September 12, 1912 in Chatou, France.

Heavy minded we are with this day engraved in our mind forever.
09/11/2024

Heavy minded we are with this day engraved in our mind forever.

The staff at CEDSA would like to wish everyone a Happy 4th of July.  Today is a day to celebrate our freedoms, but pleas...
07/04/2024

The staff at CEDSA would like to wish everyone a Happy 4th of July. Today is a day to celebrate our freedoms, but please remember that we need to be thankful for our freedoms daily. Thank you to all who fought to give us our freedom and to those who continue to protect our freedom.

Ever wonder about hearing issues in you EDS little one, maybe this will help.https://pubmed.ncbi.nlm.nih.gov/38657428/Ch...
05/03/2024

Ever wonder about hearing issues in you EDS little one, maybe this will help.

https://pubmed.ncbi.nlm.nih.gov/38657428/

Children with EDS are at higher risk of developing hearing loss, allergic rhinitis, acute sinusitis, and OSA, possibly due to underlying immune dysfunction. Pediatric otolaryngologists should be vigilant about these otolaryngologic sequela in EDS patients.

Children with EDS are at higher risk of developing hearing loss, allergic rhinitis, acute sinusitis, and OSA, possibly due to underlying immune dysfunction. Pediatric otolaryngologists should be vigilant about these otolaryngologic sequela in EDS patients.

Donations for research will help with the cost associated with IRBs and the actual research programs. Let's work togethe...
05/01/2024

Donations for research will help with the cost associated with IRBs and the actual research programs. Let's work together to improve the lives of those affected by EDS with meaningful research. All donations are tax deductible.

Address

4805 Hospital Drive
Cass City, MI
48726

Opening Hours

Monday 9am - 12pm
1pm - 5pm
Tuesday 9am - 12pm
1pm - 5pm
Wednesday 9am - 12pm
1pm - 5pm
Thursday 9am - 12pm
1pm - 5pm
Friday 9am - 12pm

Telephone

+19898723372

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