The Ryan Foundation

02/20/2023

This week on the podcast we have an incredible conversation with Mark Dant, Executive Director of the Ryan Foundation, about a Father’s love and how he moved mountains to save Ryan’s life.

The Jordan's Guardian Angels team first heard Mark share Ryan's story four years ago at Rare Disease Week and knew it had to be shared far and wide. You do not want to miss it!

The Ryan Foundation

https://jordansguardianangels.org/a-rare-reality/

08/16/2022

Mark and Jeanne Dant share their remarkable story of finding Dr. Emil Kakkis who helped save their young son from a rare and fatal genetic disorder.

12/02/2020

Ryan has uploaded a new video to their YouTube channel. Please don't forget to watch, share, like, and SUBSCRIBE to their !

Ryan gets a cornea transplant done in Boston. He had to stay in Boston for over two weeks post-surgery. While in Boston, him and his dad take a trip to Coope...

11/23/2020

Ryan has uploaded a new video to their channel! Please don’t forget it to like, share, and SUBSCRIBE FOR FREE!

Ryan and Silvia work together on wedding plans, while Ryan is in town for a quarterly medical procedure in Dallas, TX.

11/14/2020

Ryan needs you to SUBSCRIBE to www.youtube.com/c/rarities if you haven't already! Over 1.2K views on their first video and they are at 135 subscribers so far. Thank you for all of the support and for sharing "Our Rare Journey"!

11/11/2020

Thank you for all of the subscriptions so far! The Rarities channel now has over 100 subscribers and we want to keep going up! The video has been seen over 860 times in over 48 hours. Please Show your support and hit the SUBSCRIBE BUTTON for FREE!

Hello everyone! Silvia and I are excited to share our life with you and help bring awareness to all other Rare Disease patients and families around the world...

11/09/2020

Rarities: A Rare Journey’s Beginning. Please be sure to SUBSCRIBE to the YouTube channel Rarities for video uploads.

Hello everyone! Silvia and I are excited to share our life with you and help bring awareness to all other Rare Disease patients and families around the world. ...

11/09/2020

HUGE ANNOUNCEMENT: Ryan Dant is getting ready to kick off something really new and exciting on YouTube tomorrow morning! It will premiere at 8:15AM CST tomorrow. Check back tomorrow for more info.

03/10/2020

Every Voice Matters! Below is a video recap of Rare Disease Advocates demonstrating to our elected officials in Washington D.C. HOW EVERY VOICE MATTERS! Please watch and share.

02/28/2020

Wrapping up an amazing week Rare Disease Day at NIH, which aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations under way to address scientific challenges and to advance new treatments National Institutes of Health (NIH) EveryLife Foundation for Rare Diseases