Lymphedema Advocacy Group / Lymphedema Treatment Act

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Lymphedema Advocacy Group / Lymphedema Treatment Act The Lymphedema Advocacy Groups works to improve access to care for those suffering from this chronic disease.

Our group led the effort to pass the Lymphedema Treatment Act legislation, which improved insurance coverage for compression supplies. The "Lymphedema Treatment Act” is a federal bill that will amend Medicare statute to provide for coverage of the compression supplies used in the treatment of lymphedema. Although this legislation relates specifically to a change in Medicare law, it would set a precedent for Medicaid and private insurers to follow. Please go to www.LymphedemaTreatmentAct.org to learn more, and to contact your members of Congress and ask them to support this important bill. The Lymphedema Advocacy Group is an all-volunteer, nationwide patient advocacy group leading the effort to pass this important legislation.

REGISTER NOW for our final webinar of 2026, taking place on Thursday, November 5th at 12:00 PM Eastern: Comparing Medica...
11/02/2026

REGISTER NOW for our final webinar of 2026, taking place on Thursday, November 5th at 12:00 PM Eastern: Comparing Medicare Plans — A Lymphedema Patient’s Guide to Researching Coverage Options (https://zoom.us/webinar/register/WN_xdGVUQ6mSVKuiR_2CBjGBA)

If you are, or soon will be, a Medicare beneficiary, choosing a Medicare plan can be an overwhelming process. In particular, it’s very difficult to get clear and accurate information about lymphedema coverage under Medicare Advantage plans. Our goal is to empower beneficiaries to make more informed choices.

During this webinar, you will learn what coverage is provided under Original Medicare, and how your costs, quantities, supplier access, and other factors may differ with a Medicare Advantage plan. Guest presenters from the Center for Medicare Advocacy will share resources and strategies for researching Medicare Advantage plan coverage, as well as strategies for navigating coverage issues within a current plan.

Following the presentation there will be a live Q&A session.

Register for our October webinar, “Patient Education Series: Head & Neck Lymphedema — Understanding Your Treatment” taki...
10/15/2026

Register for our October webinar, “Patient Education Series: Head & Neck Lymphedema — Understanding Your Treatment” taking place on October 19th at 12:00 PM Eastern (https://zoom.us/webinar/register/WN_vZapmBcCRcOLjtZPmqgCtg #/registration)

Join Lauren Meffen, MA, CCC-SLP, CLT, Speech-Language Pathologist and Certified Lymphedema Therapist, for a patient-focused discussion on head and neck lymphedema.

Head and neck lymphedema can develop following cancer treatment, but what exactly is your lymphedema therapist looking for—and how do they decide what treatment is right for you? Join Lauren Meffen, MA, CCC-SLP, CLT, Speech-Language Pathologist and Certified Lymphedema Therapist, for a patient-foc...

We need to hear from lymphedema patients! The final day to complete our 2026 Lymphedema Treatment Insurance Coverage Sur...
10/08/2026

We need to hear from lymphedema patients! The final day to complete our 2026 Lymphedema Treatment Insurance Coverage Survey is October 18th (https://www.surveymonkey.com/r/MDNBTMT).

The survey takes about 10 minutes. Responses will be kept confidential and results will only be shared in aggregate, to assist lymphedema patients in choosing insurance policies that provide the best coverage.

Take this survey powered by surveymonkey.com. Create your own surveys for free.

Register for our November webinar, “Comparing Medicare Plans — A Lymphedema Patient’s Guide to Researching Coverage Opti...
09/24/2026

Register for our November webinar, “Comparing Medicare Plans — A Lymphedema Patient’s Guide to Researching Coverage Options” taking place on November 5th at 12:00 PM Eastern (https://zoom.us/webinar/register/WN_xdGVUQ6mSVKuiR_2CBjGBA)

If you are, or soon will be, a Medicare beneficiary, choosing a Medicare plan can be an overwhelming process. In particular, it’s very difficult to get clear and accurate information about lymphedema coverage under Medicare Advantage plans. Our goal is to empower beneficiaries to make more informed choices.

During this webinar, you will learn what coverage is provided under Original Medicare, and how your costs, quantities, supplier access, and other factors may differ with a Medicare Advantage plan. Guest presenters from the Center for Medicare Advocacy will share resources and strategies for researching Medicare Advantage plan coverage, as well as strategies for navigating coverage issues within a current plan.

Following the presentation there will be a live Q&A session. You can also submit a question in advance until October 18th by completing our 2026 Coverage Survey (https://www.surveymonkey.com/r/MDNBTMT).

If you are or soon will be a Medicare beneficiary, choosing a Medicare plan can be an overwhelming process. In particular, it’s very difficult to get clear and accurate information about lymphedema coverage under Medicare Advantage plans. Our goal is to empower beneficiaries to make more informed ...

Register for our October webinar, “Patient Education Series: Head & Neck Lymphedema — Understanding Your Treatment” taki...
09/22/2026

Register for our October webinar, “Patient Education Series: Head & Neck Lymphedema — Understanding Your Treatment” taking place on October 19th at 12:00 PM Eastern (https://zoom.us/webinar/register/WN_vZapmBcCRcOLjtZPmqgCtg #/registration)

Head and neck lymphedema can develop following cancer treatment, but what exactly is your lymphedema therapist looking for—and how do they decide what treatment is right for you?

Join Lauren Meffen, MA, CCC-SLP, CLT, Speech-Language Pathologist and Certified Lymphedema Therapist, for a patient-focused discussion on head and neck lymphedema. Learn how therapists assess swelling and soft tissue changes, how scars can affect lymphatic flow, and the difference between lymphedema and fibrosis.

We’ll also discuss compression wear schedules, exercises based on the location of swelling and symptoms, at-home skin care, when lymphedema may develop after head and neck cancer treatment, primary head and neck lymphedema, and when to seek help from a therapist.

Come away with a better understanding of what your therapist is assessing and how your individual symptoms help guide head and neck lymphedema treatment.

Head and neck lymphedema can develop following cancer treatment, but what exactly is your lymphedema therapist looking for—and how do they decide what treatment is right for you? Join Lauren Meffen, MA, CCC-SLP, CLT, Speech-Language Pathologist and Certified Lymphedema Therapist, for a patient-foc...

Please help us in wishing the happiest of birthdays to our long time Board Member and extraordinaire of all things lymph...
09/10/2026

Please help us in wishing the happiest of birthdays to our long time Board Member and extraordinaire of all things lymphedema & lipedema, Sarah Bramblette❣️
Sarah is a dedicated advocate and patient who never stops fighting for improvements in policy, treatment and coverage.
HAPPY BIRTHDAY SARAH! 🩵

Please complete our 2026 Lymphedema Treatment Insurance Coverage Survey (https://www.surveymonkey.com/r/MDNBTMT).The sur...
09/10/2026

Please complete our 2026 Lymphedema Treatment Insurance Coverage Survey (https://www.surveymonkey.com/r/MDNBTMT).

The survey takes about 10 minutes. Responses will be kept confidential and results will only be shared in aggregate, to assist lymphedema patients in choosing insurance policies that provide the best coverage.

For more details and to view the 2025 Coverage Report visit our website (https://lymphedemaadvocacygroup.org/insurance-coverage-reporting/).

Take this survey powered by surveymonkey.com. Create your own surveys for free.

A video recording of our August webinar is now available — Pregnancy with Lymphedema and Lipedema: How Do They Impact Ea...
09/01/2026

A video recording of our August webinar is now available — Pregnancy with Lymphedema and Lipedema: How Do They Impact Each Other? (https://youtu.be/oMNIeERGGmY))

This webinar covers the changes during pregnancy and the post-partum period that impact the lymphatic system and how one can safely treat any signs or symptoms that develop.

The guest presenter is Dr. Shelley Smith DiCecco, PT, PhD, CLT-LANA, CI-CS. Dr. DiCecco has decades of experience treating lymphedema and is the founder of LymphEd.

This webinar covers the changes during pregnancy and the post-partu...

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