Lymphedema Advocacy Group / Lymphedema Treatment Act

06/23/2026

On Thursday, June 25th at 12:00pm Eastern, we will be hosting a webinar for patients — You Can Do This: Simple Self-Care for Lymphedema in the Breast and Trunk. The guest presenter will be Jodi Winicour, PT, CMT, CLT-LANA, who has been treating patients with lymphedema, cancer-related dysfunction, and orthopedic issues since 1993. CLICK HERE TO REGISTER (https://zoom.us/webinar/register/WN_NnK5sDCkSVGEauCtbTUs8A).

Breast surgery and radiation therapy can significantly impact the lymphatic system, often leading to swelling, discomfort, and uncertainty about what is normal during recovery. This presentation will help participants understand breast and trunk lymphatic anatomy, how cancer treatments affect lymphatic drainage and scar tissue formation, and why swelling and pain commonly occur after treatment.

Attendees will learn how to recognize signs of excessive swelling, distinguish between edema that will likely resolve, and swelling that may become permanent lymphedema, perform safe self-massage techniques, and explore compression options that may help manage symptoms. Practical, evidence-informed information and ample time for questions will empower participants to better understand and care for their bodies during and after breast cancer treatment.

06/13/2026

We are thrilled to announce that all of our educational materials are now available in Spanish! (https://lymphedemaproject.org/educational-materials-handouts/)

Please help us raise awareness by sharing the educational materials below.We have a limited supply of our Information Cards shown below available for shippi ...

06/08/2026

A recording of our most recent webinar is now available — Industry Partner Product Education Series: mediUSA (https://youtu.be/ouDiMXxOgt0).

As a manufacturer of medical compression products for venous and lymphatic disorders, mediUSA offers a variety of options, including daytime and nighttime products with ready-to-wear sizing and made-to-measure. They also offer inelastic, adjustable compression available through the Circaid line of products.

As a manufacturer of medical compression products for venous and ly...

05/31/2026

Researchers are seeking input from lymphatic disease patients, caregivers, healthcare providers, and others in the lymphedema community. If this describes you, we invite you to participate in this opinion-based research study about lymphatic disease (https://redcapedc.rti.org/arpa_h/surveys/?s=CPMHAXMRWWWWKRYD&m_s=ri).

The survey takes about 25 minutes to complete. Participation is voluntary, and all information will remain confidential. For more details, please visit our website (https://lymphedemaadvocacygroup.org/share-your-knowledge-by-taking-this-research-related-survey/).

05/22/2026

If you are a Kentucky resident, this is an opportunity to improve Kentucky Medicaid (not Medicare) coverage for lymphedema compression treatment items! The Kentucky Medicaid Advisory Committee (MAC) will meet on June 4, 2026, and you can sign up to give public comments in-person or over Zoom. For more information and to sign up, please visit our website (https://lymphedemaadvocacygroup.org/action-alert-re-kentucky-medicaid/).

If you are a Kentucky resident, this is a unique opportunity to help improve Kentucky Medicaid (not Medicare) coverage for lymphedema compression treatment ...

05/18/2026

Join us for our next Industry Partner Product Education Series Webinar with mediUSA, taking place on Wednesday, June 3rd at 12:00 p.m. Eastern. REGISTER NOW - (https://zoom.us/webinar/register/WN_6Z3X9m8aQBa7RSaWv2HxFA)

Following the 30-minute presentation, attendees will have the opportunity to ask questions.

As a manufacturer of medical compression products for venous and lymphatic disorders, mediUSA offers a variety of options, including daytime and nighttime products with ready-to-wear sizing and made-to-measure. They also offer inelastic, adjustable compression available through the Circaid line of products.

Don’t miss this opportunity to learn about all of the many lymphedema treatment items mediUSA offers.

05/13/2026

*Important post about denials*

When we were working to pass the Lymphedema Treatment Act, patient stories were a vital part of building support for the bill. In much the same way, the information shared through our Denial Reporting Form (https://www.surveymonkey.com/r/denial-form) allows us to not only identify problems, but also enables us to share real-world examples of how coverage issues negatively impact access to care and patient outcomes.

While no personal identifying information is ever shared, being able to cite specific examples is absolutely essential when trying to influence policy change. We are presently preparing outreach on two issues in particular, so we especially need to hear from you if you have experienced a coverage issue related to one of the following:

(1.) Have received a denial for or had difficulty finding a supplier who accepts insurance for standard-fit compression gloves.

(2.) Denials under any type of Aetna insurance plan, especially for the treatment of lymphedema in non-limb areas of the body (head, neck, chest, trunk, or pelvic region).

Please use our Denial Reporting Form if you are experiencing a problem related to one of the issues above, or to share any other instance of denial, insufficient coverage, or other access to care issue. Thank you for your advocacy — your voice matters and fuels change! (https://www.surveymonkey.com/r/denial-form)
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05/11/2026

A digital version of our Lymphedema Information Card is now available in Spanish! (https://lymphedemaproject.org/wp-content/uploads/2026/05/LEAP_Information-Card_Spanish-Translated.pdf)

We are currently working on creating Spanish versions of all items on our Educational Materials page, and hope to have these available in the coming weeks. (https://lymphedemaproject.org/educational-materials-handouts/)

05/07/2026

A recording of our webinar with JOBST is now available (https://youtu.be/EJ0LMk1vWEI). During the presentation you will learn about all of the many lymphedema treatment items JOBST offers, and how they might benefit you or your patients.

With more than 65 years of experience, JOBST is a global leader in the management of venous and lymphatic diseases, developing and manufacturing standard-fit and custom-fit compression therapy products for daytime and nighttime use.

With more than 65 years of experience, JOBST is a global leader in the management of venous and lymphatic diseases, developing and manufacturing standard-fit...

05/02/2026

Catch up on the latest information, happenings, and action alerts by visiting our newsletter archives (https://lymphedemaadvocacygroup.org/newsletter-archives/).

Upcoming Webinars and Aetna Action Alert May 2, 2026 If you or your patients have been denied coverage by an Aetna insurance plan, please use our Denial Reporting Form. We especially need to hear from you if the denial Read Full Article »