N-Lorem Foundation

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N-Lorem Foundation Creating a better future for nano-rare, one patient at a time.

We’d like to take a moment to share our appreciation for our incredible Nano-rare Patient Colloquium host, Biogen! The t...
10/15/2026

We’d like to take a moment to share our appreciation for our incredible Nano-rare Patient Colloquium host, Biogen! The two days of connection and learning shared among the nearly 1000 individuals who joined us in Cambridge and online would not have be possible without Biogen’s generous support of the event, the n-Lorem Foundation, and our nano-rare community!

Thank you, Biogen! đź‘Ź

Looking back at an unforgettable NRPC 2026! From the incredible moments to the meaningful connections made, this event w...
10/12/2026

Looking back at an unforgettable NRPC 2026! From the incredible moments to the meaningful connections made, this event was one for the books. 🙌

A huge thank you to the nearly 1000 individuals who joined us in Cambridge and online! We’re grateful to everyone who participated, presented, and sponsored, helping make this year’s NRPC a success!

Videos for all presentations and panels will be shared in the coming days.

🌟 Celebrating Our Five Heroes of n-Lorem!On Day 1 of the 2026 Nano-rare Patient Colloquium, we had the honor of recogniz...
10/07/2026

🌟 Celebrating Our Five Heroes of n-Lorem!

On Day 1 of the 2026 Nano-rare Patient Colloquium, we had the honor of recognizing five incredible individuals who embody the spirit of the n-Lorem community.

Join us in celebrating our Heroes of n-Lorem and the impact they continue to make for the nano-rare community. đź’™

One final push to make your bid the highest! Our patient art auction closes tonight.All proceeds support n-Lorem's missi...
10/07/2026

One final push to make your bid the highest! Our patient art auction closes tonight.

All proceeds support n-Lorem's mission to provide treatment opportunities to nano-rare patients in need. Check out all the artwork here: https://www.nlorem.org/auctions/

📢 Just one day to go until the event!Make sure to take a look at our website for the most up-to-date agenda, so you can ...
10/06/2026

📢 Just one day to go until the event!

Make sure to take a look at our website for the most up-to-date agenda, so you can plan your time and make sure you don’t miss the sessions and panels you’re most looking forward to—including “Long-term Benefit for Nano-rare Patients: What We Are Learning” on Day 2.

We look forward to seeing you there! 🙌

Expanding access to individualized ASO treatment requires more than developing a medicine, it requires building the clin...
10/04/2026

Expanding access to individualized ASO treatment requires more than developing a medicine, it requires building the clinical, regulatory, legal and operational infrastructure to safely treat and follow patients at qualified institutions. Dr. Glass will discuss n-Lorem’s efforts to expand its network of treatment sites in the U.S, including the establishment of Centers of Excellence that have a proven track record of treating patients with n-Lorem ASOs and can provide the expertise, infrastructure and long-term commitment needed to serve the nano-rare community. She will share what it takes to bring a new treatment site on board, the challenges n-Lorem is working to overcome, and the progress being made to create a more efficient and scalable model that will enable more straightforward access to treatment institutions for future nano-rare patients.

✨ ONLY 3 DAYS TO GO! ✨
The big day is almost here! ⏳ Get ready for inspiring conversations, new connections, and exciting insights. 🎉

Join us in person or virtually!

đź”— Register now: https://www.nlorem.org/2026-nrpc-registration/

In just seven years, n-Lorem has built a new model for discovering, developing and providing individualized medicines to...
10/04/2026

In just seven years, n-Lorem has built a new model for discovering, developing and providing individualized medicines to nano-rare patients. This presentation will look at what we have accomplished together, from philanthropic support and transformational gifts to the significant in-kind contributions that allow us to do more with every dollar we raise. If we are going to continue expanding the limits of what is possible for nano-rare patients, we need everyone who believes in this mission to help us meet the growing need.

✨ ONLY 3 DAYS TO GO! ✨

The big day is almost here! ⏳ Get ready for inspiring conversations, new connections, and exciting insights. 🎉

Join us in person or virtually!

đź”— Register now: https://www.nlorem.org/2026-nrpc-registration/

Several physicians and institutions treating patients with n-Lorem ASOs have successfully transitioned from supporting a...
10/02/2026

Several physicians and institutions treating patients with n-Lorem ASOs have successfully transitioned from supporting a single patient program to developing sustainable programs that serve multiple patients. This has involved building infrastructure, expanding physician teams, establishing new pathways for institutional support, and learning from colleagues who have navigated the process before them. In this session, four n-Lorem champions will share their experiences building efficiencies, expanding N-of-1 programs within their institutions, and increasing the scope of their n-Lorem collaboration. Panelists will also highlight key lessons learned and practical strategies for successfully scaling these programs while maintaining high-quality patient care.

✨ JUST 5 DAYS TO GO! ✨

The countdown is on! ⏳ We’re only five days away from an exciting event filled with great conversations, connections, and insights. 🎉

Whether you’re joining us in person or virtually, we’d love to have you there!

đź”— Register now: https://www.nlorem.org/2026-nrpc-registration/

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Carlsbad, CA

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