The Bella Project

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Born from a child's fight, The Bella Project helps families access clinical trials through informed navigation, barrier removal, and real-world knowledge of how physicians and trial sites operate behind the scenes.

🦈🎀🌈 thebellaproject.com 🌈🎀🦈

10/07/2026

🦈💜🌈 Please share for awareness of our existence for the families battling childhood cancer who need somewhere to turn!

Please lift up sweet Bella in prayer today as she is currently heading into her second brain surgery to remove a brain t...
05/26/2026

Please lift up sweet Bella in prayer today as she is currently heading into her second brain surgery to remove a brain tumor that has come back. We are so grateful she is starting a clinical trial that represents real hope for children like her. She is our why, our namesake, and the brave little girl whose fight gave this project not just its name, but its purpose. Thank you, Lord for breaking through doors we could not even knock on.

Isaiah 45:2 NIV

“I will go before you and will level the mountains; I will break down gates of bronze and cut through bars of iron.” 🏔️⛓️‍💥🙏🏼

Federal law exists to protect children in state custody from research abuse. But what happens when those laws are ignore...
03/31/2026

Federal law exists to protect children in state custody from research abuse. But what happens when those laws are ignored — or when they create barriers so unclear that the sickest children are never offered trials at all?

In the 1950s and 60s, researchers at Willowbrook State School in New York deliberately infected intellectually disabled children in state care with hepatitis — in the name of science. The federal regulations we have today, including 21 CFR Part 50 Subpart D, were written to make sure that never happened again.

But here’s what no one is talking about: the system is now failing children from both directions. Either someone without legal authority consents to experimental research on their behalf — violating the very laws designed to protect them — or the lack of a clear consent pathway means they’re never offered a clinical trial in the first place.

Children in foster care are among the sickest pediatric populations in this country. They experience complex medical conditions at double the rate of other children. And the children who need access to clinical trials the most are the ones least likely to be protected by the laws designed to help them get there.

Swipe through to learn what the law actually says about who can and cannot consent to experimental research on a foster child.

And if you think this is hypothetical — it’s not. This is happening right now, in Ohio, to real children.

Share this. Tag your state representative. Ask how your state is enforcing federal research protections for its most vulnerable children.

Every child deserves an informed advocate.🦈🎀🌈

Last evening, The Bella Project’s Founder and Board of Directors attended The Warrior in HER Foundation Midnight Garden ...
03/28/2026

Last evening, The Bella Project’s Founder and Board of Directors attended The Warrior in HER Foundation Midnight Garden Gala, where women in the valley were recognized for their leadership and impact. Thank you for having us and for putting on such an amazing event!

“Advocacy without change is just noise.” -TBP

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Canfield, OH
44406

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