KoaStrong Childhood Cancer Prevention Organization

07/25/2026

This week, KoaStrong joined childhood cancer organizations at the Coalition Against Childhood Cancer Summit in Miami.

We came home inspired.

Not only by the incredible speakers, survivors, researchers, and advocates—but by the people behind the organizations.

Many of these organizations were born from a family’s experience with childhood cancer. Behind each mission is a child whose life changed the world around them. Their names continue to inspire research, support families, advocate for change, and create hope for those who follow.

Each organization serves a different purpose. Some help families through treatment. Some fund research. Some focus on survivorship, advocacy, or bereavement.
KoaStrong’s mission is different, but it is part of the same vision.

In honor of Koa, we are working to prevent childhood cancer and advance early detection—so that one day, fewer families will hear the words, “Your child has cancer.”

What became so clear this week is that these missions don’t compete—they complement one another. Together, we’re building something far greater than any one organization could accomplish alone.

Thank you to CAC2, its dedicated volunteers, and every organization that generously shared their knowledge, experience, and heart. We are grateful for the new friendships, meaningful collaborations, and renewed hope we bring home.

For Koa. 💛

ChildhoodCancer ChildhoodCancerAwareness

07/12/2026

Fishing for a Future Without Childhood Cancer. 🎣

Join us at the Capitola Wharf as we launch the KoaStrong Fishing Series—creating joyful moments for families while supporting childhood cancer prevention and early detection.

August 30, 2026 7:00 am - noon

Sign Up ~ Link in bio

07/01/2026

One day of golf. Years of impact.

“That one golf day” became so much more than a day on the course.

Because of our golfers, sponsors, volunteers, and supporters, the 2025 KoaStrong Golf Tournament helped fund childhood cancer prevention research that is already making an impact in 2026.

⛳ Supporting international research exploring environmental risk factors for childhood cancer

⛳ Expanding access to global childhood cancer and leukemia data for prevention scientists

⛳ Advancing conversations around newborn genomic screening and earlier identification of cancer risk

⛳ Helping move childhood cancer prevention from an idea to a growing movement

What looked like a day of golf became a day of action.

And we’re just getting started.
Looking forward to another great day on September 14, 2026.

06/22/2026

One question changed everything.

When our son Koa was diagnosed with AML, the question we couldn’t stop thinking about:

Why does cancer begin in a healthy child?

That question eventually became the foundation of KoaStrong’s mission to advance childhood cancer prevention and early detection.

I’m grateful to the Pediatric Environmental Health Specialty Units (PEHSU) for featuring our story and sharing why these conversations matter. Prevention can be a difficult topic in childhood cancer, but asking questions is how we move science forward and create a safer future for children.

If you haven’t read the article yet, the link is in our bio. I’ll also share it in Stories.

💛 What question do you wish researchers were asking about childhood cancer?

PreventionMatters ChildhoodCancerAwareness CancerPrevention PublicHealth EveryKidDeservesProtection

06/18/2026

The Official U.S. Congressional website of The Democrat Oversight Committee

04/10/2026

Two chances to support KoaStrong—no matter where you live.
We’re hosting TWO upcoming restaurant fundraisers with Panda Express:
📅 May 5 (apply code 9014738 during online checkout)
📅 June 5 (apply code 9014739 during online checkout)

The best part? You can participate from anywhere in the United States. Simply order through the Panda Express app or online for pickup or delivery, and your meal will help fund critical childhood cancer prevention efforts.
These fundraisers may seem simple—but they make a meaningful impact for small organizations like ours. Every order helps us move prevention and early detection forward.
Thank you for showing up, spreading the word, and being part of this mission.

Raise money for KOASTRONG Childhood Cancer Prevention

02/04/2026

Proud to have advocated in Washington DC in 2025 for this package for children with cancer. So much gratitude to the relentless leaders and organizations on every level that made this possible!

WE DID IT! 🎉 The most comprehensive childhood cancer legislation in more than a decade was signed by the president and is now LAW.

For every message you sent to lawmakers, every phone call, every tweet, every 'share' of a post, every child's story told: Thank you. You made this moment possible.

Our collective, relentless advocacy means that more children will have a chance to beat cancer and live long, healthy lives.

Today, we celebrate. 👏👏👏

02/03/2026

All major WINS for children battling cancer ✨

We are incredibly excited to share that the U.S. House has just PASSED a modified funding package that includes several critical pieces of pediatric cancer legislation!!
This package includes the Mikaela Naylon Give Kids a Chance Act, the Accelerating Kids’ Access to Care Act, the STAR Act, increased funding for the Department of Defense Congressionally Directed Medical Research Program, and funding for the Childhood Cancer Data Initiative — all major wins for children battling cancer.
The next step is the President’s desk, where this important legislation will be signed into law!

We are incredibly thankful to all of our children, parents and advocates who sent letters to Congress. Your voice was heard!!

02/03/2026

The Mikaela Naylon Give Kids a Chance Act will now go to President Trump to be signed into law. Thanks to the hard work, emails, tweets, phone calls, office visits and letters from thousands of people across our nation!

02/03/2026

This is why we are doing this.

Creating real change has always been the goal—not just reacting to another childhood cancer diagnosis, not just accepting toxic treatment as the starting point, but changing when and how we engage.

Seeing genuine engagement from the National Cancer Institute at the Scientific Advisory Council meeting is significant. It signals a shift toward viewing childhood cancer through a prevention lens—something that has never truly existed at this level before.

This work is about helping the world see childhood cancer differently. Prevention isn’t theoretical. It’s necessary. And it’s finally moving forward.

The 2nd tangible item that we are sharing from the Scientific Advisory Council (SAC) meeting, January 21-22, for the Childhood Cancer Prevention Consortium, is the engagement and interest from the National Cancer Institute. (NCI).

A high-level member of NCI attended both days of the meeting, fully engaged, exchange of ideas, suggestions, and an absolute intention to bring the discussion of childhood cancer prevention to the highest levels of NCI. Conversations are underway to work together with NCI to bring a focus to childhood cancer prevention that has not ever existed there yet.

We promised tangible outcomes from the SAC meeting. We promised tangible outcomes from the Childhood Cancer Prevention Consortium. Together with all the Consortium Partners, these promises are being kept.